living with IBD – Page 4 – Own Your Crohn's

Clinical Trials, Crohn's, Digital Healthcare Innovations, Emerging Therapies, living with IBD, Ulcerative Colitis, Wireless Drug Delivery

Incredible Innovations: A Brand New Wireless IBD Medication Delivery Solution

February 18, 2021

Sponsored by Veloce Corporation – SmartTab. All thoughts & opinions are my own. As a Crohn’s patient for the last 15 years, I’ve done my fair share of taking oral medications, receiving infusions and giving myself subcutaneous injections. So last summer, when I came across a digital health company called SmartTab, I was fascinated to learn about the wireless drug delivery solutions they are working on to change the way we take and absorb medications. After having done a lot of research and seeing the buzz at Crohn’s & Colitis Congress ’21 on SmartTab’s poster session, I thought it’s now high time to share this technology with the IBD patient…

Read More

Tina Aswani Omprakash

Related Posts

Research Highlights from Digestive Disease Week 2022 for the IBD Community
June 8, 2022

IBD & Tea: What Patients Want to Know When It Comes to a Clinical Trial
January 12, 2021

How a clinical trial helped this Crohn’s advocate finally reach remission
November 24, 2019
acceptance, advocacy, awareness, coping with flares, Crohn's, diversity, living with IBD, Mental Health, Minority Health, stigma, Ulcerative Colitis, Women's Health

~OYC Trailblazers~ Anisha Zumba-ing Her Way into 2021!

January 28, 2021

This blog post has been done in collaboration with Girls With Guts Community Connection. By Anisha Gangotra My name is Anisha, I’m 37 years old and I live in Buckinghamshire in the United Kingdom. I’ve lived with ulcerative colitis since 2008, from the age of 24. I experienced my first colitis symptoms following a two-week holiday abroad. My stomach hadn’t felt quite right but I’d also had my period when I was on holiday so I assumed that it was a mixture of jet lag, my body adjusting to a different environment and my menstrual cycle. I’ve always had a sensitive stomach so I didn’t think much of it. When…

Read More

Tina Aswani Omprakash

Related Posts

My 9/11 Story: Paying Kindness Forward
September 11, 2019

World PTSD Day 2019: The Faceless Woman
June 27, 2019

My Ostomy, My Lifesaver
October 3, 2019
Crohn's, Healthcare Disparities, living with IBD, Mental Health, Minority Health, Ulcerative Colitis

Patients’ Journey Through Inflammatory Bowel Disease (IBD): A Qualitative Study

January 24, 2021

Tina Aswani Omprakash, Norelle Reilly, Jan Bhagwakar, Jeanette Carrell, Kristina Woodburn, Abby Breyer, Frances Close, Gabriel Wong, PATIENTS’ JOURNEY THROUGH INFLAMMATORY BOWEL DISEASE (IBD): A QUALITATIVE STUDY, Inflammatory Bowel Diseases, Volume 27, Issue Supplement_1, January 2021, Pages S53–S54, https://doi.org/10.1093/ibd/izaa347.127 **Abstract originally published in the Crohn’s & Colitis Foundation’s journal Inflammatory Bowel Diseases on January 21st, 2021 and presented at Crohn’s & Colitis Congress. Research study sponsored by Genentech & led by patient advocate Tina Aswani Omprakash of Icahn School of Medicine at Mount Sinai** I’m proud to announce the first patient advocate led study in the IBD space! Please view the above downloadable poster and link to the abstract for the results…

Read More

Tina Aswani Omprakash

Related Posts

MC Capital T Reppin’ from the BK Walk!
June 25, 2018

Key Takeaways from IBD Insider 2022: Patient Updates from the Crohn’s & Colitis Congress®
February 16, 2022

J-Pouch Failure – Tina’s Story
June 15, 2019
Clinical Trials, Crohn's, Emerging Therapies, living with IBD, patient rights, Ulcerative Colitis

