Today, Independence Day 2018, marks 10 years since my colon and rectum were removed in emergency. I was 24 years old, 85 lbs, being fed by a PICC line and the hair on my head was greying from malnutrition. I was dying from IBD my doctors warned me as they urged me to have surgery. I remember that day so clearly when my then boyfriend/now husband, Anand, along with my close friend, Radhika, drove me into the city to have emergency surgery. And when my surgeon came up to me in the emergency room, he expressed that I may be too far-gone, that he was…
- awareness, coping with flares, Crohn's, Independence Day, living with IBD, Ostomy, stigma, Ulcerative Colitis
-
The Waiting Game
Does nail-biting anxiety wash over you as you await results after a colonoscopy, MRI, or CT scan? Or restlessness while waiting for your latest round of biologics to start kicking in? Yeah, me too. I sit here today twiddling my thumbs endlessly as I await my ileoscopy and upper endoscopy biopsies from last week. This form of anxiety is all part of the waiting game. We patients live in constant agony while test results are pending, especially when a definitive diagnosis depends on those results. We worry as we take dose after dose of the latest round of immunosuppressants, earnestly hoping that this medication will be “it” — remission, finally. These feelings…
-
MC Capital T Reppin’ from the BK Walk!
Thanks to the Crohn’s & Colitis Foundation for the opportunity to serve my fellow IBDers by sharing my experiences as well as introducing past and present Honored Heroes at the Brooklyn Take Steps Walk. Hats off to all of you for being brave enough to share how miserable these diseases are and how you are working to transcend #IBD. And a special thank you to all the doctors/surgeons and Lyfebulb for coming out to support us patients in our struggle! Even though I look well in the above photo, after the walk, I quickly deteriorated. I was dehydrated, had trouble breathing and had a partial bowel obstruction. Luckily, the Foundation…
- acceptance, advocacy, awareness, coping with flares, Crohn's, living with IBD, Ostomy, stigma, Ulcerative Colitis
12 News to Your Health IBD Segment
My TV debut with News 12 NJ! I discuss having inflammatory bowel disease (IBD) and ostomy surgery alongside Rosemarie Golombos, Executive Director of the NJ Chapter of the Crohn’s and Colitis Foundation. Thank you, Prashanthi Musapet, for the special segment and for helping to create awareness and acceptance for these awful diseases!
-
Coming Out of My IBD Closet as a Desi Woman
Every single year the Crohn’s and Colitis Foundation chooses a local Adult Honored Hero who shares his/her story and is honored at the Take Steps Walk in the spring. And every single year I attend the New York City walk, raise awareness and funds to help find treatments and someday a cure for these awful diseases. I bring my friends and my family together along with the Foundation’s Women’s Support Group so they can see that we patients don’t suffer alone, that many folks from all walks of life have been through hell and back at a young age. And every single year, one of my closest girlfriends has tears…
-
A Day on the Hill: Putting a Face on IBD Legislation
As I walked up the steps toward Capitol Hill, the realization finally struck: I was really doing this. I was really lobbying for better healthcare legislation for patients like myself. More than 100 volunteers and I had traveled from all over the country to Washington, D.C., as part of the Crohn’s & Colitis Foundation’s Day on the Hill program (DOH). And we all shared one mission: to bring our stories forward to advocate for improvements in legislation for all of us suffering from inflammatory bowel disease (IBD). (Courtesy of Tina Aswani Omprakash) This was the first time I had lobbied for anything, let alone for IBD. I was nervous and excited…