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  • advocacy,  autoimmune disease,  Crohn's,  Diet,  immunocompromised,  invisible illness,  J-Pouch,  living with IBD,  Ostomy,  Traveling with IBD,  Ulcerative Colitis

    How to Own Your Crohn’s & Ostomy While Traveling to India

    February 18, 2025

    By Tina Aswani-Omprakash As IBD warriors, it’s always nerve-wracking to travel with our conditions and/or an ostomy. For me, it’s been 7 years of me traveling all over the U.S. and Europe for patient advocacy work. And even though I’ve spoken many times virtually for events in India and Pakistan, I hadn’t traveled to the region to speak given the pandemic. Now that we are out of the pandemic and back at in-person conferences, it was fantastic to be invited to speak about my experiences as an IBD patient & ostomate at Global Association of Physicians of Indian Origin’s (GAPIO’s) conference in Mysuru, Karnataka, India. Plus, traveling to Karnataka meant…

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    Tina Aswani Omprakash

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    A Valentine’s Day Special: Dating & Relationships with an Ostomy

    February 25, 2020

    What Will People Think? ~A Short Documentary by Chealynn Feaster

    December 27, 2019

    Colon Cancer & Its Devastating Impact on My Family

    March 19, 2020
  • Crohn's,  health equity,  Healthcare Disparities,  living with IBD,  Ostomy,  Patient Voice,  Stigma,  Ulcerative Colitis,  Women's Health

    SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

    November 18, 2024

    SAIA is honoured to announce that Tina Aswani-Omprakash, MPH, is now our full-time Chief Executive Officer 🎉🎉 Written by Madhura Balasubramaniam, Sharan Khela, Dr. Neilanjan Nandi & SAIA’s Board of Directors Tina is a patient advocate and thought leader par excellence, with several years of experience in spearheading international health advocacy efforts within and beyond the GI space. Tina’s work with Own Your Crohn’s has been groundbreaking for communities of colour, especially the South Asian community, where discussions around inflammatory bowel disease (IBD) have historically been clouded by cultural stigmas and misconceptions. Tina brought to light and underscored these hidden cultural considerations that shape healthcare for communities of colour across the world.…

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    Tina Aswani Omprakash

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    The Top 10 IBD Blogs to Follow in 2019

    March 15, 2019

    Inspire’s #KeepUsAllSafe COVID-19 Campaign

    April 12, 2020

    Happy World IBD Day from Digestive Disease Week (DDW)!

    May 22, 2019
  • chronic illness,  Colorectal Surgery,  Crohn's,  Cultural Stigma,  living with IBD,  Ostomy,  Stigma,  Ulcerative Colitis,  World Ostomy Day

    How Ostomy Surgery Impacted My Life

    October 5, 2024

    How ostomy surgery gave Tina Aswani-Omprakash her life back and the impact these surgeries can have in IBD treatment. Originally published on IBD Social Circle’s Blog It is estimated that approximately three-quarters of Crohn’s disease patients and a third of ulcerative colitis patients will need surgery at some point or another in their disease journey. What’s often not discussed enough, though, is how many of those surgeries will lead to ostomies. So, what is an ostomy and how does it help patients with inflammatory bowel disease (IBD)? According to United Ostomy Associations of America (UOAA), ostomy surgery is a lifesaving procedure. It allows bodily waste to pass into a medical…

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    Tina Aswani Omprakash

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    What I’ve Learned About Starting an Advanced Therapy for Crohn’s Disease

    March 2, 2024

    When Diagnoses Accumulate – My Endometriosis Journey

    August 28, 2023

    HealtheVoices 10-Year Anniversary (A Reminder of Why We Advocate)

    October 19, 2024
  • Crohn's,  Disease Prevention,  health equity,  Intestinal Ultrasound,  living with IBD,  Ostomy,  Ulcerative Colitis

    My Real World Experience with Intestinal Ultrasound

    August 12, 2024

    Last week, I had my first intestinal ultrasound (IUS). I had been very nervous the last month getting ready to go in for IUS as I’ve been having weird gut symptoms the last few months. My ileoscopy has been scheduled for 3 months out, so my doctor and I decided it might be best to have an IUS done in the meantime.  What is IUS you ask? It is a modality that can visualize bowel inflammation, thickening, and fistula tracts in addition to taking a look at severity and extent of inflammation. It doesn’t require bowel prep or gross contrast (!!), it’s not invasive, results can be discussed in real…

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    Tina Aswani Omprakash

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    Navigating Mental Health in Crohn’s Disease 

    December 5, 2024

    Dietary Guidance in IBD – A South Asian Approach

    March 20, 2021

    The Waiting Game

    June 30, 2018
  • acceptance,  advocacy,  autoimmune disease,  awareness,  coping with flares,  Crohn's,  immunocompromised,  living with IBD,  Mental Health,  Mindfulness

    Accepting My Crohn’s Disease to Finally Become Me

    January 15, 2024

    A person I admire once said, “Once you stop fighting your illness, you will allow acceptance to emerge.” I guess I had never looked at illness that way before. Society tells us to fight illness to our last breath, but is it really a fighting attitude we should have? This thought was something I began to ponder after hearing this statement. It took me months to process and understand what fighting vs. acceptance meant for my Crohn’s disease.  Read more on the Healthgrades website: https://www.healthgrades.com/right-care/crohns-disease/accepting-my-crohns-disease-to-finally-become-me. Originally Published on Healthgrades.com, Written by Tina Aswani-Omprakash