IBD & Tea: What Patients Want to Know When It Comes to a Clinical Trial

January 12, 2021

Often, patients who live with Inflammatory Bowel Disease (IBD) do not respond to conventional drugs and are offered to participate in clinical trials for new treatments. When this happens, patients tend to have doubts and may feel scared because they do not have enough information about the process. This was the case for Tina Aswani Omprakash, IBD patient, patient thought leader, and award-winning author of the blog ´Own Your Crohn’s´, when she was offered to participate in a clinical trial. Aswani Omprakash talked about her experience from having participated in two clinical trials during the online debate ´IBD & Tea,´ streamed live on our Twitter account on the 25th of November. She was accompanied by IBD medical expert…

Read More

Tina Aswani Omprakash

Related Posts

Research Highlights from Digestive Disease Week 2022 for the IBD Community
June 8, 2022

What I Learned From Joining a Clinical Trial for Crohn’s
June 13, 2020

A Gutsy Feeling: Advocating for the Best Care Possible as IBD Patients
September 18, 2021
Colorectal Surgery, coping with flares, Crohn's, J-Pouch, Kock Pouch, living with IBD, Ostomy, Ulcerative Colitis, Women's Health

~OYC Trailblazers~ Mara Living Her Best Life with a Kock Pouch in Germany

December 7, 2020

My name is Mara and I am from a small state in Germany called Bremen. I was diagnosed with inflammatory bowel disease in 2016 when I was 21. Shortly after my diagnosis, I celebrated my 22nd birthday. I am pursuing my Ph.D. in Marine Microbiology working to learn more about unknown microorganisms found on the seafloor. One week after handing in my Bachelor’s thesis, I became severely ill with sudden and bloody diarrhea. I could not leave the toilet at all. A few days after having these initial symptoms, I was admitted to the hospital. The verdict was clear: I was diagnosed with ulcerative colitis. I thought this would be…

Read More

Tina Aswani Omprakash

Related Posts

FitWitMD’s Live Discussion on Perianal Fistulizing Crohn’s Disease
August 7, 2020

OstomyConnection SPOTLIGHT: Dr. Harikesh Buch works to shatter stigma and improve post-surgery care for ostomates in India.
January 24, 2019

All of these exceptional women have won awards this year for their public advocacy efforts
October 16, 2018
Colorectal Surgery, Crohn's, Diet, living with IBD, Nutrition, Ostomy, Ostomy Awareness Day, Ulcerative Colitis

IFFGD #DDHChat: Nutrition for the Ileostomy – The Dietitian & Patient Perspectives

October 18, 2020

The Diet & Digestive Health (#DDHChat) Twitter chat series with the International Foundation for Gastrointestinal Disorders (IFFGD), co-host Tina Aswani Omprakash and lead host dietitian Neha D. Shah, MPH, RD, CNSC, CHES. We are excited to help to educate patients, caregivers, and others about Nutrition for the Ileostomy: The Dietitian and Patient Perspective. Recap originally published by IFFGD on October 6th, 2020: https://www.iffgd.org/blog/october-2020-ddhchat-recap.html IFFGD – introductory tweets and remarks: The views and experiences shared by our participant are their own and do not reflect the official positions of IFFGD. Each patient is different. Always consult with your health care provider or a registered dietitian (RD) on a diet treatment plan…

Read More

Tina Aswani Omprakash

Related Posts

~OYC Trailblazers~ Mollie’s Story: Living la Vida Latina with Ulcerative Colitis & an Ostomy
September 27, 2019

No More Secrets: An enlightening film that reveals the stigma of having an ostomy in India
September 24, 2018

When Diagnoses Accumulate – My Endometriosis Journey
August 28, 2023
acceptance, advocacy, Black Lives Matter, Caregiving, coping with flares, Crohn's, health equity, Healthcare Disparities, living with IBD, Minority Health, Ulcerative Colitis

~ OYC Trailblazers ~ Amy & Terrell: Crohn-ically Ever After

September 23, 2020

My name is Amy Btiebet Washington, I’m 34 years old and live in Ohio. I was diagnosed with Crohn’s disease when I was 26 (in 2012). Initially, I thought I had a terrible flu, but after a few days of symptoms, I was rushed to the hospital with a 106-degree fever. I was immediately treated for sepsis, which led to 5 days in the ICU. After multiple tests, I was diagnosed with Crohn’s disease. The sepsis was a result of a severe infection caused by Crohn’s disease. At the time of my diagnosis, I knew very little about the disease and didn’t know anyone who lived with Crohn’s or ulcerative…

