ulcerative colitis – Page 4 – Own Your Crohn's

Crohn's, Healthcare Disparities, living with IBD, Mental Health, Minority Health, Ulcerative Colitis

Patients’ Journey Through Inflammatory Bowel Disease (IBD): A Qualitative Study

January 24, 2021

Tina Aswani Omprakash, Norelle Reilly, Jan Bhagwakar, Jeanette Carrell, Kristina Woodburn, Abby Breyer, Frances Close, Gabriel Wong, PATIENTS’ JOURNEY THROUGH INFLAMMATORY BOWEL DISEASE (IBD): A QUALITATIVE STUDY, Inflammatory Bowel Diseases, Volume 27, Issue Supplement_1, January 2021, Pages S53–S54, https://doi.org/10.1093/ibd/izaa347.127 **Abstract originally published in the Crohn’s & Colitis Foundation’s journal Inflammatory Bowel Diseases on January 21st, 2021 and presented at Crohn’s & Colitis Congress. Research study sponsored by Genentech & led by patient advocate Tina Aswani Omprakash of Icahn School of Medicine at Mount Sinai** I’m proud to announce the first patient advocate led study in the IBD space! Please view the above downloadable poster and link to the abstract for the results…

Read More

Tina Aswani Omprakash

Related Posts

What Will People Think? ~A Short Documentary by Chealynn Feaster
December 27, 2019

~OYC Trailblazers~ Michelle’s Story on the Intersection of Crohn’s & an LGBTQIA+ Identity
June 22, 2020

This Love Takes Guts
October 11, 2021
Clinical Trials, Crohn's, Emerging Therapies, living with IBD, patient rights, Ulcerative Colitis

IBD & Tea: What Patients Want to Know When It Comes to a Clinical Trial

January 12, 2021

Often, patients who live with Inflammatory Bowel Disease (IBD) do not respond to conventional drugs and are offered to participate in clinical trials for new treatments. When this happens, patients tend to have doubts and may feel scared because they do not have enough information about the process. This was the case for Tina Aswani Omprakash, IBD patient, patient thought leader, and award-winning author of the blog ´Own Your Crohn’s´, when she was offered to participate in a clinical trial. Aswani Omprakash talked about her experience from having participated in two clinical trials during the online debate ´IBD & Tea,´ streamed live on our Twitter account on the 25th of November. She was accompanied by IBD medical expert…

Read More

Tina Aswani Omprakash

Related Posts

My Feature for Clinical Trial Awareness with Parexel
June 1, 2019

Key Takeaways from IBD Insider 2022: Patient Updates from the Crohn’s & Colitis Congress®
February 16, 2022

What I Learned From Joining a Clinical Trial for Crohn’s
June 13, 2020
Coronavirus, COVID-19, Crohn's, immunocompromised, J-Pouch, Minority Health, Ostomy, Pregnancy in IBD, Ulcerative Colitis, Vaccinations

Demystifying the COVID Vaccine for IBD Patients

January 10, 2021

By Tina Aswani Omprakash Originally published in Everyday Health on January 8th, 2021 We open the new year with hope after a dreary year filled with ups and downs from the COVID-19 pandemic. As a woman with Crohn’s disease, a type of inflammatory bowel disease (IBD), I have been practicing every precaution recommended by my doctor, from masking up to practicing social distancing and avoiding crowded, indoor spaces. While I’m used to being home a lot as a result of surgeries related to my disease and regular flare-ups, the pandemic was doubly hard for me because I have been in remission, and in good health to go out and about.…

Read More

Tina Aswani Omprakash

Related Posts

Immunocompromised in the Age of Coronavirus
May 1, 2020

Receiving the COVID-19 Vaccine as a Patient with Several Autoimmune Conditions
March 22, 2021

AIBD 2020: Hot Topics for IBD Patients
December 22, 2020
Colorectal Surgery, coping with flares, Crohn's, J-Pouch, Kock Pouch, living with IBD, Ostomy, Ulcerative Colitis, Women's Health

~OYC Trailblazers~ Mara Living Her Best Life with a Kock Pouch in Germany

December 7, 2020

My name is Mara and I am from a small state in Germany called Bremen. I was diagnosed with inflammatory bowel disease in 2016 when I was 21. Shortly after my diagnosis, I celebrated my 22nd birthday. I am pursuing my Ph.D. in Marine Microbiology working to learn more about unknown microorganisms found on the seafloor. One week after handing in my Bachelor’s thesis, I became severely ill with sudden and bloody diarrhea. I could not leave the toilet at all. A few days after having these initial symptoms, I was admitted to the hospital. The verdict was clear: I was diagnosed with ulcerative colitis. I thought this would be…

Read More

Tina Aswani Omprakash

Related Posts

Managing Ostomy Care in the Era of Covid-19
October 21, 2020

IBD Awareness Week Line-Up: Diversity, Mental Health & More!
December 1, 2018

Metamorphosis
August 13, 2018
chronic pain, Colorectal Surgery, coping with flares, Crohn's, fatigue, Pelvic pain, Ulcerative Colitis

Pain and Fatigue in IBD: Provider and Patient Perspectives

December 5, 2020

Raise your hand if you’ve dealt with chronic pain and fatigue living with IBD. Pain and fatigue are two common complaints amongst Crohn’s & ulcerative colitis patients whether disease is active or in remission. And oftentimes, it’s the least addressed or acknowledged. Many of us patients live with different types of chronic pain from abdominal pain and cramping related to disease flare-ups to post-surgical pain and pelvic pain. Some of us also tend to have pain from extraintestinal manifestations including severe joint pain and pain from dermatological manifestations (erythema nodosum, pyoderma gangrenosum, etc.). And fatigue appears to be a staple living with IBD where even if we have relief from…

