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  • acceptance,  advocacy,  awareness,  coping with flares,  Crohn's,  living with IBD,  Ostomy,  patient rights,  Ulcerative Colitis

    Allowing Acceptance In

    November 21, 2018

    Thanksgiving season is upon us, dearests! As we prepare to celebrate life, love and laughter with our families and friends, it may be tough to avoid the elephant in the room: our chronic illnesses and disabilities. As hard as this may be, we can get through the holidays together by advocating for better quality of life and allowing acceptance of our conditions in! Our bodies may not be in perfect condition but let’s be thankful today and always for the moments of health, peace and joy that shine their way into our lives. ‘Tis the season to allow acceptance to pervade our lives to cultivate more love and better self-care!…

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    Tina Aswani Omprakash

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    July 23, 2020

    My Feature in Suffering the Silence’s Photo Series Campaign

    October 6, 2019

    A Valentine’s Day Special: Dating & Relationships with an Ostomy

    February 25, 2020
  • acceptance,  awareness,  coping with flares,  Crohn's,  living with IBD,  Ostomy,  Ulcerative Colitis

    Throwback to La Caverna 2006!

    August 30, 2018

    Throwback to the summer of 2006 at La Caverna in New York City, just a few months after my IBD diagnosis when I was 22 (you can literally see how pale and anemic I was). My buddy, Sunil, and I were always the ultimate dance partners wil’in out on the dance floor. Some really fun times that I’m glad I had the chance to enjoy back then. Fast forward 12 years along with countless medications and surgeries, here Sunil and I are again at La Caverna. This time with our amazing husbands recreating dance moves from our college days. As friends for many years, we have come a long way…

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    Tina Aswani Omprakash

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    Crohn’s & Colitis Awareness Week: Minorities, Mental Health & IBD

    December 9, 2018

    How a clinical trial helped this Crohn’s advocate finally reach remission

    November 24, 2019

    Accepting My Crohn’s Disease to Finally Become Me

    January 15, 2024
  • acceptance,  advocacy,  awareness,  Colorectal Surgery,  coping with flare,  Crohn's,  living with IBD,  Ostomy,  patient rights,  stigma,  Ulcerative Colitis

    The Value of Support Groups

    August 26, 2018

    In a world where medical professionals have only a few minutes to go over a whole slew of symptoms, medication interactions, and surgical complications, it is impossible to cover the psychosocial aspects of one’s condition(s). These aspects include methods of coping with the emotional roller coaster of living with inflammatory bowel disease (IBD).This is where support groups come into the picture. They fill that gap between doctor-patient interactions and provide real-time support and understanding to patients caught in the rigmarole of hospital visits, health insurance, and invasive testing. But more than this, the true value of support groups lies in empowering patients by fostering lifelong friendships through a deep understanding of…

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    Tina Aswani Omprakash

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    February 25, 2020

    ~OYC TRAILBLAZERS~ Spotlight on Malaysian Crohnie & Ostomate Saravanan

    April 22, 2020

    Love Knows No Disability

    July 2, 2019
  • acceptance,  awareness,  Colorectal Surgery,  coping with flare,  Crohn's,  living with IBD,  Ostomy,  stigma,  Ulcerative Colitis

    Metamorphosis

    August 13, 2018

    This past weekend marked 3 years since my series of surgeries at the Mayo Clinic in Minnesota. That trial was my greatest test to date. 3 surgeries back to back to clean out remnants of j-pouch, rectum and anal sphincter that left behind a wound the size of a small football. From daunting saltwater whirlpools, Jackson-Pratt drains, Hydrogen Peroxide flushes into my pelvis, a wound VAC and procedures under sedation every other day to clean out the wound. I was on 6 different painkillers and I was barely hanging on for life. In the months prior, I had drains galore, one from my back down my leg with a bag…

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    Tina Aswani Omprakash

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    April 22, 2020

    12 News to Your Health IBD Segment

    June 23, 2018

    World IBD Day Panel Discussion: Experiences of Minority IBD Patients & Caregivers

    May 23, 2020
  • coping with flares,  Crohn's,  Dehydration,  hydration,  living with IBD,  Ostomy,  Ulcerative Colitis

    The Hydration Challenge

    July 22, 2018

    We all know the feeling of waking up to our legs cramping, and our voices barely squeezing out a faint peep as an intense lightheadedness sets in. These symptoms, among others, are classic indications of dehydration. And with summer now in full swing, it is high time we talk about the importance of hydration.   So, why does dehydration happen and why is it so important to stay hydrated as an IBD patient? According to the Mayo Clinic, “dehydration occurs when you use or lose more fluid than you take in, and your body doesn’t have enough water and other fluids to carry out its normal functions.” Dehydration comes into…

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    Tina Aswani Omprakash

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    MC Capital T Reppin’ from the BK Walk!

    June 25, 2018

    ~OYC Trailblazers~ Anisha Zumba-ing Her Way into 2021!

    January 28, 2021

    Throwback to La Caverna 2006!

    August 30, 2018
  • acceptance,  coping with flares,  Crohn's,  living with IBD,  Ostomy,  Ulcerative Colitis

    The Waiting Game

    June 30, 2018

    Does nail-biting anxiety wash over you as you await results after a colonoscopy, MRI, or CT scan? Or restlessness while waiting for your latest round of biologics to start kicking in? Yeah, me too. I sit here today twiddling my thumbs endlessly as I await my ileoscopy and upper endoscopy biopsies from last week. This form of anxiety is all part of the waiting game. We patients live in constant agony while test results are pending, especially when a definitive diagnosis depends on those results. We worry as we take dose after dose of the latest round of immunosuppressants, earnestly hoping that this medication will be “it” — remission, finally. These feelings…

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    Tina Aswani Omprakash

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Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

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