Clinical Trials,  Crohn's,  Emerging Therapies,  living with IBD,  patient rights,  Ulcerative Colitis

IBD & Tea: What Patients Want to Know When It Comes to a Clinical Trial

Often, patients who live with Inflammatory Bowel Disease (IBD) do not respond to conventional drugs and are offered to participate in clinical trials for new treatments. When this happens, patients tend to have doubts and may feel scared because they do not have enough information about the process. This was the case for Tina Aswani Omprakash, IBD patient, patient thought leader, and award-winning author of the blog ´Own Your Crohn’s´, when she was offered to participate in a clinical trial.

Aswani Omprakash talked about her experience from having participated in two clinical trials during the online debate ´IBD & Tea,´ streamed live on our Twitter account on the 25th of November. She was accompanied by IBD medical expert Prof. Fernando Gomollón from the Clinical Hospital of Zaragoza, Spain and Prof. Alan Boyd, our project’s resident regulatory expert and director/founder of Boyd Consultants. The event, moderated by Kira Keini, from the science communication company and our communication partner, Scienseed, has been watched more than 700 times so far.

To read more, please visit: https://newdeal-project.eu/2020/12/ibd-tea-what-patients-want-to-know-when-it-comes-to-a-clinical-trial/

Tina is a health advocate for patients living with chronic illnesses and disabilities. Via her writing, social media and public speaking engagements, she spearheads public health causes, including those creating awareness for inflammatory bowel disease (Crohn's & Colitis), life-saving ostomy surgery and initiatives supporting global women's and minorities' health. The intent of this blog is to give those suffering in silence and in shame a voice that creates greater awareness and acceptance. She owns her chronic illnesses and disabilities and her goal is for you to as well!