Read More

Tina Aswani Omprakash

Related Posts

Coping with IBD & Stress & Anxiety Around COVID-19
April 1, 2020

OYC Trailblazers: Celebrating Melissa’s J-Pouch-versary
February 25, 2019

When Diagnoses Accumulate: My Gastroparesis Story
August 29, 2019
advocacy, Crohn's, diversity, Gastroparesis, health equity, Healthcare Disparities, Healthcare Marketing, living with IBD, Patient Voice, Ulcerative Colitis, Women's Health

MM&M Transform Talks: Prioritizing the Patient Voice

September 20, 2020

I recently had the opportunity to work with the MM&M Transform conference on a panel discussion on Prioritizing the Patient Voice in anticipation of their conference on September 29th-30th. A panel of 3 of us patient advocates (Tonya Cherie Hegamin, Type 1 Diabetes; Teresa Johnson, Multiple Sclerosis & Heart Disease; and me, Crohn’s Disease & Gastroparesis) discussed why it’s so important to engage patients in healthcare discussions, from digital health to biotechnology and pharmaceuticals. At the forefront of our conversation was a topic near and dear to all 3 of us: diversity, inclusion and health equity as well as medical accessibility for patients of color like ourselves. Check out our…

Read More

Tina Aswani Omprakash

Related Posts

No More Secrets: An enlightening film that reveals the stigma of having an ostomy in India
September 24, 2018

My Feature for Clinical Trial Awareness with Parexel
June 1, 2019

HealtheVoices 10-Year Anniversary (A Reminder of Why We Advocate)
October 19, 2024
Coronavirus, COVID-19, Crohn's, immunocompromised, living with IBD, Ulcerative Colitis

COVID-19 & IBD: GI Perspectives on Fall 2020 & Beyond

September 16, 2020

Given all the chatter about COVID-19 this upcoming fall season, I thought it best to inform ourselves as patients as to what to expect. Because rates of COVID infection are so variable across the U.S., I spoke to several leading gastroenterologists around the country to get their take on what they’re recommending to their IBD patients about vaccinations, medications, surgery in addition to attending social gatherings and returning to school and/or work. The 5 IBD specialists I spoke to are located in various parts of the country and include Dr. Jordan Axelrad (Adult GI at NYU Langone Medical Center), Dr. Sabina Ali (Pediatric GI at UCSF Benioff Children’s Hospital), Dr.…

Read More

Tina Aswani Omprakash

Related Posts

Receiving the COVID-19 Vaccine as a Patient with Several Autoimmune Conditions
March 22, 2021

Tips for Telehealth and Managing Your IBD Care During the COVID-19 Pandemic
April 18, 2020

How to Vacation (or Staycation) Safely During the Pandemic
August 14, 2020
Ableism, advocacy, Coronavirus, COVID-19, Crohn's, disability accommodations, Disability Justice, Gastroparesis, invisible illness, living with IBD, Mental Health, Ulcerative Colitis

University Accommodations in the COVID-19 Era

September 7, 2020

The last few weeks have felt daunting and overwhelming as I’ve been battling intense floods of illness and considering whether or not to resume graduate school part-time again this fall. You see, even contemplating a graduate program was a huge undertaking for me a couple years ago when I was accepted into a Certificate of Public Health program. As I slowly mustered up the courage to transfer into the Master’s in Public Health program, I felt scared yet hopeful all at once. And in between it all, I’ve had to take a trimester off to tend to my health. But all that aside, now we are in the midst of a…

Read More

Tina Aswani Omprakash

Related Posts

Love Knows No Disability
July 2, 2019

I am NOT a Burden: A South Asian Perspective
July 1, 2020

What IBD Awareness Means to a South Asian American Woman with Crohn’s
June 17, 2020