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Own Your Crohn's

Empowering the Chronically Ill & Disabled to Lead Fuller Lives

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  • autoimmune disease,  chronic illness,  Crohn's,  Emerging Therapies,  living with IBD,  Ulcerative Colitis

    What I’ve Learned About Starting an Advanced Therapy for Crohn’s Disease

    March 2, 2024

    Are you getting ready to start an advanced therapy (for example, a biologic or small molecule medication) for the first time for your Crohn’s disease? Or perhaps this is round 2, 3, or 4 when it comes to trying advanced therapies to better manage your Crohn’s? Whether it’s your first rodeo or not, it’s important to know all the ins and outs so you can make appropriate decisions for your care in conjunction with your gastroenterologist. I have been there, and this is what I’ve learned about navigating my care and feeling empowered when getting ready to start a new therapy. Read more on the HealthGrades website: https://www.healthgrades.com/right-care/crohns-disease/what-ive-learned-about-starting-an-advanced-therapy-for-crohns-disease Originally Published on…

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    Tina Aswani Omprakash

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    What the IBD Community Needs to Know About Getting a COVID-19 Booster

    December 11, 2021

    When Diagnoses Accumulate: My Sjögren’s Story

    April 13, 2022

    Navigating Mental Health in Crohn’s Disease 

    December 5, 2024
  • Clinical Trials,  Crohn's,  Emerging Therapies,  living with IBD,  medical trauma,  Mental Health,  PTSD,  Ulcerative Colitis

    Research Highlights from Digestive Disease Week 2022 for the IBD Community

    June 8, 2022

    Originally Published by the Crohn’s & Colitis Foundation on their IBDVisible Blog on June 8th, 2022 By: Madhura Balasubramaniam & Tina Aswani-Omprakash After two years of virtual programming due to COVID-19, Digestive Disease Week® (DDW) 2022 came back with a bang in San Diego, CA last month. There was a lot of research presented about various gastrointestinal and liver conditions and it was exhilarating to see and hear about all the latest developments in the inflammatory bowel disease (IBD) space. From emerging therapies to better understanding of psychosocial aspects of IBD in addition to the role of antibiotics in IBD as well as growing up with pets and the development of IBD,…

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    Tina Aswani Omprakash

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    What I Learned From Joining a Clinical Trial for Crohn’s

    June 13, 2020

    IBD & Tea: What Patients Want to Know When It Comes to a Clinical Trial

    January 12, 2021

    In the Name of Science & Research

    June 25, 2019
  • Clinical Trials,  Crohn's,  Digital Healthcare Innovations,  Emerging Therapies,  living with IBD,  Ulcerative Colitis,  Wireless Drug Delivery

    Incredible Innovations: A Brand New Wireless IBD Medication Delivery Solution

    February 18, 2021

    Sponsored by Veloce Corporation – SmartTab. All thoughts & opinions are my own. As a Crohn’s patient for the last 15 years, I’ve done my fair share of taking oral medications, receiving infusions and giving myself subcutaneous injections. So last summer, when I came across a digital health company called SmartTab, I was fascinated to learn about the wireless drug delivery solutions they are working on to change the way we take and absorb medications. After having done a lot of research and seeing the buzz at Crohn’s & Colitis Congress ’21 on SmartTab’s poster session, I thought it’s now high time to share this technology with the IBD patient…

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    Tina Aswani Omprakash

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    How a clinical trial helped this Crohn’s advocate finally reach remission

    November 24, 2019

    A Gutsy Feeling: Advocating for the Best Care Possible as IBD Patients

    September 18, 2021

    Research Highlights from Digestive Disease Week 2022 for the IBD Community

    June 8, 2022
  • Clinical Trials,  Crohn's,  Emerging Therapies,  living with IBD,  patient rights,  Ulcerative Colitis

    IBD & Tea: What Patients Want to Know When It Comes to a Clinical Trial

    January 12, 2021

    Often, patients who live with Inflammatory Bowel Disease (IBD) do not respond to conventional drugs and are offered to participate in clinical trials for new treatments. When this happens, patients tend to have doubts and may feel scared because they do not have enough information about the process. This was the case for Tina Aswani Omprakash, IBD patient, patient thought leader, and award-winning author of the blog ´Own Your Crohn’s´, when she was offered to participate in a clinical trial. Aswani Omprakash talked about her experience from having participated in two clinical trials during the online debate ´IBD & Tea,´ streamed live on our Twitter account on the 25th of November. She was accompanied by IBD medical expert…

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    Tina Aswani Omprakash

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    Incredible Innovations: A Brand New Wireless IBD Medication Delivery Solution

    February 18, 2021

    Research Highlights from Digestive Disease Week 2022 for the IBD Community

    June 8, 2022

    A Gutsy Feeling: Advocating for the Best Care Possible as IBD Patients

    September 18, 2021
  • Clinical Trials,  Crohn's,  Emerging Therapies,  living with IBD,  Ulcerative Colitis

    What I Learned From Joining a Clinical Trial for Crohn’s

    June 13, 2020

    By Tina Aswani Omprakash, Medically reviewed by Jenny Blair, MD Originally published on the Oshi Health website on April 6th, 2020: http://www.oshihealth.com/joining-clinical-trial/ My journey with Crohn’s disease has been an arduous one, laden with difficult decisions, including whether to take strong medications and when to have life-altering surgeries. At one point, Crohn’s derailed my career, my prospects of finishing graduate school and my ability to pursue meaningful relationships. But I was scared to try any new medication, let alone partake in a clinical trial. I was young and didn’t want to be burdened by a strict drug regimen or potential side effects.  After I had more than 20 corrective surgeries…

