Skip to content
Own Your Crohn's

Empowering the Chronically Ill & Disabled to Lead Fuller Lives

  • Home
  • Blog
  • About Me
  • Authorships
  • SAIA-IBDesis
  • Testimonials
  • Contact Me
  • Home
  • Blog
  • About Me
  • Authorships
  • SAIA-IBDesis
  • Testimonials
  • Contact Me
  • Clinical Trials,  Crohn's,  Emerging Therapies,  living with IBD,  medical trauma,  Mental Health,  PTSD,  Ulcerative Colitis

    Research Highlights from Digestive Disease Week 2022 for the IBD Community

    June 8, 2022

    Originally Published by the Crohn’s & Colitis Foundation on their IBDVisible Blog on June 8th, 2022 By: Madhura Balasubramaniam & Tina Aswani-Omprakash After two years of virtual programming due to COVID-19, Digestive Disease Week® (DDW) 2022 came back with a bang in San Diego, CA last month. There was a lot of research presented about various gastrointestinal and liver conditions and it was exhilarating to see and hear about all the latest developments in the inflammatory bowel disease (IBD) space. From emerging therapies to better understanding of psychosocial aspects of IBD in addition to the role of antibiotics in IBD as well as growing up with pets and the development of IBD,…

    Read More
    Tina Aswani Omprakash

    Related Posts

    What I Learned From Joining a Clinical Trial for Crohn’s

    June 13, 2020

    In the Name of Science & Research

    June 25, 2019

    IBD & Tea: What Patients Want to Know When It Comes to a Clinical Trial

    January 12, 2021
  • Clinical Trials,  Colorectal Surgery,  Crohn's,  Diet,  J-Pouch,  living with IBD,  Mental Health,  Nutrition,  Ulcerative Colitis

    Key Takeaways from IBD Insider 2022: Patient Updates from the Crohn’s & Colitis Congress®

    February 16, 2022

    Originally Published by the Crohn’s & Colitis Foundation on their IBDVisible Blog on February 14th, 2022 By: Tina Aswani Omprakash The third annual IBD Insider was, as always, a great culmination of the events from the 2022 Crohn’s & Colitis Congress®. As patients, we often have many questions about what goes on at these medical conferences and how to understand the research in bite-sized, digestible pieces (yes, pun intended). IBD Insider does just that by bringing to us the newest research updates in IBD for us to stay abreast of the latest and greatest, but also to enable us to make the best shared decisions with our physicians in our care. The…

    Read More
    Tina Aswani Omprakash

    Related Posts

    A Gutsy Feeling: Advocating for the Best Care Possible as IBD Patients

    September 18, 2021

    Incredible Innovations: A Brand New Wireless IBD Medication Delivery Solution

    February 18, 2021

    Clinical Trials: The Next Frontier for Diverse Populations of IBD Patients

    July 31, 2019
  • advocacy,  autoimmune disease,  Clinical Trials,  Colorectal Surgery,  coping with flares,  Crohn's,  living with IBD,  Ulcerative Colitis

    A Gutsy Feeling: Advocating for the Best Care Possible as IBD Patients

    September 18, 2021

    By Tina Aswani Omprakash **Supported by agutsyfeeling.org, a collaboration between Girls With Guts, Purdue University, College of Pharmacy, and the Academy for Continued Healthcare Learning** In today’s day and age, there are many treatment options for inflammatory bowel disease (IBD – ulcerative colitis and Crohn’s disease). But given all the new medications on the horizon, how do we as patients participate in shared decision making with our IBD specialists regarding which medication might be best for us? And how do we know when we have given the medication a fair enough shot and that it might be time to move on to the next treatment option? How do we know…

    Read More
    Tina Aswani Omprakash

    Related Posts

    Coping with IBD & Stress & Anxiety Around COVID-19

    April 1, 2020

    7 Tips for Traveling With IBD, From Someone Who Gets It

    July 1, 2022

    Real Talk about Ostomies

    October 5, 2018
  • Clinical Trials,  Crohn's,  Digital Healthcare Innovations,  Emerging Therapies,  living with IBD,  Ulcerative Colitis,  Wireless Drug Delivery

