living with IBD – Page 3 – Own Your Crohn's

autoimmune disease, awareness, Coronavirus, COVID-19, Crohn's, immunocompromised, living with IBD, Minority Health, Ostomy, Ulcerative Colitis, Vaccinations

Receiving the COVID-19 Vaccine as a Patient with Several Autoimmune Conditions

March 22, 2021

I recently received both doses of the Pfizer-BioNTech COVID-19 vaccine! Many folks have been asking about my stance on it and what my experiences with it have been. First of all, I want to be clear – in line with the guidance shared by the International Organization for the Study of Inflammatory Bowel Diseases, I am without any doubt a supporter of vaccination against COVID especially as a student of public health who has learned about the immense significance of vaccines in curbing pandemics. I believe this pandemic has taken far too many lives (~500K just in the U.S.) and I think that the potential for overarching complications of contracting…

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Tina Aswani Omprakash

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Incredible Innovations: A Brand New Wireless IBD Medication Delivery Solution

February 18, 2021

Sponsored by Veloce Corporation – SmartTab. All thoughts & opinions are my own. As a Crohn’s patient for the last 15 years, I’ve done my fair share of taking oral medications, receiving infusions and giving myself subcutaneous injections. So last summer, when I came across a digital health company called SmartTab, I was fascinated to learn about the wireless drug delivery solutions they are working on to change the way we take and absorb medications. After having done a lot of research and seeing the buzz at Crohn’s & Colitis Congress ’21 on SmartTab’s poster session, I thought it’s now high time to share this technology with the IBD patient…

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Tina Aswani Omprakash

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advocacy, awareness, Coronavirus, COVID-19, Crohn's, immunocompromised, Minority Health, Ulcerative Colitis, Vaccinations

South Asian IBD & COVID-19

January 26, 2021

Ten days ago, India released its two vaccines, CoviShield & Covaxin, to begin distribution to frontline workers and eventually the general population. As such, Dr. Sumit Bhatia, leading IBD specialist at Medanta – The Medicity Hospital in Gurgaon, India, and Dr. Neilanjan Nandi, esteemed IBD specialist at the University of Pennsylvania, Philadelphia, PA, USA, joined me on the FITWITMD Facebook page for a live discussion to explain the two vaccines in India along with the two mRNA vaccines in much of the Western world. The purpose of this discussion was to understand how COVID is affecting the IBD population and to address vaccine hesitancy in the global South Asian IBD…

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Tina Aswani Omprakash

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October 21, 2018
Crohn's, Healthcare Disparities, living with IBD, Mental Health, Minority Health, Ulcerative Colitis

Patients’ Journey Through Inflammatory Bowel Disease (IBD): A Qualitative Study

January 24, 2021

Tina Aswani Omprakash, Norelle Reilly, Jan Bhagwakar, Jeanette Carrell, Kristina Woodburn, Abby Breyer, Frances Close, Gabriel Wong, PATIENTS’ JOURNEY THROUGH INFLAMMATORY BOWEL DISEASE (IBD): A QUALITATIVE STUDY, Inflammatory Bowel Diseases, Volume 27, Issue Supplement_1, January 2021, Pages S53–S54, https://doi.org/10.1093/ibd/izaa347.127 **Abstract originally published in the Crohn’s & Colitis Foundation’s journal Inflammatory Bowel Diseases on January 21st, 2021 and presented at Crohn’s & Colitis Congress. Research study sponsored by Genentech & led by patient advocate Tina Aswani Omprakash of Icahn School of Medicine at Mount Sinai** I’m proud to announce the first patient advocate led study in the IBD space! Please view the above downloadable poster and link to the abstract for the results…

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Tina Aswani Omprakash

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December 21, 2018

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February 24, 2023
Coronavirus, COVID-19, Crohn's, immunocompromised, living with IBD, Ulcerative Colitis

