Clinical Trials – Own Your Crohn's

Clinical Trials, Crohn's, Digital Healthcare Innovations, Emerging Therapies, living with IBD, Ulcerative Colitis, Wireless Drug Delivery

Incredible Innovations: A Brand New Wireless IBD Medication Delivery Solution

February 18, 2021

Sponsored by Veloce Corporation – SmartTab. All thoughts & opinions are my own. As a Crohn’s patient for the last 15 years, I’ve done my fair share of taking oral medications, receiving infusions and giving myself subcutaneous injections. So last summer, when I came across a digital health company called SmartTab, I was fascinated to learn about the wireless drug delivery solutions they are working on to change the way we take and absorb medications. After having done a lot of research and seeing the buzz at Crohn’s & Colitis Congress ’21 on SmartTab’s poster session, I thought it’s now high time to share this technology with the IBD patient…

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Tina Aswani Omprakash

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IBD & Tea: What Patients Want to Know When It Comes to a Clinical Trial

January 12, 2021

Often, patients who live with Inflammatory Bowel Disease (IBD) do not respond to conventional drugs and are offered to participate in clinical trials for new treatments. When this happens, patients tend to have doubts and may feel scared because they do not have enough information about the process. This was the case for Tina Aswani Omprakash, IBD patient, patient thought leader, and award-winning author of the blog ´Own Your Crohn’s´, when she was offered to participate in a clinical trial. Aswani Omprakash talked about her experience from having participated in two clinical trials during the online debate ´IBD & Tea,´ streamed live on our Twitter account on the 25th of November. She was accompanied by IBD medical expert…

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Tina Aswani Omprakash

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What I Learned From Joining a Clinical Trial for Crohn’s

June 13, 2020

By Tina Aswani Omprakash, Medically reviewed by Jenny Blair, MD Originally published on the Oshi Health website on April 6th, 2020: http://www.oshihealth.com/joining-clinical-trial/ My journey with Crohn’s disease has been an arduous one, laden with difficult decisions, including whether to take strong medications and when to have life-altering surgeries. At one point, Crohn’s derailed my career, my prospects of finishing graduate school and my ability to pursue meaningful relationships. But I was scared to try any new medication, let alone partake in a clinical trial. I was young and didn’t want to be burdened by a strict drug regimen or potential side effects. After I had more than 20 corrective surgeries…

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Tina Aswani Omprakash

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How a clinical trial helped this Crohn’s advocate finally reach remission

November 24, 2019

Originally published on November 22, 2019 on Antidote’s website Like many people living with Crohn’s disease, Tina Aswani Omprakash had trouble finding a treatment that would send her symptoms into remission. After trying many of the common Crohn’s treatments on the market, she still wasn’t getting a response. She also had developed fistulas: abnormal connections between organs in the digestive tract, typically between one part of the intestines and another. That’s when her doctor suggested she join a clinical trial… To read more of this story, please visit Antidote’s website: https://www.antidote.me/blog/how-a-clinical-trial-helped-this-crohns-advocate-finally-reach-remission As always, I welcome all your thoughts, comments and feedback! Love hearing from you all! ~~LOVE,…

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Tina Aswani Omprakash

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Clinical Trials: The Next Frontier for Diverse Populations of IBD Patients

July 31, 2019

According to U.S. Census expert and demographer, William H. Frey, approximately half the U.S. population will be non-Caucasian come 2045.[i] Of the total U.S. population, less than ten percent participate in clinical trials. And the number of racial and ethnic minorities partaking is an even smaller number, approximately five to fifteen percent of those who participate in clinical trials.[ii] As a woman of color living with Crohn’s Disease, I advocate for various marginalized communities (racial and ethnic minorities, LGBTQ+, etc.) suffering from chronic illnesses and disabilities. To me, the above data on clinical trials isn’t just an important set of numbers. These statistics are crucial for our future and become…

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Tina Aswani Omprakash

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In the Name of Science & Research

June 25, 2019

Traveling home from Mayo was beyond excruciating– horrible abdominal cramping and nausea/vomiting as I could barely walk. After all the testing I had had (4 testing procedures, an ER visit, multiple appts all in 5 days) and my Stelara trough levels coming back as borderline, it was no surprise that my Crohn’s Disease had flared. I was in a frenzy and knew I had to act fast. Within an hour of landing, my local GI and I came up with a plan to admit me at my local hospital. She asked me to consider enrolling in the POWER clinical research study in which she would reinduce me with a megadose…

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Tina Aswani Omprakash

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My Feature for Clinical Trial Awareness with Parexel

June 1, 2019

Honored to represent the clinical trial community within the Crohn’s Disease space for Parexel! Clinical trials are an important way for new medications to be tested and approved for use to provide quality of life, hope and happiness to those who suffer from chronic illnesses. Please take a moment to read my clinical trial story below and share: For every share of my clinical trial story, Parexel will donate funds to raise awareness for the importance of clinical research! #parexelwithheart So, own your Crohn’s, own your chronic illness, and spread love, light and hope to your community by considering clinical trials in your care. Originally published via Parexel on 5/28/2019:…

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Tina Aswani Omprakash

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