Own Your Crohn's

Own Your Crohn's

A Blog to Empower Patients with Chronic Illness

**Reposted from OstomyConnection: https://ostomyconnection.com/news-and-culture/women-ostomates-honored-for-public-advocacy-efforts All of these exceptional women have won awards this year for their public advocacy efforts. Winner, winner! Inspirational role models we look up to. OC EDITORS OCT 10, 2018 Ostomy awareness involves advocacy, and to be effective in advocating for change we need influencers. Advocacy can be standing up and speaking out for […]

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On the eve of World Ostomy Day, I write this blog post in hopes of debunking many of the myths surrounding living with an ostomy. So here goes nothing… I always get super excited when friends and family muster up the courage to ask about my ostomy. It makes me feel so connected to them […]

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In a world that’s still struggling with the concept of life-saving ostomy surgery, India comes chock full of psychosocial taboos. In addition to the challenge of costly medical supplies, ostomies are widely viewed as unacceptable in this country and can even become barriers to pursuing careers and relationships. Filmmaker Anisha Vijayan recognized the need to educate […]

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**Column originally published in IBD News Today on September 20th, 2018: http://ibdnewstoday.com/2018/09/20/ibd-complication-sepsis-awareness/** It’s Sepsis Awareness Month, so I’m discussing what sepsis is and how it is often a complication of inflammatory bowel disease (IBD) and colorectal surgery. According to the World Health Organization (WHO), “sepsis arises when the body’s response to an infection injures its own tissues and organs, […]

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Throwback to the summer of 2006 at La Caverna in New York City, just a few months after my IBD diagnosis when I was 22 (you can literally see how pale and anemic I was). My buddy, Sunil, and I were always the ultimate dance partners wil’in out on the dance floor. Some really fun […]

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The Value of Support Groups when Living with Crohn’s Disease In a world where medical professionals have only a few minutes to go over a whole slew of symptoms, medication interactions, and surgical complications, it is impossible to cover the psychosocial aspects of one’s condition(s). These aspects include methods of coping with the emotional roller […]

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This past weekend marked 3 years since my series of surgeries at the Mayo Clinic in Minnesota. That trial was my greatest test to date. 3 surgeries back to back to clean out remnants of j-pouch, rectum and anal sphincter that left behind a wound the size of a small football. From daunting saltwater whirlpools, […]

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Being Brown and Coming Out of the IBD Closet: The Chronic Illness Experience [All photos courtesy of Tina Aswani Omprakash]   Just as soon as he landed from India, a good friend called me, half laughing: “Tina, I know exactly what it feels like to be you now! I’ve had diarrhea for the last three […]

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We all know the feeling of waking up to our legs cramping, and our voices barely squeezing out a faint peep as an intense lightheadedness sets in. These symptoms, among others, are classic indications of dehydration. And with summer now in full swing, it is high time we talk about the importance of hydration. So, […]

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           Today, Independence Day 2018, marks 10 years since my colon and rectum were removed in emergency. I was 24 years old, 85 lbs, being fed by a PICC line and the hair on my head was greying from malnutrition. I was dying from IBD my doctors warned me as they […]

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