COVID-19 & IBD: GI Perspectives on Fall 2020 & Beyond

September 16, 2020

Given all the chatter about COVID-19 this upcoming fall season, I thought it best to inform ourselves as patients as to what to expect. Because rates of COVID infection are so variable across the U.S., I spoke to several leading gastroenterologists around the country to get their take on what they’re recommending to their IBD patients about vaccinations, medications, surgery in addition to attending social gatherings and returning to school and/or work. The 5 IBD specialists I spoke to are located in various parts of the country and include Dr. Jordan Axelrad (Adult GI at NYU Langone Medical Center), Dr. Sabina Ali (Pediatric GI at UCSF Benioff Children’s Hospital), Dr.…

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Tina Aswani Omprakash

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April 18, 2020
Ableism, advocacy, Coronavirus, COVID-19, Crohn's, disability accommodations, Disability Justice, Gastroparesis, invisible illness, living with IBD, Mental Health, Ulcerative Colitis

University Accommodations in the COVID-19 Era

September 7, 2020

The last few weeks have felt daunting and overwhelming as I’ve been battling intense floods of illness and considering whether or not to resume graduate school part-time again this fall. You see, even contemplating a graduate program was a huge undertaking for me a couple years ago when I was accepted into a Certificate of Public Health program. As I slowly mustered up the courage to transfer into the Master’s in Public Health program, I felt scared yet hopeful all at once. And in between it all, I’ve had to take a trimester off to tend to my health. But all that aside, now we are in the midst of a…

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Tina Aswani Omprakash

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Clinical Trials, Crohn's, Emerging Therapies, living with IBD, Ulcerative Colitis

What I Learned From Joining a Clinical Trial for Crohn’s

June 13, 2020

By Tina Aswani Omprakash, Medically reviewed by Jenny Blair, MD Originally published on the Oshi Health website on April 6th, 2020: http://www.oshihealth.com/joining-clinical-trial/ My journey with Crohn’s disease has been an arduous one, laden with difficult decisions, including whether to take strong medications and when to have life-altering surgeries. At one point, Crohn’s derailed my career, my prospects of finishing graduate school and my ability to pursue meaningful relationships. But I was scared to try any new medication, let alone partake in a clinical trial. I was young and didn’t want to be burdened by a strict drug regimen or potential side effects. After I had more than 20 corrective surgeries…

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Tina Aswani Omprakash

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Healthline’s Best Crohn’s Disease Blogs of 2020

May 24, 2020

Originally published by the Healthline Editorial Team on May 12th, 2020: https://www.healthline.com/health/crohns-disease/best-blogs#1 Researchers may not understand every aspect of Crohn’s disease, but that doesn’t mean there aren’t ways to effectively manage it. That’s exactly what these bloggers are doing. The authors behind this year’s best Crohn’s blogs are actively working to educate, inspire, and empower their visitors by sharing sound medical advice and personal stories. It’s an important reminder that you’re not alone in your journey. Own Your Crohn’s Tina was 22 when she received her Crohn’s diagnosis. Since the last couple years, she’s been using this blog as way to advocate and normalize chronic conditions like Crohn’s. Living with Crohn’s…

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Tina Aswani Omprakash

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COVID-19 Survivors: Stories of Hope in the IBD World

May 7, 2020

The last 8 weeks since the World Health Organization declared Coronavirus a pandemic have been nothing short of an emotional roller coaster ride for many of us. From uncertainty around chronic illness and medications making us a higher risk to jarring numbers of lethal infection rates, we are all grappling with much despair. Given all the sadness in the media right now, I thought it relevant to share stories of hope, ones where IBD patients, their caregivers and their doctors have not just survived but are making a full recovery. Check out the stories below of 4 IBD patients, a caregiver and a gastroenterologist, all survivors of COVID-19 and heroes…

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Tina Aswani Omprakash

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~OYC TRAILBLAZERS~ Spotlight on Malaysian Crohnie & Ostomate Saravanan

April 22, 2020

It all started in early 2008 when I was still in high school and started to experience bowel disease symptoms. However, as many of us know, there can be a large gap between the time we experience symptoms and the time we are officially diagnosed. I was finally diagnosed with Crohn’s disease in July 2012. The four and half years in between onset of symptoms and diagnosis were the most arduous part of my journey. My battle began upon developing a fistula. For those who may not be familiar, a fistula is an abnormal tract created between the intestinal wall and another organ or out on to the skin due…

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Tina Aswani Omprakash

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