coping with flares – Page 2 – Own Your Crohn's

acceptance, awareness, Colorectal Surgery, coping with flare, Crohn's, living with IBD, Ostomy, stigma, Ulcerative Colitis

Metamorphosis

August 13, 2018

This past weekend marked 3 years since my series of surgeries at the Mayo Clinic in Minnesota. That trial was my greatest test to date. 3 surgeries back to back to clean out remnants of j-pouch, rectum and anal sphincter that left behind a wound the size of a small football. From daunting saltwater whirlpools, Jackson-Pratt drains, Hydrogen Peroxide flushes into my pelvis, a wound VAC and procedures under sedation every other day to clean out the wound. I was on 6 different painkillers and I was barely hanging on for life. In the months prior, I had drains galore, one from my back down my leg with a bag…

Read More

Tina Aswani Omprakash

Related Posts

Day on the Hill 2019: The Faces of IBD Legislation
May 11, 2019

Ostomy Awareness Day: Empowering Ostomates to Live Fuller Lives
November 22, 2019

Accepting My Crohn’s Disease to Finally Become Me
January 15, 2024
coping with flares, Crohn's, Dehydration, hydration, living with IBD, Ostomy, Ulcerative Colitis

The Hydration Challenge

July 22, 2018

We all know the feeling of waking up to our legs cramping, and our voices barely squeezing out a faint peep as an intense lightheadedness sets in. These symptoms, among others, are classic indications of dehydration. And with summer now in full swing, it is high time we talk about the importance of hydration. So, why does dehydration happen and why is it so important to stay hydrated as an IBD patient? According to the Mayo Clinic, “dehydration occurs when you use or lose more fluid than you take in, and your body doesn’t have enough water and other fluids to carry out its normal functions.” Dehydration comes into…

Read More

Tina Aswani Omprakash

Related Posts

Real Talk About Fistulae
January 19, 2019

In the Name of Science & Research
June 25, 2019

My Very Own Independence Day
July 4, 2018
awareness, coping with flares, Crohn's, Independence Day, living with IBD, Ostomy, stigma, Ulcerative Colitis

My Very Own Independence Day

July 4, 2018

Today, Independence Day 2018, marks 10 years since my colon and rectum were removed in emergency. I was 24 years old, 85 lbs, being fed by a PICC line and the hair on my head was greying from malnutrition. I was dying from IBD my doctors warned me as they urged me to have surgery. I remember that day so clearly when my then boyfriend/now husband, Anand, along with my close friend, Radhika, drove me into the city to have emergency surgery. And when my surgeon came up to me in the emergency room, he expressed that I may be too far-gone, that he was…

Read More

Tina Aswani Omprakash

Related Posts

A Valentine’s Day Special: Dating & Relationships with an Ostomy
February 25, 2020

Summer of Activism: IBD Advocates You Should Follow on Social Media
August 7, 2019

~OYC Trailblazers~ Michelle’s Story on the Intersection of Crohn’s & an LGBTQIA+ Identity
June 22, 2020
acceptance, coping with flares, Crohn's, living with IBD, Ostomy, Ulcerative Colitis

The Waiting Game

June 30, 2018

Does nail-biting anxiety wash over you as you await results after a colonoscopy, MRI, or CT scan? Or restlessness while waiting for your latest round of biologics to start kicking in? Yeah, me too. I sit here today twiddling my thumbs endlessly as I await my ileoscopy and upper endoscopy biopsies from last week. This form of anxiety is all part of the waiting game. We patients live in constant agony while test results are pending, especially when a definitive diagnosis depends on those results. We worry as we take dose after dose of the latest round of immunosuppressants, earnestly hoping that this medication will be “it” — remission, finally. These feelings…

Read More

Tina Aswani Omprakash

Related Posts

I am NOT a Burden: A South Asian Perspective
July 1, 2020

Being Brown and Coming Out of the IBD Closet: The Chronic Illness Experience
August 7, 2018

As a Chronically-Ill Brown Woman, Here’s Why I Share My Survival Story
May 16, 2019
advocacy, awareness, coping with flares, Crohn's, living with IBD, Ostomy, Ulcerative Colitis

MC Capital T Reppin’ from the BK Walk!

