Skip to content
Own Your Crohn's

Empowering the Chronically Ill & Disabled to Lead Fuller Lives

  • Home
  • Blog
  • About Me
  • Authorships
  • SAIA-IBDesis
  • Testimonials
  • Contact Me
  • Home
  • Blog
  • About Me
  • Authorships
  • SAIA-IBDesis
  • Testimonials
  • Contact Me
  • acceptance,  advocacy,  awareness,  colorectal cancer,  Colorectal Surgery,  coping with flare,  Crohn's,  living with IBD,  Ostomy,  stigma,  Ulcerative Colitis

    All of these exceptional women have won awards this year for their public advocacy efforts

    October 16, 2018

    Winner, winner! Inspirational role models we look up to. Ostomy awareness involves advocacy, and to be effective in advocating for change we need influencers. Advocacy can be standing up and speaking out for a cause, voicing concerns about misconceptions, or connecting with individuals and organizations who need support. All of these exceptional women have won awards this year for their public advocacy efforts. Amber Wallace won a WEGO Health Award. View image on Twitter WEGO Health@wegohealth Congratulations to 2018 #WEGOHealthAwards Best Kept Secret winner Amber Wallace! @ostomydiaries Check out all the finalist & winner videos from this year’s celebration here: https://wegoh.co/2OWMWdb  4:50 PM – Oct 8, 2018 4 See WEGO Health’s other…

    Read More
    Tina Aswani Omprakash

    Related Posts

    Disability Awareness in the Midst of Coronavirus

    March 12, 2020

    “I Had an Ostomy—and It Changed My Life”

    December 11, 2019

    Crohn’s & Colitis Awareness Week: Minorities, Mental Health & IBD

    December 9, 2018
  • acceptance,  advocacy,  awareness,  colorectal cancer,  Colorectal Surgery,  Crohn's,  living with IBD,  Ostomy,  patient rights,  stigma,  Ulcerative Colitis

    Real Talk about Ostomies

    October 5, 2018

    On the eve of World Ostomy Day, I write this blog post in hopes of debunking many of the myths surrounding living with an ostomy. So here goes nothing… I always get super excited when friends and family muster up the courage to ask about my ostomy. It makes me feel so connected to them and like I’m being recognized for all of me and not just the healthy-looking parts of me. I feel their concern, their love and most of all, their interest in how I live my life, chronic illness and disabilities abound. See, the thing is, living with an ostomy is often the proverbial elephant in the…

    Read More
    Tina Aswani Omprakash

    Related Posts

    Basmah’s Journey: The Cultural Impacts of Being an Egyptian Crohnie

    April 18, 2021

    Step in Our Shoes: A Discussion on Being an Ally to the Black Community

    June 20, 2020

    Lilly Singh’s ‘Choli Ke Peeche Kya Hai?’: My Anthem for Body Positivity

    April 1, 2019
  • acceptance,  advocacy,  awareness,  Colorectal Surgery,  coping with flare,  Crohn's,  living with IBD,  Ostomy,  patient rights,  stigma,  Ulcerative Colitis

    The Value of Support Groups

    August 26, 2018

    In a world where medical professionals have only a few minutes to go over a whole slew of symptoms, medication interactions, and surgical complications, it is impossible to cover the psychosocial aspects of one’s condition(s). These aspects include methods of coping with the emotional roller coaster of living with inflammatory bowel disease (IBD).This is where support groups come into the picture. They fill that gap between doctor-patient interactions and provide real-time support and understanding to patients caught in the rigmarole of hospital visits, health insurance, and invasive testing. But more than this, the true value of support groups lies in empowering patients by fostering lifelong friendships through a deep understanding of…

    Read More
    Tina Aswani Omprakash

    Related Posts

    Being Brown and Coming Out of the IBD Closet: The Chronic Illness Experience

    August 7, 2018

    Real Talk About Fistulae

    January 19, 2019

    My Pelvic Pain Story

    October 26, 2018
  • acceptance,  coping with flares,  Crohn's,  living with IBD,  Ostomy,  Ulcerative Colitis

    The Waiting Game

    June 30, 2018

    Does nail-biting anxiety wash over you as you await results after a colonoscopy, MRI, or CT scan? Or restlessness while waiting for your latest round of biologics to start kicking in? Yeah, me too. I sit here today twiddling my thumbs endlessly as I await my ileoscopy and upper endoscopy biopsies from last week. This form of anxiety is all part of the waiting game. We patients live in constant agony while test results are pending, especially when a definitive diagnosis depends on those results. We worry as we take dose after dose of the latest round of immunosuppressants, earnestly hoping that this medication will be “it” — remission, finally. These feelings…

    Read More
    Tina Aswani Omprakash

    Related Posts

    OYC Trailblazers: An Ode to My Father & Fellow IBD Warrior

    January 30, 2019

    ~OYC TRAILBLAZERS~ Spotlight on Malaysian Crohnie & Ostomate Saravanan

    April 22, 2020

    ~OYC Trailblazers~ Mollie’s Story: Living la Vida Latina with Ulcerative Colitis & an Ostomy

    September 27, 2019
  • advocacy,  awareness,  coping with flares,  Crohn's,  living with IBD,  Ostomy,  Ulcerative Colitis

    MC Capital T Reppin’ from the BK Walk!