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    Tina Aswani Omprakash

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    The Value of Support Groups

    August 26, 2018

    Disability Awareness in the Midst of Coronavirus

    March 12, 2020

    Lilly Singh’s ‘Choli Ke Peeche Kya Hai?’: My Anthem for Body Positivity

    April 1, 2019
  • Crohn's,  Cultural Foods,  Diet,  J-Pouch,  Nutrition,  Ostomy,  Ulcerative Colitis

    How to Enjoy Your Favorite Cultural Foods Living with Crohn’s Disease

    December 19, 2023

    Eating with Crohn’s disease can be a challenge as it is, and especially so during cultural events when there are food and festivities galore. I’ve struggled immensely with my diet as a South Asian American woman living with Crohn’s disease.  Coming out of the hospital flare after flare, surgery after surgery, it was difficult to get care that would consider the cultural foods I was accustomed to eating… Read more on the Healthgrades website: healthgrades.com/right-care/crohns-disease/how-to-enjoy-your-favorite-cultural-foods-living-with-crohns-disease Originally Published on Healthgrades.com, Written by Tina Aswani-Omprakash, Medically Reviewed by Lisa Valente, MS, RD

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    Tina Aswani Omprakash

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    My Feature in Suffering the Silence’s Photo Series Campaign

    October 6, 2019

    No More Secrets: An enlightening film that reveals the stigma of having an ostomy in India

    September 24, 2018

    In the Name of Science & Research

    June 25, 2019
  • autoimmune disease,  Crohn's,  Diet,  invisible illness,  living with IBD,  Mental Health,  Minority Health,  Nutrition,  Ostomy,  Ulcerative Colitis

    Key Takeaways from Crohn’s & Colitis Congress 2023

    February 24, 2023

    The Crohn’s & Colitis Congress 2023 took place last month in Denver, Colorado, bringing together more than 1,300 healthcare professionals and researchers from across the globe to share the latest advancements in inflammatory bowel disease (IBD). To summarize some of my key takeaways: **Goal is to improve patient care by halting progression of disease** So, own your Crohn’s, own your ulcerative colitis, and stay abreast of the latest and greatest research in the IBD space to advocate for your own best care! To read more about Crohn’s & Colitis Congress 2023, please visit the full blog post on the Crohn’s & Colitis Foundation’s IBDVisible Blog. As a patient advocate myself, I…

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    Tina Aswani Omprakash

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    March 15, 2022

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    September 18, 2021

    Taryn’s Journey: Navigating Relationships and IBD During the Pandemic

    April 1, 2021
  • coping with flares,  Crohn's,  fatigue,  living with IBD,  Ostomy,  sleep,  Ulcerative Colitis

    My Feature in Gastroenterology & Endoscopy News!

    August 1, 2022

    Very honored to have been featured in Gastro & Endo News with regard to addressing sleep issues in IBD. This is something I’ve struggled with for a long time because I often need to use the facilities overnight and have trouble falling back asleep. Learn more about sleep issues and how to help us patients by visiting the article link here: https://www.gastroendonews.com/Article/PrintArticle?ArticleId=67175 As patients, sleep can really make a difference in our care and our overall ability to take each day as it comes. If our gastroenterologists aren’t able to address sleep concerns during our appointments, it may be best to bring up to our IBD nurses, NPs or PAs to…

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    Tina Aswani Omprakash

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    Pelvic Pain in IBD: An Overlooked Complication

    August 9, 2019

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    Tear Up Your Flare-Up

    April 28, 2018
  • Colorectal Surgery,  Crohn's,  Gastroparesis,  invisible illness,  living with IBD,  medical trauma,  Mental Health,  Ostomy,  PTSD,  Ulcerative Colitis

    Real Talk About Recovery

    December 16, 2021

    Recovery…it’s not something we talk about enough. Surgery, like the classic Bollywood love story, takes precedence but the moment the couple gets together, they live happily ever and we never hear about the rest. Same thing with the rush and excitement of surgery. We hear all about it but the reality is we never hear about how arduous the recovery is. Today marked a month since my surgery. It was quite an emotional day for me. For those of you just tuning in, I had an emergency laparotomy due to multiple bowel obstructions from previous surgical stapling and complications caused by scar tissue and a hernia strangulating my bowel and…

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    Tina Aswani Omprakash

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    ~OYC TRAILBLAZERS~ Spotlight on Malaysian Crohnie & Ostomate Saravanan

    April 22, 2020
  • Coming Out,  Crohn's,  Dating & Relationships,  diversity,  LGBTQ+ health,  living with IBD,  Minority Health,  Pride,  stigma,  Ulcerative Colitis,  Women's Health

    This Love Takes Guts

    October 11, 2021

    Our love isn’t simple, but it’s also the easiest feeling in the world. Being a woman in the LGBTQ+ community, I assumed that I would always have to come out over and over again throughout the course of my life. But when I was diagnosed with Crohn’s at 19 and had my first surgery at 20, I realized that I would have to come out about multiple parts of who I am for the rest of my life. It wasn’t until I found Girls with Guts in 2016 that I found a group of people that I finally didn’t have to go through the process of coming out to, at…

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    Tina Aswani Omprakash
 Older Posts

Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

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