June 25, 2018

Thanks to the Crohn’s & Colitis Foundation for the opportunity to serve my fellow IBDers by sharing my experiences as well as introducing past and present Honored Heroes at the Brooklyn Take Steps Walk. Hats off to all of you for being brave enough to share how miserable these diseases are and how you are working to transcend #IBD. And a special thank you to all the doctors/surgeons and Lyfebulb for coming out to support us patients in our struggle! Even though I look well in the above photo, after the walk, I quickly deteriorated. I was dehydrated, had trouble breathing and had a partial bowel obstruction. Luckily, the Foundation…

Read More

Tina Aswani Omprakash

Related Posts

Ostomy Awareness Day: Empowering Ostomates to Live Fuller Lives
November 22, 2019

“I Had an Ostomy—and It Changed My Life”
December 11, 2019

Being Brown and Coming Out of the IBD Closet: The Chronic Illness Experience
August 7, 2018
acceptance, advocacy, awareness, coping with flares, Crohn's, living with IBD, Ostomy, stigma, Ulcerative Colitis

12 News to Your Health IBD Segment

June 23, 2018

My TV debut with News 12 NJ! I discuss having inflammatory bowel disease (IBD) and ostomy surgery alongside Rosemarie Golombos, Executive Director of the NJ Chapter of the Crohn’s and Colitis Foundation. Thank you, Prashanthi Musapet, for the special segment and for helping to create awareness and acceptance for these awful diseases!

Read More

Tina Aswani Omprakash

Related Posts

World PTSD Day 2019: The Faceless Woman
June 27, 2019

A Valentine’s Day Special: Dating & Relationships with an Ostomy
February 25, 2020

Ostomy Awareness Day: Empowering Ostomates to Live Fuller Lives
November 22, 2019
acceptance, awareness, caregivers, colorectal cancer, coping with flares, Crohn's, Father's Day, living with IBD, patient rights, stigma, Ulcerative Colitis

Honoring My Late Father

June 17, 2018

(Daddy at his Doctoral Commencement at Columbia University in the ’70s.) This Father’s Day I honor all fathers. I especially honor my father who devoted his life to the sciences and to his family. He toiled endlessly until the very last minute working until he couldn’t anymore all to ensure his wife and daughters could get by without him. Not a day goes by that I don’t wonder how much better life would have been if he could have lived to see his girls all grown up. ? His battle with Crohn’s and later colorectal cancer may have taken his life but he has become my inspiration to fight incessantly for my…

Read More

Tina Aswani Omprakash

Related Posts

TINA ASWANI OMPRAKASH | 2018 NYC ADULT HONORED HERO
April 20, 2018

~OYC TRAILBLAZERS~ Katie’s Story: Baby-Making Prospects & Egg-Freezing with a J-Pouch
September 4, 2019

~ OYC Trailblazers ~ Amy & Terrell: Crohn-ically Ever After
September 23, 2020
coping with flare, Crohn's, living with IBD, patient rights, stigma, Ulcerative Colitis

Coming Out of My IBD Closet as a Desi Woman

June 16, 2018

Every single year the Crohn’s and Colitis Foundation chooses a local Adult Honored Hero who shares his/her story and is honored at the Take Steps Walk in the spring. And every single year I attend the New York City walk, raise awareness and funds to help find treatments and someday a cure for these awful diseases. I bring my friends and my family together along with the Foundation’s Women’s Support Group so they can see that we patients don’t suffer alone, that many folks from all walks of life have been through hell and back at a young age. And every single year, one of my closest girlfriends has tears…

Read More

Tina Aswani Omprakash

Related Posts

All of these exceptional women have won awards this year for their public advocacy efforts
October 16, 2018

The Value of Support Groups
August 26, 2018

Metamorphosis
August 13, 2018
coping with flares, Crohn's, living with IBD, Traveling with IBD, Ulcerative Colitis

Owning My Crohn’s Vegas Style

June 10, 2018

This blog post is a throwback to 5 years ago when I traveled to Vegas to celebrate Prashanthi’s 30th birthday! Happy birthday, Prash! This trip was important to me because it was one of the first times since my diagnosis that I let my guard down disease-wise to travel with good friends. In 2012, after my first RV fistula was found, I had my j-pouch diverted and my 2nd ostomy put in place. After recovery, I decided that my illness had been consuming me whole. It was now do or die–either I restore my sense of self by challenging myself or I languish in misery from not trying. I hit…

Read More

Tina Aswani Omprakash

Related Posts

OYC Trailblazers: What Healing Means to Natasha
March 26, 2019

Brown Girl with Guts: Tina’s Journey with Crohn’s Disease
April 30, 2019

Basmah’s Journey: The Cultural Impacts of Being an Egyptian Crohnie
April 18, 2021
coping with flares, Crohn's, living with IBD, Ulcerative Colitis

Tina’s Take Steps Honored Hero Speech

May 18, 2018

Read More

Tina Aswani Omprakash

Related Posts

~OYC Trailblazers~ Brandi’s Journey into Motherhood with a Redone J-Pouch
May 12, 2019

Throwback to La Caverna 2006!
August 30, 2018

Allowing Acceptance In
November 21, 2018