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    Tina Aswani Omprakash

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    A Gutsy Feeling: Advocating for the Best Care Possible as IBD Patients

    September 18, 2021

    In the Name of Science & Research

    June 25, 2019

    Clinical Trials: The Next Frontier for Diverse Populations of IBD Patients

    July 31, 2019
  • advocacy,  awareness,  Clinical Trials,  Colorectal Surgery,  coping with flares,  Crohn's,  Disease Prevention,  Emerging Therapies,  living with IBD,  stigma,  Ulcerative Colitis

    In the Name of Science & Research

    June 25, 2019

    Traveling home from Mayo was beyond excruciating– horrible abdominal cramping and nausea/vomiting as I could barely walk. After all the testing I had had (4 testing procedures, an ER visit, multiple appts all in 5 days) and my Stelara trough levels coming back as borderline, it was no surprise that my Crohn’s Disease had flared. I was in a frenzy and knew I had to act fast.  Within an hour of landing, my local GI and I came up with a plan to admit me at my local hospital. She asked me to consider enrolling in the POWER clinical research study in which she would reinduce me with a megadose…

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    Tina Aswani Omprakash

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    Basmah’s Journey: The Cultural Impacts of Being an Egyptian Crohnie

    April 18, 2021

    An IBS Journey: Tina

    April 21, 2019

    Indian Ostomate Podcast Show: Episode 1 with Tina Aswani Omprakash

    July 23, 2020
  • advocacy,  awareness,  Colorectal Surgery,  Crohn's,  Emerging Therapies,  Fistulizing Disease,  living with IBD,  Ostomy,  Ulcerative Colitis,  Women's Health

    Fistulas: What You Need to Know About a Common Side Effect of Crohn’s

    May 17, 2019

    By Padma Nagappan Medically Reviewed by Kareem Sassi, MD Originally published by Everyday Health on May 14th, 2019: https://www.everydayhealth.com/crohns-disease/symptoms/fistulas-common-crohns-side-effect-you-should-aware/ Fistulas are an abnormal connection between two body parts. In Crohn’s patients they form as tunnels within the walls of the intestine and connect to other organs or tissue, causing pain and infection. After years of living in intense pain and going through several misdiagnoses, Tina Aswani Omprakash, found out she had Crohn’s disease. Her condition was so severe that she needed emergency proctocolectomy surgery (removal of the colon and rectum), and she was put on biologics. “I knew Crohn’s was an intense disease, but I did not realize what it takes to really, truly fight…

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    Tina Aswani Omprakash

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    ~OYC Trailblazers~ Michelle’s Story on the Intersection of Crohn’s & an LGBTQIA+ Identity

    June 22, 2020

    No More Secrets: An enlightening film that reveals the stigma of having an ostomy in India

    September 24, 2018

    My Feature in Suffering the Silence’s Photo Series Campaign

    October 6, 2019
  • advocacy,  Colorectal Surgery,  coping with flares,  Crohn's,  Diet,  Emerging Therapies,  Fistulizing Disease,  living with IBD,  Mental Health,  Minority Health,  Ostomy,  stigma,  Ulcerative Colitis,  Women's Health

    The Impact of IBD on Racial & Ethnic Minorities

    April 24, 2019

    On Tuesday, April 23rd, 2019, in honor of National Minority Health Month, Dr. Aline Charabaty (Director of Johns Hopkins IBD Center), Brooke Abbott (Patient Advocate, Crazy Creole Mommy Chronicles) & I (Patient Advocate, Own Your Crohn’s) had the honor of speaking with the Crohn’s & Colitis Foundation on the very important topic of “The Impact of IBD on Racial & Ethnic Minorities.” Please view the Crohn’s & Colitis Foundation’s video below: If you are a man or woman of color living with inflammatory bowel disease (IBD), please know you are NOT alone. We are all here to support you through your journey. More is and will be done to tend…

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    Tina Aswani Omprakash

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    Coping with IBD & Stress & Anxiety Around COVID-19

    April 1, 2020

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    January 15, 2024

    Edgar Flores opens up about surviving near-death and the challenges of living with an ostomy in Mexico

    November 4, 2018
  • advocacy,  awareness,  Crohn's,  Diet,  Emerging Therapies,  Fistulizing Disease,  living with IBD,  Mental Health,  Nutrition,  Ostomy,  Ulcerative Colitis

    5 Hot Topics Presented at Crohn’s & Colitis Congress 2019

    February 27, 2019

    I had the honor of attending the 2019 Crohn’s & Colitis Congress in Las Vegas, NV as a patient advocate and speaker on the Perianal Fistulizing Crohn’s Disease panel. From diet and nutrition to mental health and pregnancy in IBD, here are the most salient topics presented at the conference this year for us patients: https://www.oshihealth.com/crohns-congress-2019/ Originally published by Oshi Health, Inc., on February 26th, 2019. Written by Tina Aswani Omprakash Medically reviewed by Matthew Hamilton, MD  Please feel free to leave comments and feedback. I would love to hear your thoughts as always.

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    Tina Aswani Omprakash

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Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

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