Minority Health – Page 3 – Own Your Crohn's

advocacy, Colorectal Surgery, Crohn's, fistula, Fistulizing Disease, J-Pouch, Mental Health, Minority Health, Ostomy, Self-image, stigma, Ulcerative Colitis, Women's Health

FitWitMD’s Live Discussion on Perianal Fistulizing Crohn’s Disease

August 7, 2020

A couple weeks ago, esteemed IBD specialist, Dr. Neilanjan Nandi (@fitwitmd) of Penn Medicine, hosted a live discussion with me on my experiences around Perianal Fistulizing Crohn’s Disease. We opened up the discussion to an international audience and allowed for a Q&A on this very deeply stigmatized topic that’s often not discussed or understood very well. To view the video, please watch here: I have been very open about my struggles with multiple fistulae in female parts. I have lived with 5 rectovaginal fistulae and 1 pelvic transphinteric fistula that was headed to break through at the site of my tailbone, nearly paralyzing me. To read more about my experiences,…

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Tina Aswani Omprakash

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Black Lives Matter in the IBD Community, Too

July 10, 2020

In recent weeks, months and years, we have witnessed far too many hate crimes toward our Black brothers and sisters. It is not unknown to us that many Black bodies have been tested upon without fair pain medications, expected to endure tremendous suffering in the name of science. Within the healthcare system, not only do Black folx face significant health disparities and delays to diagnosis, they also deal with uphill battles when it comes to accessing good insurance, care and treatment options. With this blog post, I aim to shed light on the stories of 8 lovely Black inflammatory bowel disease (IBD) patients while sharing the resources of 3 die-hard…

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Tina Aswani Omprakash

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I am NOT a Burden: A South Asian Perspective

July 1, 2020

The recent advice column in the NY Times called “Is it OK to Dump Him Because of His Medical Condition?” has been percolating in our minds for the last few weeks. Tomorrow, July 2nd, 2020, marks 10 years since I’ve been married to the love of my life, Anand. Yes, you read that right: one whole decade of wedded bliss and 14 years of us being together. (See Love Knows No Disability.) I still vividly remember telling him 3 weeks into us dating that I had been diagnosed with inflammatory bowel disease (IBD) a few short months earlier and that the disease had taken the lives of my father and…

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Tina Aswani Omprakash

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~OYC Trailblazers~ Michelle’s Story on the Intersection of Crohn’s & an LGBTQIA+ Identity

June 22, 2020

By Michelle Cabral My symptoms first started around the age of 11. As I grew into my teenage and adult years, my symptoms worsened. I found myself dealing with bathroom urgency and vomiting on a daily life. I distinctly remember when I was about the age of 16, my mother and I were leaving a restaurant after a night out and I had already vomited. I still remember her saying something to the effect of “one day you’ll be able to go out for dinner and not feel like this.” Little did she know that my life would continue with this trajectory and I would finally be diagnosed via colonoscopy…

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Step in Our Shoes: A Discussion on Being an Ally to the Black Community

June 20, 2020

Earlier this month, I moderated a live discussion for Savvy Co-op on all things around the racism, injustice, inequality that Black Americans face. The advocates involved included Tonya Hegamin (Author, Professor, Type 1 Diabetes/LGBTQIA+ advocate), Erron Maxey (international basketball player, ESL teacher, Crohn’s Disease advocate) & Larry Turner (former Lakers basketball player, coach & international basketball player). They each brought very unique perspectives and shared experiences that taught us all how to be more mindful of the discrimination that Black Americans face on a regular basis. To learn more on how to become an ally to the Black community and start having brave conversations that incite, check out our discussion…

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Tina Aswani Omprakash

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What IBD Awareness Means to a South Asian American Woman with Crohn’s

June 17, 2020

By Tina Aswani Omprakash Originally published in IBD Relief on May 18th, 2020: https://www.ibdrelief.com/ibd-stories/my-ibd-story-tina-aswani-omprakash I remember waking up from a surgery to repair a rectovaginal fistula in late 2011 and being yelled at by an elderly family member for ruining their lives. Even though I was still in a haze in the recovery room, the tears of pain and anguish washed over me. Whether it was my body violating me with perianal fistulizing Crohn’s disease or family and friends constantly reminding me of how much of a burden I was, the floodgates opened in that moment as I asked that family member to please excuse themselves from the recovery area. You see, it’s really…

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World IBD Day Panel Discussion: Experiences of Minority IBD Patients & Caregivers

May 23, 2020

By Anand Omprakash For World IBD Day, I was invited to be a part of a virtual panel discussion with the Crohn’s & Colitis Foundation, Dr. Meena Bewtra (IBD patient & gastroenterologist) and Stephanie Stinson (IBD patient) highlighting the unique struggles that minority patients and caregivers face. I did this because I wanted to shed light upon the stigmas surrounding chronic illness in my community, especially so when it comes to a bowel disease and to marriage. In many communities around the world, a chronic illness is often viewed as a liability because marriage is considered as a familial “contract” to provide and reproduce and not just a means to provide…

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~OYC TRAILBLAZERS~ Spotlight on Malaysian Crohnie & Ostomate Saravanan

April 22, 2020

It all started in early 2008 when I was still in high school and started to experience bowel disease symptoms. However, as many of us know, there can be a large gap between the time we experience symptoms and the time we are officially diagnosed. I was finally diagnosed with Crohn’s disease in July 2012. The four and half years in between onset of symptoms and diagnosis were the most arduous part of my journey. My battle began upon developing a fistula. For those who may not be familiar, a fistula is an abnormal tract created between the intestinal wall and another organ or out on to the skin due…

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Tina Aswani Omprakash

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What Will People Think? ~A Short Documentary by Chealynn Feaster

December 27, 2019

This past fall I had the opportunity to meet and film with filmmaker Chealynn Feaster, a fellow ostomate and Crohn’s Disease warrior. Together we pieced together a short documentary called What Will People Think? (Hindi/Urdu: Log Kya Kahenge?) which shines light on my advocacy work and the inspirations behind it from my father and aunt’s illnesses and subsequent deaths to my own constant battle with Crohn’s Disease and multiple colorectal surgeries. One of the aspects of living with inflammatory bowel disease (IBD) that I advocate for most is the nuances that racial and ethnic minorities face. Having a bowel disease and living with an ostomy, no matter how life-saving, often…

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Originally Published in The Mighty on October 2nd, 2019: https://themighty.com/2019/10/suffering-the-silence-chronic-illness-photo-series/ “I was diagnosed 13.5 years ago but I feel like for a long time I kept it quiet. It’s so deeply stigmatized in American culture. Crohn’s being a bowel disease makes it very difficult to talk about. It has to do with something that nobody talks about. It’s so debilitating. A lot of times it’s mistaken for an eating disorder because our weight can be all over the place so nobody wants to ask us what’s going on because they’re ashamed to. We want to be asked how we’re feeling. Since I became an advocate, more and more people are…

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