Fistulizing Disease – Page 2 – Own Your Crohn's

advocacy, Colorectal Surgery, coping with flares, Crohn's, Diet, Emerging Therapies, Fistulizing Disease, living with IBD, Mental Health, Minority Health, Ostomy, stigma, Ulcerative Colitis, Women's Health

The Impact of IBD on Racial & Ethnic Minorities

April 24, 2019

On Tuesday, April 23rd, 2019, in honor of National Minority Health Month, Dr. Aline Charabaty (Director of Johns Hopkins IBD Center), Brooke Abbott (Patient Advocate, Crazy Creole Mommy Chronicles) & I (Patient Advocate, Own Your Crohn’s) had the honor of speaking with the Crohn’s & Colitis Foundation on the very important topic of “The Impact of IBD on Racial & Ethnic Minorities.” Please view the Crohn’s & Colitis Foundation’s video below: If you are a man or woman of color living with inflammatory bowel disease (IBD), please know you are NOT alone. We are all here to support you through your journey. More is and will be done to tend…

Read More

Tina Aswani Omprakash

Related Posts

My Feature During Crohn’s & Colitis Awareness Week
November 8, 2018

Owning My Crohn’s Mindfully This New Year
January 5, 2019

My Nomination for the WEGO Health Patient Advocacy Awards
July 21, 2019
acceptance, advocacy, awareness, Colorectal Surgery, coping with flares, Crohn's, Fistulizing Disease, living with IBD, Mental Health, Ostomy, Pelvic pain, Self-image, stigma, Ulcerative Colitis, Women's Health

My Health Became My Top Priority

April 16, 2019

**Originally published in Health Central on April 10th, 2019** CHAPTER 1 Crashing Down When I first began having inflammatory bowel disease (IBD) symptoms in 2005, I had just graduated college, started my first job, and I gotten out of a difficult relationship. And then, to top it off, I was diagnosed with ulcerative colitis (UC). I was at the top of my game, and everything just came crashing down in the blink of an eye. I had also just started my master’s in financial management, but, after the diagnosis, I couldn’t complete it. With a new career on Wall Street, I took a break from my graduate education to focus on…

Read More

Tina Aswani Omprakash

Related Posts

~OYC TRAILBLAZERS~ Spotlight on Malaysian Crohnie & Ostomate Saravanan
April 22, 2020

Real Talk about Ostomies
October 5, 2018

Indian Ostomate Podcast Show: Episode 1 with Tina Aswani Omprakash
July 23, 2020
advocacy, awareness, Colorectal Surgery, Crohn's, Fistulizing Disease, living with IBD, Minority Health, Ostomy, stigma, Ulcerative Colitis, Women's Health

About IBD Podcast #40 – Tina Aswani Omprakash’s Story: What Are People Going to Think?

April 10, 2019

Listen to About IBD’s Podcast #40: What Are People Going to Think? Shared via Amber Tresca’s podcast and blog, About IBD People who live with Crohn’s disease and ulcerative colitis experience stigma because of their inflammatory bowel disease (IBD). The taboo topic of bowel disease can permeate all aspects of a person’s life, especially when there are cultural influences also at play. Tina Aswani Omprakash, who lives with Crohn’s disease and a permanent ileostomy, shares her story of personal empowerment and how she is working to help other people with IBD live their lives with confidence. Tina describes how IBD has profoundly affected her family as well as why…

Read More

Tina Aswani Omprakash

Related Posts

My Feature During Crohn’s & Colitis Awareness Week
November 8, 2018

HealtheVoices 10-Year Anniversary (A Reminder of Why We Advocate)
October 19, 2024

My Pelvic Pain Story
October 26, 2018
acceptance, advocacy, awareness, Body Positivity, Crohn's, Fistulizing Disease, living with IBD, Mental Health, Ostomy, Self-image, stigma, Ulcerative Colitis

