ostomy – Page 2 – Own Your Crohn's

advocacy, autoimmune disease, Colorectal Surgery, Crohn's, Dating & Relationships, Gastroparesis, invisible illness, living with IBD, Minority Health, National Minority Health Month, Ostomy, Ulcerative Colitis, Women's Health

Bachatera with a Bag: Theodora Shattering Ostomy Stigma Through Dance

April 27, 2021

Elegance, beauty, confidence, and rhythm: these are some words used to describe a female Latin dancer. Chemistry, passion, sensuality: these often come to mind when describing or watching a Latin dance couple. Each genre of dance comes with its own culture. Dance shoes, music and certain beats accompany each genre and of course, that exists within bachata, a form of dance I love to practice. Nationally and internationally, people congregate to study, perform and/or socially dance the bachata together and there is absolutely nothing quite like it! Being a bachatera (a female bachata dancer), and 50% of a bachata dance partnership with my husband Marcos, I am fortunate to experience…

Read More

Tina Aswani Omprakash

Related Posts

OYC Trailblazers: What Healing Means to Natasha
March 26, 2019

Accepting My Crohn’s Disease to Finally Become Me
January 15, 2024

Colon Cancer & Its Devastating Impact on My Family
March 19, 2020
Cultural Stigma, endometriosis, Minority Health, Ostomy, Women's Health

~OYC Trailblazers~ Tanya’s Journey with an Ostomy & Endometriosis

March 25, 2021

My name is Tanya and I live with endometriosis and a permanent ileostomy. I’m of North African and Asian background from Mauritius. For years, I experienced uncomfortable bowel pains and no one could diagnose me properly. I struggled with retaining weight as all of my food would pass through me. It felt as though I was intolerant to all foods. I often found blood in my stools, and I felt permanently bloated. I eventually resorted to eating the same meals everyday to avoid upsetting my stomach. Work colleagues would notice and question why I had the same lunch everyday. Like many suffering from endometriosis, I was misdiagnosed with IBS and…

Read More

Tina Aswani Omprakash

Related Posts

Madhura’s Journey in India: Coping with Stigma around IBD & Feeding Tubes
May 16, 2021

Demi’s Journey: Coming Out with Ulcerative Colitis as a Filipino Woman
May 3, 2021

~OYC Trailblazers~ Tanya’s Pregnancy Journey Living with Crohn’s Disease in India
November 5, 2022
Colorectal Surgery, Crohn's, Egg-Freezing, fistula, IBD Parenthood Project, living with IBD, Minority Health, Motherhood, Ostomy, Pregnancy in IBD, Ulcerative Colitis, Women's Health

IBD Motherhood Unplugged: Womanhood Questioned by Crohn’s Disease

February 22, 2021

Motherhood is so much more than a word—it’s an expectation and an identity. It’s a right of passage many girls dream of when they think about their future and what their family will look like. But family planning, pregnancy, and motherhood are far from a given, especially for those with chronic illness. This week my post kicks off IBD Motherhood Unplugged, an ongoing series that will be shared on my dear friend and fellow Crohn’s advocate, Natalie Hayden’s blog: Lights, Camera, Crohn’s. My post has been in the works for 2+ years sitting in my drafts folder with me hoping that I’ll eventually be able to speak up for women…

Read More

Tina Aswani Omprakash

Related Posts

About IBD Podcast #40 – Tina Aswani Omprakash’s Story: What Are People Going to Think?
April 10, 2019

My Pelvic Pain Story
October 26, 2018

The Top 10 IBD Blogs to Follow in 2019
March 15, 2019
Coronavirus, COVID-19, Crohn's, immunocompromised, J-Pouch, Minority Health, Ostomy, Pregnancy in IBD, Ulcerative Colitis, Vaccinations

Demystifying the COVID Vaccine for IBD Patients

January 10, 2021

By Tina Aswani Omprakash Originally published in Everyday Health on January 8th, 2021 We open the new year with hope after a dreary year filled with ups and downs from the COVID-19 pandemic. As a woman with Crohn’s disease, a type of inflammatory bowel disease (IBD), I have been practicing every precaution recommended by my doctor, from masking up to practicing social distancing and avoiding crowded, indoor spaces. While I’m used to being home a lot as a result of surgeries related to my disease and regular flare-ups, the pandemic was doubly hard for me because I have been in remission, and in good health to go out and about.…

Read More

Tina Aswani Omprakash

Related Posts

Immunocompromised in the Age of Coronavirus
May 1, 2020

AIBD 2020: Hot Topics for IBD Patients
December 22, 2020

South Asian IBD & COVID-19
January 26, 2021
Colorectal Surgery, coping with flares, Crohn's, J-Pouch, Kock Pouch, living with IBD, Ostomy, Ulcerative Colitis, Women's Health

~OYC Trailblazers~ Mara Living Her Best Life with a Kock Pouch in Germany

December 7, 2020

My name is Mara and I am from a small state in Germany called Bremen. I was diagnosed with inflammatory bowel disease in 2016 when I was 21. Shortly after my diagnosis, I celebrated my 22nd birthday. I am pursuing my Ph.D. in Marine Microbiology working to learn more about unknown microorganisms found on the seafloor. One week after handing in my Bachelor’s thesis, I became severely ill with sudden and bloody diarrhea. I could not leave the toilet at all. A few days after having these initial symptoms, I was admitted to the hospital. The verdict was clear: I was diagnosed with ulcerative colitis. I thought this would be…

Read More

Tina Aswani Omprakash

Related Posts

Sepsis Is a Severe, Life-threatening Complication for IBD Patients
September 22, 2018