    Incredible Innovations: A Brand New Wireless IBD Medication Delivery Solution

    February 18, 2021

    Sponsored by Veloce Corporation – SmartTab. All thoughts & opinions are my own. As a Crohn’s patient for the last 15 years, I’ve done my fair share of taking oral medications, receiving infusions and giving myself subcutaneous injections. So last summer, when I came across a digital health company called SmartTab, I was fascinated to learn about the wireless drug delivery solutions they are working on to change the way we take and absorb medications. After having done a lot of research and seeing the buzz at Crohn’s & Colitis Congress ’21 on SmartTab’s poster session, I thought it’s now high time to share this technology with the IBD patient…

    Read More
    Tina Aswani Omprakash

    Related Posts

    What I Learned From Joining a Clinical Trial for Crohn’s

    June 13, 2020

    In the Name of Science & Research

    June 25, 2019

    A Gutsy Feeling: Advocating for the Best Care Possible as IBD Patients

    September 18, 2021
  • Clinical Trials,  Crohn's,  Emerging Therapies,  living with IBD,  patient rights,  Ulcerative Colitis

    IBD & Tea: What Patients Want to Know When It Comes to a Clinical Trial

    January 12, 2021

    Often, patients who live with Inflammatory Bowel Disease (IBD) do not respond to conventional drugs and are offered to participate in clinical trials for new treatments. When this happens, patients tend to have doubts and may feel scared because they do not have enough information about the process. This was the case for Tina Aswani Omprakash, IBD patient, patient thought leader, and award-winning author of the blog ´Own Your Crohn’s´, when she was offered to participate in a clinical trial. Aswani Omprakash talked about her experience from having participated in two clinical trials during the online debate ´IBD & Tea,´ streamed live on our Twitter account on the 25th of November. She was accompanied by IBD medical expert…

    Read More
    Tina Aswani Omprakash

    Related Posts

    A Gutsy Feeling: Advocating for the Best Care Possible as IBD Patients

    September 18, 2021

    My Feature for Clinical Trial Awareness with Parexel

    June 1, 2019

    Incredible Innovations: A Brand New Wireless IBD Medication Delivery Solution

    February 18, 2021
  • Clinical Trials,  Crohn's,  Emerging Therapies,  living with IBD,  Ulcerative Colitis

    What I Learned From Joining a Clinical Trial for Crohn’s

    June 13, 2020

    By Tina Aswani Omprakash, Medically reviewed by Jenny Blair, MD Originally published on the Oshi Health website on April 6th, 2020: http://www.oshihealth.com/joining-clinical-trial/ My journey with Crohn’s disease has been an arduous one, laden with difficult decisions, including whether to take strong medications and when to have life-altering surgeries. At one point, Crohn’s derailed my career, my prospects of finishing graduate school and my ability to pursue meaningful relationships. But I was scared to try any new medication, let alone partake in a clinical trial. I was young and didn’t want to be burdened by a strict drug regimen or potential side effects.  After I had more than 20 corrective surgeries…

    Read More
    Tina Aswani Omprakash

    Related Posts

    A Gutsy Feeling: Advocating for the Best Care Possible as IBD Patients

    September 18, 2021

    IBD & Tea: What Patients Want to Know When It Comes to a Clinical Trial

    January 12, 2021

    Research Highlights from Digestive Disease Week 2022 for the IBD Community

    June 8, 2022
  • acceptance,  advocacy,  awareness,  Clinical Trials,  Crohn's,  living with IBD,  Ostomy,  Ulcerative Colitis

    How a clinical trial helped this Crohn’s advocate finally reach remission

    November 24, 2019

    Originally published on November 22, 2019 on Antidote’s website Like many people living with Crohn’s disease, Tina Aswani Omprakash had trouble finding a treatment that would send her symptoms into remission.  After trying many of the common Crohn’s treatments on the market, she still wasn’t getting a response. She also had developed fistulas: abnormal connections between organs in the digestive tract, typically between one part of the intestines and another.  That’s when her doctor suggested she join a clinical trial…  To read more of this story, please visit Antidote’s website: https://www.antidote.me/blog/how-a-clinical-trial-helped-this-crohns-advocate-finally-reach-remission       As always, I welcome all your thoughts, comments and feedback! Love hearing from you all! ~~LOVE,…

    Read More
    Tina Aswani Omprakash

    Related Posts

    Lilly Singh’s ‘Choli Ke Peeche Kya Hai?’: My Anthem for Body Positivity

    April 1, 2019

    Ostomy Awareness Day: Empowering Ostomates to Live Fuller Lives

    November 22, 2019

    When Diagnoses Accumulate – My Endometriosis Journey

    August 28, 2023
  • advocacy,  awareness,  Clinical Trials,  Crohn's,  living with IBD,  Ulcerative Colitis

