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  • awareness,  coping with flares,  Crohn's,  Independence Day,  living with IBD,  Ostomy,  stigma,  Ulcerative Colitis

    My Very Own Independence Day

    July 4, 2018

               Today, Independence Day 2018, marks 10 years since my colon and rectum were removed in emergency. I was 24 years old, 85 lbs, being fed by a PICC line and the hair on my head was greying from malnutrition. I was dying from IBD my doctors warned me as they urged me to have surgery. I remember that day so clearly when my then boyfriend/now husband, Anand, along with my close friend, Radhika, drove me into the city to have emergency surgery. And when my surgeon came up to me in the emergency room, he expressed that I may be too far-gone, that he was…

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    Tina Aswani Omprakash

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    Sophia’s Chronic Illness Journey: Forced Switching to Biosimilars in Canada

    December 15, 2019

    Metamorphosis

    August 13, 2018

    Managing IBD in the Era of COVID-19

    April 19, 2020
  • acceptance,  coping with flares,  Crohn's,  living with IBD,  Ostomy,  Ulcerative Colitis

    The Waiting Game

    June 30, 2018

    Does nail-biting anxiety wash over you as you await results after a colonoscopy, MRI, or CT scan? Or restlessness while waiting for your latest round of biologics to start kicking in? Yeah, me too. I sit here today twiddling my thumbs endlessly as I await my ileoscopy and upper endoscopy biopsies from last week. This form of anxiety is all part of the waiting game. We patients live in constant agony while test results are pending, especially when a definitive diagnosis depends on those results. We worry as we take dose after dose of the latest round of immunosuppressants, earnestly hoping that this medication will be “it” — remission, finally. These feelings…

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    Tina Aswani Omprakash

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    My 9/11 Story: Paying Kindness Forward

    September 11, 2019

    How a clinical trial helped this Crohn’s advocate finally reach remission

    November 24, 2019

    I’m Chronically Ill & Depressed; So What?

    June 3, 2019
  • advocacy,  awareness,  coping with flares,  Crohn's,  living with IBD,  Ostomy,  Ulcerative Colitis

    MC Capital T Reppin’ from the BK Walk!

    June 25, 2018

    Thanks to the Crohn’s & Colitis Foundation for the opportunity to serve my fellow IBDers by sharing my experiences as well as introducing past and present Honored Heroes at the Brooklyn Take Steps Walk. Hats off to all of you for being brave enough to share how miserable these diseases are and how you are working to transcend #IBD. And a special thank you to all the doctors/surgeons and Lyfebulb for coming out to support us patients in our struggle! Even though I look well in the above photo, after the walk, I quickly deteriorated. I was dehydrated, had trouble breathing and had a partial bowel obstruction. Luckily, the Foundation…

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    Tina Aswani Omprakash

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    ~OYC Trailblazers~ Mollie’s Story: Living la Vida Latina with Ulcerative Colitis & an Ostomy

    September 27, 2019

    When Diagnoses Accumulate: My Gastroparesis Story

    August 29, 2019

    TINA ASWANI OMPRAKASH | 2018 NYC ADULT HONORED HERO

    April 20, 2018
  • acceptance,  advocacy,  awareness,  coping with flares,  Crohn's,  living with IBD,  Ostomy,  stigma,  Ulcerative Colitis

    12 News to Your Health IBD Segment

    June 23, 2018

    My TV debut with News 12 NJ! I discuss having inflammatory bowel disease (IBD) and ostomy surgery alongside Rosemarie Golombos, Executive Director of the NJ Chapter of the Crohn’s and Colitis Foundation. Thank you, Prashanthi Musapet, for the special segment and for helping to create awareness and acceptance for these awful diseases!

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    Tina Aswani Omprakash

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    Lilly Singh’s ‘Choli Ke Peeche Kya Hai?’: My Anthem for Body Positivity

    April 1, 2019

    ~OYC Trailblazers~ Mollie’s Story: Living la Vida Latina with Ulcerative Colitis & an Ostomy

    September 27, 2019

    An IBS Journey: Tina

    April 21, 2019
  • coping with flare,  Crohn's,  living with IBD,  patient rights,  stigma,  Ulcerative Colitis

    Coming Out of My IBD Closet as a Desi Woman

    June 16, 2018

    Every single year the Crohn’s and Colitis Foundation chooses a local Adult Honored Hero who shares his/her story and is honored at the Take Steps Walk in the spring. And every single year I attend the New York City walk, raise awareness and funds to help find treatments and someday a cure for these awful diseases. I bring my friends and my family together along with the Foundation’s Women’s Support Group so they can see that we patients don’t suffer alone, that many folks from all walks of life have been through hell and back at a young age. And every single year, one of my closest girlfriends has tears…

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    Tina Aswani Omprakash

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    Metamorphosis

    August 13, 2018

    All of these exceptional women have won awards this year for their public advocacy efforts

    October 16, 2018

    Can a Low FODMAP Diet Help IBD? 7 Things to Know

    February 20, 2019
  • advocacy,  Crohn's,  patient rights,  Ulcerative Colitis

    A Day on the Hill: Putting a Face on IBD Legislation

    May 26, 2018

    As I walked up the steps toward Capitol Hill, the realization finally struck: I was really doing this. I was really lobbying for better healthcare legislation for patients like myself. More than 100 volunteers and I had traveled from all over the country to Washington, D.C., as part of the Crohn’s & Colitis Foundation’s Day on the Hill program (DOH). And we all shared one mission: to bring our stories forward to advocate for improvements in legislation for all of us suffering from inflammatory bowel disease (IBD). (Courtesy of Tina Aswani Omprakash) This was the first time I had lobbied for anything, let alone for IBD. I was nervous and excited…

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    Tina Aswani Omprakash

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    Crohn’s & Colitis Awareness Week: Minorities, Mental Health & IBD

    December 9, 2018

    6 Myths About IBD in Minority Patients, Busted

    December 20, 2018

    Talking Gut Podcast Episode 20: Tina Aswani Omprakash on Resilience & GRITT

    May 30, 2020
Newer Posts 

Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

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