Read More

Tina Aswani Omprakash

Related Posts

When Diagnoses Accumulate – My Endometriosis Journey
August 28, 2023
colorectal cancer, Colorectal Surgery, Coronavirus, COVID-19, Crohn's, immunocompromised, Ostomy, Ostomy Awareness Day, Ulcerative Colitis

Managing Ostomy Care in the Era of Covid-19

October 21, 2020

Many of us with chronic illnesses have struggled throughout this pandemic with accessing timely care. One issue I’ve faced is because of my gastroparesis and other functional gastrointestinal conditions (IBS, SIBO etc.) acting up, my weight has been fluctuating a lot these last several months. As a result, my stoma size has been changing every week or two. With that, I’ve suffered a lot of ostomy leaks but even more skin irritation. While I’ve worked with my ostomy nurse virtually the last couple months to get my skin issues under control, I keep thinking of my ostomate family online and how you all may be handling your ostomy care in…

Read More

Tina Aswani Omprakash

Related Posts

7 IBD-Inspired Gift Ideas for Valentine’s Day
February 14, 2019

OYC Trailblazers: An Ode to My Father & Fellow IBD Warrior
January 30, 2019

The Beauty of Ostomates Worldwide
October 17, 2019
Coronavirus, COVID-19, Crohn's, immunocompromised, living with IBD, Ulcerative Colitis

COVID-19 & IBD: GI Perspectives on Fall 2020 & Beyond

September 16, 2020

Given all the chatter about COVID-19 this upcoming fall season, I thought it best to inform ourselves as patients as to what to expect. Because rates of COVID infection are so variable across the U.S., I spoke to several leading gastroenterologists around the country to get their take on what they’re recommending to their IBD patients about vaccinations, medications, surgery in addition to attending social gatherings and returning to school and/or work. The 5 IBD specialists I spoke to are located in various parts of the country and include Dr. Jordan Axelrad (Adult GI at NYU Langone Medical Center), Dr. Sabina Ali (Pediatric GI at UCSF Benioff Children’s Hospital), Dr.…

Read More

Tina Aswani Omprakash

Related Posts

How to Vacation (or Staycation) Safely During the Pandemic
August 14, 2020

What the IBD Community Needs to Know About Getting a COVID-19 Booster
December 11, 2021

Gaurav’s Covid-19 Journey as a Crohn’s Patient in India
June 11, 2021
Ableism, advocacy, Coronavirus, COVID-19, Crohn's, disability accommodations, Disability Justice, Gastroparesis, invisible illness, living with IBD, Mental Health, Ulcerative Colitis

University Accommodations in the COVID-19 Era

September 7, 2020

The last few weeks have felt daunting and overwhelming as I’ve been battling intense floods of illness and considering whether or not to resume graduate school part-time again this fall. You see, even contemplating a graduate program was a huge undertaking for me a couple years ago when I was accepted into a Certificate of Public Health program. As I slowly mustered up the courage to transfer into the Master’s in Public Health program, I felt scared yet hopeful all at once. And in between it all, I’ve had to take a trimester off to tend to my health. But all that aside, now we are in the midst of a…

Read More

Tina Aswani Omprakash

Related Posts

What IBD Awareness Means to a South Asian American Woman with Crohn’s
June 17, 2020

Inspire’s #KeepUsAllSafe COVID-19 Campaign
April 12, 2020

The Other Side of Crohn’s: Caregiving
December 9, 2019
Uncategorized

Pelvic Floor Dysfunction in IBD ~ A Live Discussion with the Crohn’s & Colitis Foundation

August 24, 2020

Pelvic pain is far more common in inflammatory bowel disease than often discussed or addressed. In a recent live discussion with Dr. Tayyaba Ahmed (pelvic pain physiatrist at Pelvic Rehabilitation), Dr. Neilanjan Nandi (IBD specialist at Penn Medicine), Kara Mortifoglio, DPT (pelvic floor physical therapist at Solstice Physiotherapy) and me in conjunction with the Crohn’s & Colitis Foundation, we discuss the various ways in which pelvic pain manifests in IBD patients. Given that pelvic pain is often confused with IBD symptoms and flare-ups, we discuss symptoms and how to get help to alleviate this pain and achieve greater quality of life. Please check out the video below to learn more:…

Read More

Tina Aswani Omprakash

Related Posts

The Song That Makes Me Proud of My Scars
March 23, 2018

Welcome to “Own Your Crohn’s”
March 23, 2018

How I Combat Election-Related Anxiety as a Crohn’s Patient and Ostomate
April 4, 2018
advocacy, awareness, Black Lives Matter, coping with flares, Crohn's, Disability Justice, Healthcare Disparities, Minority Health, Ostomy, Ulcerative Colitis

Black Lives Matter in the IBD Community, Too

July 10, 2020

In recent weeks, months and years, we have witnessed far too many hate crimes toward our Black brothers and sisters. It is not unknown to us that many Black bodies have been tested upon without fair pain medications, expected to endure tremendous suffering in the name of science. Within the healthcare system, not only do Black folx face significant health disparities and delays to diagnosis, they also deal with uphill battles when it comes to accessing good insurance, care and treatment options. With this blog post, I aim to shed light on the stories of 8 lovely Black inflammatory bowel disease (IBD) patients while sharing the resources of 3 die-hard…

Read More

Tina Aswani Omprakash

Related Posts

~ OYC Trailblazers ~ Amy & Terrell: Crohn-ically Ever After
September 23, 2020

My Health Became My Top Priority
April 16, 2019

OstomyConnection SPOTLIGHT: Dr. Harikesh Buch works to shatter stigma and improve post-surgery care for ostomates in India.
January 24, 2019