    Clinical Trials: The Next Frontier for Diverse Populations of IBD Patients

    July 31, 2019

    According to U.S. Census expert and demographer, William H. Frey, approximately half the U.S. population will be non-Caucasian come 2045.[i] Of the total U.S. population, less than ten percent participate in clinical trials. And the number of racial and ethnic minorities partaking is an even smaller number, approximately five to fifteen percent of those who participate in clinical trials.[ii] As a woman of color living with Crohn’s Disease, I advocate for various marginalized communities (racial and ethnic minorities, LGBTQ+, etc.) suffering from chronic illnesses and disabilities. To me, the above data on clinical trials isn’t just an important set of numbers. These statistics are crucial for our future and become…

    Read More
    Tina Aswani Omprakash

    Related Posts

    Weekend Long IBD Retreat Helped Me to Own My Crohn’s

    August 24, 2019

    When Diagnoses Accumulate: My Gastroparesis Story

    August 29, 2019

    ~OYC Trailblazers~ Mollie’s Story: Living la Vida Latina with Ulcerative Colitis & an Ostomy

    September 27, 2019
  • advocacy,  awareness,  Clinical Trials,  Colorectal Surgery,  coping with flares,  Crohn's,  Disease Prevention,  Emerging Therapies,  living with IBD,  stigma,  Ulcerative Colitis

    In the Name of Science & Research

    June 25, 2019

    Traveling home from Mayo was beyond excruciating– horrible abdominal cramping and nausea/vomiting as I could barely walk. After all the testing I had had (4 testing procedures, an ER visit, multiple appts all in 5 days) and my Stelara trough levels coming back as borderline, it was no surprise that my Crohn’s Disease had flared. I was in a frenzy and knew I had to act fast.  Within an hour of landing, my local GI and I came up with a plan to admit me at my local hospital. She asked me to consider enrolling in the POWER clinical research study in which she would reinduce me with a megadose…

    Read More
    Tina Aswani Omprakash

    Related Posts

    “I Had an Ostomy—and It Changed My Life”

    December 11, 2019

    6 Myths About IBD in Minority Patients, Busted

    December 20, 2018

    Edgar Flores opens up about surviving near-death and the challenges of living with an ostomy in Mexico

    November 4, 2018
  • advocacy,  awareness,  Clinical Trials,  living with IBD

    My Feature for Clinical Trial Awareness with Parexel

    June 1, 2019

    Honored to represent the clinical trial community within the Crohn’s Disease space for Parexel! Clinical trials are an important way for new medications to be tested and approved for use to provide quality of life, hope and happiness to those who suffer from chronic illnesses. Please take a moment to read my clinical trial story below and share: For every share of my clinical trial story, Parexel will donate funds to raise awareness for the importance of clinical research! #parexelwithheart So, own your Crohn’s, own your chronic illness, and spread love, light and hope to your community by considering clinical trials in your care. Originally published via Parexel on 5/28/2019:…

    Read More
    Tina Aswani Omprakash

    Related Posts

    FitWitMD’s Live Discussion on Perianal Fistulizing Crohn’s Disease

    August 7, 2020

    All of these exceptional women have won awards this year for their public advocacy efforts

    October 16, 2018

    Indian Ostomate Podcast Show: Episode 1 with Tina Aswani Omprakash

    July 23, 2020

Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

Sign Up for New Blog Posts!

Please follow & like us :)

Facebook
fb-share-icon
Twitter
Follow Me
Post on X
LinkedIn
Instagram

Top Posts & Pages

  • Key Takeaways from Crohn’s & Colitis Congress 2023
    Key Takeaways from Crohn’s & Colitis Congress 2023
  • ~OYC Trailblazers~ Mara Living Her Best Life with a Kock Pouch in Germany
    ~OYC Trailblazers~ Mara Living Her Best Life with a Kock Pouch in Germany
  • ~OYC Trailblazers~ Tanya's Pregnancy Journey Living with Crohn's Disease in India
    ~OYC Trailblazers~ Tanya's Pregnancy Journey Living with Crohn's Disease in India
  • When Diagnoses Accumulate: My Sjögren's Story
    When Diagnoses Accumulate: My Sjögren's Story
  • 7 Tips for Traveling With IBD, From Someone Who Gets It
    7 Tips for Traveling With IBD, From Someone Who Gets It

Clinical Trial Finder

Copyright ©2018-2024 Tina Aswani Omprakash. All Rights Reserved.
Savona Theme by Optima Themes