Lilly Singh’s ‘Choli Ke Peeche Kya Hai?’: My Anthem for Body Positivity

April 1, 2019

I still remember when the racy Bollywood song, “Choli Ke Peeche Kya Hai?” (Hindi: What’s Behind the Saree Blouse?), teased South Asian household television sets and AM/FM radios (yes, those used to be a thing). I was barely 10 years old and even though I couldn’t get enough of the song’s hypnotic beat, I felt tingling shame every time I heard its lyrics. So when Lilly Singh (a/k/a iiSuperwomanii), Punjabi-Canadian LGBTQ YouTube star and soon-to-be late-night TV show host, released her rap remake of “Choli Ke Peeche Kya Hai?” last week, I nearly fell off my chair. She didn’t just remake a Bollywood classic; she recreated a spectacle made for…

Read More

Tina Aswani Omprakash

Related Posts

Step in Our Shoes: A Discussion on Being an Ally to the Black Community
June 20, 2020

TINA ASWANI OMPRAKASH | 2018 NYC ADULT HONORED HERO
April 20, 2018

Real Talk about Ostomies
October 5, 2018
advocacy, awareness, colorectal cancer, Colorectal Surgery, Crohn's, Fistulizing Disease, living with IBD, Mental Health, Ostomy, stigma, Ulcerative Colitis

The Top 10 IBD Blogs to Follow in 2019

March 15, 2019

Discussing bowel movements is undoubtedly a taboo subject for many people, which has helped a stigma form around Inflammatory Bowel Disease (IBD). For people living with IBD, most commonly in the form of Crohn’s Disease or Ulcerative Colitis, ‘embarrassment’, ‘shame’, and ‘isolation’ are regularly used words to describe the emotional strain that accompanies the physical symptoms of their condition. These bloggers, each excelling in particular areas, write openly and honestly about the realities of life with IBD. In doing so, they are helping create a community that offers support, raise awareness that helps tackle the stigma, and provide practical tips for various walks of life. Top IBD Blogs for Real…

Read More

Tina Aswani Omprakash

Related Posts

Coping with IBD & Stress & Anxiety Around COVID-19
April 1, 2020

Tips for Telehealth and Managing Your IBD Care During the COVID-19 Pandemic
April 18, 2020

A Valentine’s Day Special: Dating & Relationships with an Ostomy
February 25, 2020
advocacy, Crohn's, Fistulizing Disease, living with IBD, Mental Health, Ostomy, stigma, Ulcerative Colitis

My Perianal Disease Feature at Crohn’s & Colitis Congress 2019

March 2, 2019

As many of you may have seen on my social media accounts this last month, Crohn’s & Colitis Congress is a premier conference that discusses all the latest breakthroughs in inflammatory bowel disease. I had the honor of taking part in one of the breakout sessions called Management of Complicated IBD: Perianal Disease. During this panel discussion, I shared my experiences with perianal fistulizing Crohn’s Disease and the psychosocial toll it wreaked on my entire being as a woman, as a professional and as a wife. As terrifying as sharing my horrific experience with perianal disease was, it was absolutely validating and felt like a huge weight off my shoulders.…

Read More

Tina Aswani Omprakash

Related Posts

My Feature for Clinical Trial Awareness with Parexel
June 1, 2019

HealtheVoices 10-Year Anniversary (A Reminder of Why We Advocate)
October 19, 2024

~OYC Trailblazers~ Mollie’s Story: Living la Vida Latina with Ulcerative Colitis & an Ostomy
September 27, 2019
advocacy, awareness, Crohn's, Diet, Emerging Therapies, Fistulizing Disease, living with IBD, Mental Health, Nutrition, Ostomy, Ulcerative Colitis

5 Hot Topics Presented at Crohn’s & Colitis Congress 2019

February 27, 2019

I had the honor of attending the 2019 Crohn’s & Colitis Congress in Las Vegas, NV as a patient advocate and speaker on the Perianal Fistulizing Crohn’s Disease panel. From diet and nutrition to mental health and pregnancy in IBD, here are the most salient topics presented at the conference this year for us patients: https://www.oshihealth.com/crohns-congress-2019/ Originally published by Oshi Health, Inc., on February 26th, 2019. Written by Tina Aswani Omprakash Medically reviewed by Matthew Hamilton, MD Please feel free to leave comments and feedback. I would love to hear your thoughts as always.

