Did you know that approximately 25% of people living with inflammatory bowel disease (IBD) report significant symptoms of post-traumatic stress (PTS)? This PTS is directly related to disease experiences and related hospitalizations and is referred to as IBD-PTS. So what is IBD-PTS? It is when a patient experiences significant trauma related to the underlying condition and that trauma flashes back in the form of nightmares and unwanted memories. It may result in disturbed sleep, hypervigilance, and even low mood, including depression and anxiety. Did you also know that there is a bidirectional relationship between IBD and depression and anxiety? This means declining mental health can contribute to disease activity, and IBD activity can also…
- autoimmune disease, chronic illness, Crohn's, living with IBD, medical trauma, Mental Health, Mindfulness, Ostomy, PTSD, stigma, Ulcerative Colitis
- acceptance, advocacy, autoimmune disease, awareness, coping with flares, Crohn's, immunocompromised, living with IBD, Mental Health, Mindfulness
Accepting My Crohn’s Disease to Finally Become Me
A person I admire once said, “Once you stop fighting your illness, you will allow acceptance to emerge.” I guess I had never looked at illness that way before. Society tells us to fight illness to our last breath, but is it really a fighting attitude we should have? This thought was something I began to ponder after hearing this statement. It took me months to process and understand what fighting vs. acceptance meant for my Crohn’s disease. Read more on the Healthgrades website: https://www.healthgrades.com/right-care/crohns-disease/accepting-my-crohns-disease-to-finally-become-me. Originally Published on Healthgrades.com, Written by Tina Aswani-Omprakash
- advocacy, awareness, colorectal cancer, Colorectal Surgery, coping with flares, Crohn's, Fistulizing Disease, living with IBD, Mindfulness, Ostomy, Pelvic pain
My Feature in Everyday Health as #EverydayWoman
From Everyday Health’s Instagram: “Meet Tina Aswani Omprakash — the #IBD warrior and chronic illness advocate behind @ownyourcrohns. Tina was diagnosed with #Crohns disease 13 years ago and has since undergone over 20 surgeries, including a permanent #ostomy, four near-death experiences, and countless IBD-related manifestations and diagnoses. Tina is our #EverydayWoman today and everyday because despite her hardships with Crohn’s disease, she is passionate about leading a full and happy life and inspires others to do the same. Tina is an active leader in the Crohn’s & Colitis Foundation and often writes on her blog about living with an ostomy and other IBD-related issues. Her mantra is to celebrate life,…
- colorectal cancer, Colorectal Surgery, Crohn's, Fistulizing Disease, Gratitude, living with IBD, Mindfulness, Ostomy, Pelvic pain, stigma, Traveling with IBD, Ulcerative Colitis, Valentine's Day
7 IBD-Inspired Gift Ideas for Valentine’s Day
By Tina Aswani Omprakash February 13, 2019 One woman living with Crohn’s shares thoughtful Valentine’s gift ideas for the IBD warrior in your life. Valentine’s Day can be an anxiety-inducing holiday for many people. Especially for those of us living with inflammatory bowel disease (IBD). If we’re single, our minds might run wild about when we might meet that special someone. And if we’re in a relationship, we might worry about experiencing symptoms during a romantic moment. But it’s important to remember that Valentine’s Day isn’t just a day for us to fret over romance. It’s a day for us to celebrate all kinds of love: love for significant others, family, and…
- acceptance, advocacy, awareness, Colorectal Surgery, coping with flares, Crohn's, Fistulizing Disease, living with IBD, Mindfulness, Ostomy, patient rights, Pelvic pain, stigma, Ulcerative Colitis
Real Talk About Fistulae
As I sit here today with a very heavy heart typing out this blog post, I’m not sure if the excruciatingly painful nodule I felt earlier this week is just another health scare or yet another horrifying abscess from a fistula. I hold back tears as I wonder what my next steps are and what I can do to keep spiraling anxiety in check. Now many of you might be wondering what I’m even referring to–abscess? Fistula? What the heck are those and why am I such a mess over them? Well, get ready for some real talk about the most harrowing experience I’ve faced as a Crohn’s patient. According…
- acceptance, advocacy, awareness, Crohn's, Gratitude, living with IBD, Mindfulness, Ostomy, Ulcerative Colitis
Owning My Crohn’s Mindfully This New Year
A journalist recently asked me, “Where do you see yourself in 5 years, Tina?” It was a mind-boggling question; I could barely wrap my head around the chronicity of my illnesses forget about thinking so far ahead into the future. The truth is I don’t know what tomorrow will bring, sickness or health, and I’m not so sure I want to even think about it. Sure, the future appears bright with many new medications and research in the pipeline to treat inflammatory bowel disease (IBD). But one thing I’ve come to learn in all the ebbs and flows of living with IBD is that I need to live for today…