Empowering the Chronically Ill & Disabled to Lead Fuller Lives
MC Capital T Reppin’ from the BK Walk!
Thanks to the Crohn’s & Colitis Foundation for the opportunity to serve my fellow IBDers by sharing my experiences as well as introducing past and present Honored Heroes at the Brooklyn Take Steps Walk. Hats off to all of you for being brave enough to share how miserable these diseases are and how you are working to transcend #IBD.
And a special thank you to all the doctors/surgeons and Lyfebulb for coming out to support us patients in our struggle!
Even though I look well in the above photo, after the walk, I quickly deteriorated. I was dehydrated, had trouble breathing and had a partial bowel obstruction. Luckily, the Foundation was on top of their game and had EMS on site to help me out.
And thanks to my dear friends (Melissa, Anne, Smruti, Vanisha, Ramzi and Aparna), I was able to recover. The obstruction passed several hours later with proper hydration and I dodged a hospital admission by the skin of my teeth. Phew! Since then, my GI doctor, surgeon and I have been working on setting up weekly IV hydration appointments at the hospital for the duration of the summer.
.
.
Even though this wasn’t exactly a walk in the park for me, experiences like these always remind me how fragile life is but also how amazing life can be. It feels wonderful to be emceeing and giving back to a community that’s given me so much but sickness is sickness. It rears its ugly head unexpectedly and we have to be ready to roll with the punches. That’s life with chronic illness in a nutshell and why I’m thankful every single day to be alive.
.
.
***Folks, always remember to ask for help as soon as you start feeling symptomatic. On hot and humid summer days, it is important to hydrate with electrolytes especially if you have a j-pouch or ostomy.***
By Tina Aswani-Omprakash, MPH Looking back 20 years ago... When I first graduated college and started working, I had no idea what my life was going to look like. I was full of excitement but I did have a fear in the back of my mind that I may already have inflammatory...
For Tina, a Sjögren's disease diagnosis brought long-awaited answers and sparked her journey into patient advocacy By Tina Aswani-Omprakash **Originally published by Novartis on https://www.novartis.com/us-en/stories/living-with-sjogrens-disease-one-womans-story. For...
By Tina Aswani-Omprakash As IBD warriors, it’s always nerve-wracking to travel with our conditions and/or an ostomy. For me, it’s been 7 years of me traveling all over the U.S. and Europe for patient advocacy work. And even though I’ve spoken many times virtually for...
By Tina Aswani-Omprakash & Natalie Hayden **This article has also been published on Natalie's blog: Lights, Camera, Crohn's ** As two bloggers and patient thought leaders in the IBD community, we were thrilled and honored to attend and speak at the Advances...
Did you know that approximately 25% of people living with inflammatory bowel disease (IBD) report significant symptoms of post-traumatic stress (PTS)? This PTS is directly related to disease experiences and related hospitalizations and is referred to as...
By Tina Aswani-Omprakash As IBD warriors, it’s always nerve-wracking to travel with our conditions and/or an ostomy. For me, it’s been 7 years of me traveling all over the U.S. and Europe for patient advocacy work. And even though I’ve spoken many times virtually for...
Did you know that approximately 25% of people living with inflammatory bowel disease (IBD) report significant symptoms of post-traumatic stress (PTS)? This PTS is directly related to disease experiences and related hospitalizations and is referred to as...
SAIA is honoured to announce that Tina Aswani-Omprakash, MPH, is now our full-time Chief Executive Officer 🎉🎉 Written by Madhura Balasubramaniam, Sharan Khela, Dr. Neilanjan Nandi & SAIA’s Board of Directors Tina is a patient advocate and thought leader par...
Are you getting ready to start an advanced therapy (for example, a biologic or small molecule medication) for the first time for your Crohn’s disease? Or perhaps this is round 2, 3, or 4 when it comes to trying advanced therapies to better manage your Crohn’s? Whether...
A person I admire once said, “Once you stop fighting your illness, you will allow acceptance to emerge.” I guess I had never looked at illness that way before. Society tells us to fight illness to our last breath, but is it really a fighting attitude we should...