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  • Body Positivity,  cervical cancer,  Dating & Relationships,  diversity,  Mental Health,  Minority Health,  Ostomy,  Self-image,  stigma,  Women's Health

    ~OYC Trailblazers~ Jennylyn’s Ostomy Love Story in the Philippines

    October 30, 2020

    My name is Jennylyn Ajes and I’m 32 years old from Laguna, Phillippines. In 2018, I was diagnosed with stage 2b cervical cancer, which means I had a tumor that had grown beyond the cervix and uterus.[1] During this time, I had undergone chemotherapy, radiation therapy and brachytherapy. I had to do these therapies for 5 months total and none of it was easy. The brachytherapy required internal radiation therapy to get to the source of the cancer and try to wipe it out. I felt fine for the first 3 months after treatment but I really struggled with my confidence losing most of my hair and eyebrows due to…

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    Tina Aswani Omprakash

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    My Ostomy, My Lifesaver

    October 3, 2019

    “I Had an Ostomy—and It Changed My Life”

    December 11, 2019

    Ostomy Awareness Day: Empowering Ostomates to Live Fuller Lives

    November 22, 2019
  • colorectal cancer,  Colorectal Surgery,  Coronavirus,  COVID-19,  Crohn's,  immunocompromised,  Ostomy,  Ostomy Awareness Day,  Ulcerative Colitis

    Managing Ostomy Care in the Era of Covid-19

    October 21, 2020

    Many of us with chronic illnesses have struggled throughout this pandemic with accessing timely care. One issue I’ve faced is because of my gastroparesis and other functional gastrointestinal conditions (IBS, SIBO etc.) acting up, my weight has been fluctuating a lot these last several months. As a result, my stoma size has been changing every week or two. With that, I’ve suffered a lot of ostomy leaks but even more skin irritation. While I’ve worked with my ostomy nurse virtually the last couple months to get my skin issues under control, I keep thinking of my ostomate family online and how you all may be handling your ostomy care in…

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    Tina Aswani Omprakash

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    My Feature in Everyday Health as #EverydayWoman

    February 22, 2019

    Real Talk about Ostomies

    October 5, 2018

    Honoring My Late Father

    June 17, 2018
  • advocacy,  awareness,  colorectal cancer,  Colorectal Surgery,  Crohn's,  Fistulizing Disease,  living with IBD,  Mental Health,  Ostomy,  stigma,  Ulcerative Colitis

    The Top 10 IBD Blogs to Follow in 2019

    March 15, 2019

    Discussing bowel movements is undoubtedly a taboo subject for many people, which has helped a stigma form around Inflammatory Bowel Disease (IBD). For people living with IBD, most commonly in the form of Crohn’s Disease or Ulcerative Colitis, ‘embarrassment’, ‘shame’, and ‘isolation’ are regularly used words to describe the emotional strain that accompanies the physical symptoms of their condition. These bloggers, each excelling in particular areas, write openly and honestly about the realities of life with IBD. In doing so, they are helping create a community that offers support, raise awareness that helps tackle the stigma, and provide practical tips for various walks of life. Top IBD Blogs for Real…

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    Tina Aswani Omprakash

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    FitWitMD’s Live Discussion on Perianal Fistulizing Crohn’s Disease

    August 7, 2020

    Basmah’s Journey: The Cultural Impacts of Being an Egyptian Crohnie

    April 18, 2021

    Inspire’s #KeepUsAllSafe COVID-19 Campaign

    April 12, 2020
  • acceptance,  advocacy,  awareness,  colorectal cancer,  Colorectal Surgery,  coping with flare,  Crohn's,  living with IBD,  Ostomy,  stigma,  Ulcerative Colitis

    All of these exceptional women have won awards this year for their public advocacy efforts

    October 16, 2018

    Winner, winner! Inspirational role models we look up to. Ostomy awareness involves advocacy, and to be effective in advocating for change we need influencers. Advocacy can be standing up and speaking out for a cause, voicing concerns about misconceptions, or connecting with individuals and organizations who need support. All of these exceptional women have won awards this year for their public advocacy efforts. Amber Wallace won a WEGO Health Award. View image on Twitter WEGO Health@wegohealth Congratulations to 2018 #WEGOHealthAwards Best Kept Secret winner Amber Wallace! @ostomydiaries Check out all the finalist & winner videos from this year’s celebration here: https://wegoh.co/2OWMWdb  4:50 PM – Oct 8, 2018 4 See WEGO Health’s other…

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    Tina Aswani Omprakash

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    My Feature in Suffering the Silence’s Photo Series Campaign

    October 6, 2019

    Disability Awareness in the Midst of Coronavirus

    March 12, 2020

    Step in Our Shoes: A Discussion on Being an Ally to the Black Community

    June 20, 2020
  • acceptance,  advocacy,  awareness,  colorectal cancer,  Colorectal Surgery,  Crohn's,  living with IBD,  Ostomy,  patient rights,  stigma,  Ulcerative Colitis

    Real Talk about Ostomies

    October 5, 2018

    On the eve of World Ostomy Day, I write this blog post in hopes of debunking many of the myths surrounding living with an ostomy. So here goes nothing… I always get super excited when friends and family muster up the courage to ask about my ostomy. It makes me feel so connected to them and like I’m being recognized for all of me and not just the healthy-looking parts of me. I feel their concern, their love and most of all, their interest in how I live my life, chronic illness and disabilities abound. See, the thing is, living with an ostomy is often the proverbial elephant in the…

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    Tina Aswani Omprakash

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    The Other Side of Crohn’s: Caregiving

    December 9, 2019

    How a clinical trial helped this Crohn’s advocate finally reach remission

    November 24, 2019

    My 9/11 Story: Paying Kindness Forward

    September 11, 2019

Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

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