Managing Ostomy Care in the Era of Covid-19
October 21, 2020

Inspire’s #KeepUsAllSafe COVID-19 Campaign
April 12, 2020
Body Positivity, cervical cancer, Dating & Relationships, diversity, Mental Health, Minority Health, Ostomy, Self-image, stigma, Women's Health

~OYC Trailblazers~ Jennylyn’s Ostomy Love Story in the Philippines

October 30, 2020

My name is Jennylyn Ajes and I’m 32 years old from Laguna, Phillippines. In 2018, I was diagnosed with stage 2b cervical cancer, which means I had a tumor that had grown beyond the cervix and uterus.[1] During this time, I had undergone chemotherapy, radiation therapy and brachytherapy. I had to do these therapies for 5 months total and none of it was easy. The brachytherapy required internal radiation therapy to get to the source of the cancer and try to wipe it out. I felt fine for the first 3 months after treatment but I really struggled with my confidence losing most of my hair and eyebrows due to…

Read More

Tina Aswani Omprakash

Related Posts

Weekend Long IBD Retreat Helped Me to Own My Crohn’s
August 24, 2019

~OYC TRAILBLAZERS~ Katie’s Story: Baby-Making Prospects & Egg-Freezing with a J-Pouch
September 4, 2019

“I Had an Ostomy—and It Changed My Life”
December 11, 2019
colorectal cancer, Colorectal Surgery, Coronavirus, COVID-19, Crohn's, immunocompromised, Ostomy, Ostomy Awareness Day, Ulcerative Colitis

Managing Ostomy Care in the Era of Covid-19

October 21, 2020

Many of us with chronic illnesses have struggled throughout this pandemic with accessing timely care. One issue I’ve faced is because of my gastroparesis and other functional gastrointestinal conditions (IBS, SIBO etc.) acting up, my weight has been fluctuating a lot these last several months. As a result, my stoma size has been changing every week or two. With that, I’ve suffered a lot of ostomy leaks but even more skin irritation. While I’ve worked with my ostomy nurse virtually the last couple months to get my skin issues under control, I keep thinking of my ostomate family online and how you all may be handling your ostomy care in…

Read More

Tina Aswani Omprakash

Related Posts

Colon Cancer & Its Devastating Impact on My Family
March 19, 2020

IBD Awareness Week Line-Up: Diversity, Mental Health & More!
December 1, 2018

The Top 10 IBD Blogs to Follow in 2019
March 15, 2019
Uncategorized

Pelvic Floor Dysfunction in IBD ~ A Live Discussion with the Crohn’s & Colitis Foundation

August 24, 2020

Pelvic pain is far more common in inflammatory bowel disease than often discussed or addressed. In a recent live discussion with Dr. Tayyaba Ahmed (pelvic pain physiatrist at Pelvic Rehabilitation), Dr. Neilanjan Nandi (IBD specialist at Penn Medicine), Kara Mortifoglio, DPT (pelvic floor physical therapist at Solstice Physiotherapy) and me in conjunction with the Crohn’s & Colitis Foundation, we discuss the various ways in which pelvic pain manifests in IBD patients. Given that pelvic pain is often confused with IBD symptoms and flare-ups, we discuss symptoms and how to get help to alleviate this pain and achieve greater quality of life. Please check out the video below to learn more:…

Read More

Tina Aswani Omprakash

Related Posts

The Song That Makes Me Proud of My Scars
March 23, 2018

How I Combat Election-Related Anxiety as a Crohn’s Patient and Ostomate
April 4, 2018

Welcome to “Own Your Crohn’s”
March 23, 2018
Ableism, acceptance, advocacy, awareness, Crohn's, Dating & Relationships, living with IBD, Ostomy, stigma

Indian Ostomate Podcast Show: Episode 1 with Tina Aswani Omprakash

July 23, 2020

I recently had the honor of being interviewed by the very kind, positive and uplifting Indian ostomate and advocate named Dinesh Kundnani. Dinesh is someone who I came across early in my own journey as an ostomy advocate and it’s amazing to witness how he’s transformed from new ostomate to a seasoned one. Dinesh now helps others in India especially by showing his ostomy and helping to destigmatize what is considered to be a very taboo medical device. Early on in our interview, Dinesh asked if I would do this podcast show in the Hindi language! I was dumbfounded in the moment but I quickly agreed as I realized how…

Read More

Tina Aswani Omprakash

Related Posts

What Will People Think? ~A Short Documentary by Chealynn Feaster
December 27, 2019

The Other Side of Crohn’s: Caregiving
December 9, 2019

University Accommodations in the COVID-19 Era
September 7, 2020
advocacy, awareness, Black Lives Matter, coping with flares, Crohn's, Disability Justice, Healthcare Disparities, Minority Health, Ostomy, Ulcerative Colitis

Black Lives Matter in the IBD Community, Too

July 10, 2020

In recent weeks, months and years, we have witnessed far too many hate crimes toward our Black brothers and sisters. It is not unknown to us that many Black bodies have been tested upon without fair pain medications, expected to endure tremendous suffering in the name of science. Within the healthcare system, not only do Black folx face significant health disparities and delays to diagnosis, they also deal with uphill battles when it comes to accessing good insurance, care and treatment options. With this blog post, I aim to shed light on the stories of 8 lovely Black inflammatory bowel disease (IBD) patients while sharing the resources of 3 die-hard…

Read More

Tina Aswani Omprakash

Related Posts

OYC Trailblazers: An Ode to My Father & Fellow IBD Warrior
January 30, 2019

Managing IBD in the Era of COVID-19
April 19, 2020

~OYC Trailblazers~ Anisha Zumba-ing Her Way into 2021!
January 28, 2021