For Tina, a Sjögren’s disease diagnosis brought long-awaited answers and sparked her journey into patient advocacy By Tina Aswani-Omprakash **Originally published by Novartis on...
By Tina Aswani-Omprakash As IBD warriors, it’s always nerve-wracking to travel with our conditions and/or an ostomy. For me, it’s been 7 years of me traveling all over the U.S. and Europe for patient advocacy work. And even though I’ve spoken many times virtually for...
Originally published by The Insighters® on October 18th, 2024: https://theinsighters.com/blog-posts/13 As I reflect on my HealtheVoices experience this year on the conference’s 10-year anniversary, I see a bastion of hope, of love, and of support for years to come....
A person I admire once said, “Once you stop fighting your illness, you will allow acceptance to emerge.” I guess I had never looked at illness that way before. Society tells us to fight illness to our last breath, but is it really a fighting attitude we should...
Last spring, just when I had thought I had turned a corner and had many of my conditions better controlled, I developed a ton of crippling pelvic pain. Within a couple of days, I started bleeding a lot, which made no sense because I had been on hormones for years...