Did you know that approximately 25% of people living with inflammatory bowel disease (IBD) report significant symptoms of post-traumatic stress (PTS)? This PTS is directly related to disease experiences and related hospitalizations and is referred to as IBD-PTS. So what is IBD-PTS? It is when a patient experiences significant trauma related to the underlying condition and that trauma flashes back in the form of nightmares and unwanted memories. It may result in disturbed sleep, hypervigilance, and even low mood, including depression and anxiety. Did you also know that there is a bidirectional relationship between IBD and depression and anxiety? This means declining mental health can contribute to disease activity, and IBD activity can also…
- autoimmune disease, chronic illness, Crohn's, living with IBD, medical trauma, Mental Health, Mindfulness, Ostomy, PTSD, stigma, Ulcerative Colitis
- Crohn's, health equity, Healthcare Disparities, living with IBD, Ostomy, Patient Voice, Stigma, Ulcerative Colitis, Women's Health
SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!
SAIA is honoured to announce that Tina Aswani-Omprakash, MPH, is now our full-time Chief Executive Officer 🎉🎉 Written by Madhura Balasubramaniam, Sharan Khela, Dr. Neilanjan Nandi & SAIA’s Board of Directors Tina is a patient advocate and thought leader par excellence, with several years of experience in spearheading international health advocacy efforts within and beyond the GI space. Tina’s work with Own Your Crohn’s has been groundbreaking for communities of colour, especially the South Asian community, where discussions around inflammatory bowel disease (IBD) have historically been clouded by cultural stigmas and misconceptions. Tina brought to light and underscored these hidden cultural considerations that shape healthcare for communities of colour across the world.…
- chronic illness, Colorectal Surgery, Crohn's, Cultural Stigma, living with IBD, Ostomy, Stigma, Ulcerative Colitis, World Ostomy Day
How Ostomy Surgery Impacted My Life
How ostomy surgery gave Tina Aswani-Omprakash her life back and the impact these surgeries can have in IBD treatment. Originally published on IBD Social Circle’s Blog It is estimated that approximately three-quarters of Crohn’s disease patients and a third of ulcerative colitis patients will need surgery at some point or another in their disease journey. What’s often not discussed enough, though, is how many of those surgeries will lead to ostomies. So, what is an ostomy and how does it help patients with inflammatory bowel disease (IBD)? According to United Ostomy Associations of America (UOAA), ostomy surgery is a lifesaving procedure. It allows bodily waste to pass into a medical…
- Crohn's, Disease Prevention, health equity, Intestinal Ultrasound, living with IBD, Ostomy, Ulcerative Colitis
My Real World Experience with Intestinal Ultrasound
Last week, I had my first intestinal ultrasound (IUS). I had been very nervous the last month getting ready to go in for IUS as I’ve been having weird gut symptoms the last few months. My ileoscopy has been scheduled for 3 months out, so my doctor and I decided it might be best to have an IUS done in the meantime. What is IUS you ask? It is a modality that can visualize bowel inflammation, thickening, and fistula tracts in addition to taking a look at severity and extent of inflammation. It doesn’t require bowel prep or gross contrast (!!), it’s not invasive, results can be discussed in real…
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How to Enjoy Your Favorite Cultural Foods Living with Crohn’s Disease
Eating with Crohn’s disease can be a challenge as it is, and especially so during cultural events when there are food and festivities galore. I’ve struggled immensely with my diet as a South Asian American woman living with Crohn’s disease. Coming out of the hospital flare after flare, surgery after surgery, it was difficult to get care that would consider the cultural foods I was accustomed to eating… Read more on the Healthgrades website: healthgrades.com/right-care/crohns-disease/how-to-enjoy-your-favorite-cultural-foods-living-with-crohns-disease Originally Published on Healthgrades.com, Written by Tina Aswani-Omprakash, Medically Reviewed by Lisa Valente, MS, RD
- autoimmune disease, Crohn's, Diet, invisible illness, living with IBD, Mental Health, Minority Health, Nutrition, Ostomy, Ulcerative Colitis
Key Takeaways from Crohn’s & Colitis Congress 2023
The Crohn’s & Colitis Congress 2023 took place last month in Denver, Colorado, bringing together more than 1,300 healthcare professionals and researchers from across the globe to share the latest advancements in inflammatory bowel disease (IBD). To summarize some of my key takeaways: **Goal is to improve patient care by halting progression of disease** So, own your Crohn’s, own your ulcerative colitis, and stay abreast of the latest and greatest research in the IBD space to advocate for your own best care! To read more about Crohn’s & Colitis Congress 2023, please visit the full blog post on the Crohn’s & Colitis Foundation’s IBDVisible Blog. As a patient advocate myself, I…
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My Feature in Gastroenterology & Endoscopy News!
Very honored to have been featured in Gastro & Endo News with regard to addressing sleep issues in IBD. This is something I’ve struggled with for a long time because I often need to use the facilities overnight and have trouble falling back asleep. Learn more about sleep issues and how to help us patients by visiting the article link here: https://www.gastroendonews.com/Article/PrintArticle?ArticleId=67175 As patients, sleep can really make a difference in our care and our overall ability to take each day as it comes. If our gastroenterologists aren’t able to address sleep concerns during our appointments, it may be best to bring up to our IBD nurses, NPs or PAs to…
- advocacy, awareness, Crohn's, J-Pouch, living with IBD, Ostomy, Traveling with IBD, Ulcerative Colitis
7 Tips for Traveling With IBD, From Someone Who Gets It
Don’t let inflammatory bowel disease and fears of COVID-19 get in the way of your travel plans. Here’s what you need to know before you start packing. By Tina Aswani-Omprakash Summers are a time to look forward to rest, relaxation, and vacations. But for those of us living with inflammatory bowel disease (IBD), going away on a trip can often mean additional anxiety. And with the addition of COVID-19, anxiety levels are heightened. While many of us want to travel, we struggle to wrap our heads around how to travel when living with Crohn’s disease or ulcerative colitis, especially as new variants of the novel coronavirus circulate around the world. In fact, stressing out over travel…
- Crohn's, Digital Healthcare Innovations, Disability Justice, invisible illness, Irritable Bowel Syndrome, J-Pouch, living with IBD, Ostomy, patient rights, Ulcerative Colitis
My Feature in The New York Times!
In conjunction with the Crohn’s & Colitis Foundation’s new We Can’t Wait App, nonprofit partner South Asian IBD Alliance’s Co-Founder & President Tina Aswani-Omprakash was interviewed and featured in the Metropolitan section of the Sunday’s edition of The New York Times on 19 June 2022!!! Read the article in-print below or online here: https://www.nytimes.com/2022/06/17/nyregion/public-bathrooms-nyc-tiktok.html Check out the We Can’t Wait App to find the restroom nearest to you in the U.S. Available now for download in Apple Store and Google Play: https://www.crohnscolitisfoundation.org/wecantwait
- Colorectal Surgery, Crohn's, Gastroparesis, invisible illness, living with IBD, medical trauma, Mental Health, Ostomy, PTSD, Ulcerative Colitis
Real Talk About Recovery
Recovery…it’s not something we talk about enough. Surgery, like the classic Bollywood love story, takes precedence but the moment the couple gets together, they live happily ever and we never hear about the rest. Same thing with the rush and excitement of surgery. We hear all about it but the reality is we never hear about how arduous the recovery is. Today marked a month since my surgery. It was quite an emotional day for me. For those of you just tuning in, I had an emergency laparotomy due to multiple bowel obstructions from previous surgical stapling and complications caused by scar tissue and a hernia strangulating my bowel and…