Read More

Tina Aswani Omprakash

Related Posts

The Impact of IBD on Racial & Ethnic Minorities
April 24, 2019

As a Chronically-Ill Brown Woman, Here’s Why I Share My Survival Story
May 16, 2019

~OYC Trailblazers~ Michelle’s Story on the Intersection of Crohn’s & an LGBTQIA+ Identity
June 22, 2020
advocacy, awareness, colorectal cancer, Colorectal Surgery, coping with flares, Crohn's, Fistulizing Disease, living with IBD, Mindfulness, Ostomy, Pelvic pain

My Feature in Everyday Health as #EverydayWoman

February 22, 2019

From Everyday Health’s Instagram: “Meet Tina Aswani Omprakash — the #IBD warrior and chronic illness advocate behind @ownyourcrohns. Tina was diagnosed with #Crohns disease 13 years ago and has since undergone over 20 surgeries, including a permanent #ostomy, four near-death experiences, and countless IBD-related manifestations and diagnoses. Tina is our #EverydayWoman today and everyday because despite her hardships with Crohn’s disease, she is passionate about leading a full and happy life and inspires others to do the same. Tina is an active leader in the Crohn’s & Colitis Foundation and often writes on her blog about living with an ostomy and other IBD-related issues. Her mantra is to celebrate life,…

Read More

Tina Aswani Omprakash

Related Posts

Indian Ostomate Podcast Show: Episode 1 with Tina Aswani Omprakash
July 23, 2020

As a Chronically-Ill Brown Woman, Here’s Why I Share My Survival Story
May 16, 2019

How a clinical trial helped this Crohn’s advocate finally reach remission
November 24, 2019
colorectal cancer, Colorectal Surgery, Crohn's, Fistulizing Disease, Gratitude, living with IBD, Mindfulness, Ostomy, Pelvic pain, stigma, Traveling with IBD, Ulcerative Colitis, Valentine's Day

7 IBD-Inspired Gift Ideas for Valentine’s Day

February 14, 2019

By Tina Aswani Omprakash February 13, 2019 One woman living with Crohn’s shares thoughtful Valentine’s gift ideas for the IBD warrior in your life. Valentine’s Day can be an anxiety-inducing holiday for many people. Especially for those of us living with inflammatory bowel disease (IBD). If we’re single, our minds might run wild about when we might meet that special someone. And if we’re in a relationship, we might worry about experiencing symptoms during a romantic moment. But it’s important to remember that Valentine’s Day isn’t just a day for us to fret over romance. It’s a day for us to celebrate all kinds of love: love for significant others, family, and…

Read More

Tina Aswani Omprakash

Related Posts

Real Talk about Ostomies
October 5, 2018

My Feature in Everyday Health as #EverydayWoman
February 22, 2019

IBD Awareness Week Line-Up: Diversity, Mental Health & More!
December 1, 2018
acceptance, advocacy, awareness, Colorectal Surgery, coping with flares, Crohn's, Fistulizing Disease, living with IBD, Mindfulness, Ostomy, patient rights, Pelvic pain, stigma, Ulcerative Colitis

Real Talk About Fistulae

January 19, 2019

As I sit here today with a very heavy heart typing out this blog post, I’m not sure if the excruciatingly painful nodule I felt earlier this week is just another health scare or yet another horrifying abscess from a fistula. I hold back tears as I wonder what my next steps are and what I can do to keep spiraling anxiety in check. Now many of you might be wondering what I’m even referring to–abscess? Fistula? What the heck are those and why am I such a mess over them? Well, get ready for some real talk about the most harrowing experience I’ve faced as a Crohn’s patient. According…

Read More

Tina Aswani Omprakash

Related Posts

All of these exceptional women have won awards this year for their public advocacy efforts
October 16, 2018

Metamorphosis
August 13, 2018

“I Had an Ostomy—and It Changed My Life”
December 11, 2019