Clinical Trials,  Crohn's,  Emerging Therapies,  living with IBD,  Ulcerative Colitis

What I Learned From Joining a Clinical Trial for Crohn’s

By Tina Aswani Omprakash, Medically reviewed by Jenny Blair, MD

Originally published on the Oshi Health website on April 6th, 2020: http://www.oshihealth.com/joining-clinical-trial/

My journey with Crohn’s disease has been an arduous one, laden with difficult decisions, including whether to take strong medications and when to have life-altering surgeries. At one point, Crohn’s derailed my career, my prospects of finishing graduate school and my ability to pursue meaningful relationships. But I was scared to try any new medication, let alone partake in a clinical trial. I was young and didn’t want to be burdened by a strict drug regimen or potential side effects. 

After I had more than 20 corrective surgeries in a seven-year period, my doctor at the Mayo Clinic asked me to consider a medication still in clinical trials. It wasn’t an easy decision, but at the same time, it seemed like a no-brainer. I had a new rectovaginal fistula—even though my rectum had been excised—and I was out of medical options. My Crohn’s was continuing its spread, despite the problematic organs having been removed. It was a phenomenon my gastroenterologist told me he had only seen a couple times before. I was hopeful for a chance at life again, though, and if that meant joining a clinical trial, I was on board. 

To read more, please visit the Oshi Health website: http://www.oshihealth.com/joining-clinical-trial/

~~Love, Light & Peace Always~~

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Tina is a health advocate for patients living with chronic illnesses and disabilities. Via her writing, social media and public speaking engagements, she spearheads public health causes, including those creating awareness for inflammatory bowel disease (Crohn's & Colitis), life-saving ostomy surgery and initiatives supporting global women's and minorities' health. The intent of this blog is to give those suffering in silence and in shame a voice that creates greater awareness and acceptance. She owns her chronic illnesses and disabilities and her goal is for you to as well!