    June 25, 2018

    Thanks to the Crohn’s & Colitis Foundation for the opportunity to serve my fellow IBDers by sharing my experiences as well as introducing past and present Honored Heroes at the Brooklyn Take Steps Walk. Hats off to all of you for being brave enough to share how miserable these diseases are and how you are working to transcend #IBD. And a special thank you to all the doctors/surgeons and Lyfebulb for coming out to support us patients in our struggle! Even though I look well in the above photo, after the walk, I quickly deteriorated. I was dehydrated, had trouble breathing and had a partial bowel obstruction. Luckily, the Foundation…

    Read More
    Tina Aswani Omprakash

    Related Posts

    Tips for Telehealth and Managing Your IBD Care During the COVID-19 Pandemic

    April 18, 2020

    How a clinical trial helped this Crohn’s advocate finally reach remission

    November 24, 2019

    J-Pouch Failure – Tina’s Story

    June 15, 2019
  • acceptance,  advocacy,  awareness,  coping with flares,  Crohn's,  living with IBD,  Ostomy,  stigma,  Ulcerative Colitis

    12 News to Your Health IBD Segment

    June 23, 2018

    My TV debut with News 12 NJ! I discuss having inflammatory bowel disease (IBD) and ostomy surgery alongside Rosemarie Golombos, Executive Director of the NJ Chapter of the Crohn’s and Colitis Foundation. Thank you, Prashanthi Musapet, for the special segment and for helping to create awareness and acceptance for these awful diseases!

    Read More
    Tina Aswani Omprakash

    Related Posts

    I’m Chronically Ill & Depressed; So What?

    June 3, 2019

    Real Talk about Ostomies

    October 5, 2018

    OstomyConnection SPOTLIGHT: Dr. Harikesh Buch works to shatter stigma and improve post-surgery care for ostomates in India.

    January 24, 2019
  • acceptance,  awareness,  caregivers,  colorectal cancer,  coping with flares,  Crohn's,  Father's Day,  living with IBD,  patient rights,  stigma,  Ulcerative Colitis

    Honoring My Late Father

    June 17, 2018

    (Daddy at his Doctoral Commencement at Columbia University in the ’70s.) This Father’s Day I honor all fathers. I especially honor my father who devoted his life to the sciences and to his family. He toiled endlessly until the very last minute working until he couldn’t anymore all to ensure his wife and daughters could get by without him. Not a day goes by that I don’t wonder how much better life would have been if he could have lived to see his girls all grown up. ? His battle with Crohn’s and later colorectal cancer may have taken his life but he has become my inspiration to fight incessantly for my…

    Read More
    Tina Aswani Omprakash

    Related Posts

    Real Talk About Fistulae

    January 19, 2019

    ~OYC TRAILBLAZERS~ Katie’s Story: Baby-Making Prospects & Egg-Freezing with a J-Pouch

    September 4, 2019

    My Health Became My Top Priority

    April 16, 2019
  • advocacy,  Crohn's,  patient rights,  Ulcerative Colitis

    A Day on the Hill: Putting a Face on IBD Legislation

    May 26, 2018

    As I walked up the steps toward Capitol Hill, the realization finally struck: I was really doing this. I was really lobbying for better healthcare legislation for patients like myself. More than 100 volunteers and I had traveled from all over the country to Washington, D.C., as part of the Crohn’s & Colitis Foundation’s Day on the Hill program (DOH). And we all shared one mission: to bring our stories forward to advocate for improvements in legislation for all of us suffering from inflammatory bowel disease (IBD). (Courtesy of Tina Aswani Omprakash) This was the first time I had lobbied for anything, let alone for IBD. I was nervous and excited…

    Read More
    Tina Aswani Omprakash

    Related Posts

    A Gutsy Feeling: Advocating for the Best Care Possible as IBD Patients

    September 18, 2021

    Managing IBD in the Era of COVID-19

    April 19, 2020

    Black Lives Matter in the IBD Community, Too

    July 10, 2020
Newer Posts 

Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

Sign Up for New Blog Posts!

Please follow & like us :)

Facebook
fb-share-icon
Twitter
Follow Me
Post on X
LinkedIn
Instagram

Top Posts & Pages

  • Key Takeaways from Crohn’s & Colitis Congress 2023
    Key Takeaways from Crohn’s & Colitis Congress 2023
  • ~OYC Trailblazers~ Mara Living Her Best Life with a Kock Pouch in Germany
    ~OYC Trailblazers~ Mara Living Her Best Life with a Kock Pouch in Germany
  • ~OYC Trailblazers~ Tanya's Pregnancy Journey Living with Crohn's Disease in India
    ~OYC Trailblazers~ Tanya's Pregnancy Journey Living with Crohn's Disease in India
  • When Diagnoses Accumulate: My Sjögren's Story
    When Diagnoses Accumulate: My Sjögren's Story
  • 7 Tips for Traveling With IBD, From Someone Who Gets It
    7 Tips for Traveling With IBD, From Someone Who Gets It

Clinical Trial Finder

Copyright ©2018-2024 Tina Aswani Omprakash. All Rights Reserved.
Savona Theme by Optima Themes