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Own Your Crohn's

Empowering the Chronically Ill & Disabled to Lead Fuller Lives

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  • advocacy,  awareness,  Coronavirus,  COVID-19,  Crohn's,  immunocompromised,  living with IBD,  Ostomy,  Ulcerative Colitis

    Managing IBD in the Era of COVID-19

    April 19, 2020

    Last Friday, Gastroenterologist Dr. Supriya Rao and I had a conversation on Instagram Live about how to manage inflammatory bowel disease given the difficult circumstances around COVID-19. To watch and learn more, please check out the video below: For additional information, please feel free to reach out to @gutsygirlmd on Instagram or me here on my blog. For your reference, I have also put together a summary of tips on how to optimize our use of telehealth during the pandemic to manage our IBD optimally from a distance: https://ownyourcrohns.com/telehealth-ibdcare-covid19/. This post also references guidance from the IOIBD and AGA that we IBD patients should be aware of when discussing our…

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    Tina Aswani Omprakash

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    June 25, 2018

    A Day on the Hill: Putting a Face on IBD Legislation

    May 26, 2018

    Bachatera with a Bag: Theodora Shattering Ostomy Stigma Through Dance

    April 27, 2021
  • advocacy,  Coronavirus,  COVID-19,  Crohn's,  immunocompromised,  J-Pouch,  living with IBD,  Ostomy,  Ulcerative Colitis

    Tips for Telehealth and Managing Your IBD Care During the COVID-19 Pandemic

    April 18, 2020

    One of the things I do a lot as a patient with many chronic illnesses is visit all sorts of healthcare providers for the maintenance of my care. However, during this time, when many non-essential visits to the doctor’s office or to medical facilities are not recommended, what do we do? In the last 6 weeks, many providers have ramped up a service we are now calling telehealth. That is, many doctors are offering virtual visits to us from the convenience of our home. While it isn’t the ideal way to examine a patient, it certainly gets the job sufficiently done for many of us who are struggling to manage…

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    Tina Aswani Omprakash

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    The Value of Support Groups

    August 26, 2018

    Being Brown and Coming Out of the IBD Closet: The Chronic Illness Experience

    August 7, 2018

    World IBD Day Panel Discussion: Experiences of Minority IBD Patients & Caregivers

    May 23, 2020
  • Ableism,  advocacy,  awareness,  Colorectal Surgery,  Coronavirus,  COVID-19,  Crohn's,  Disability Justice,  immunocompromised,  invisible illness,  living with IBD,  Ostomy,  Ulcerative Colitis

    Inspire’s #KeepUsAllSafe COVID-19 Campaign

    April 12, 2020

    Last week, Inspire released a short video we made virtually on why living with Crohn’s Disease and being immunocompromised during COVID-19 is downright terrifying for patients like myself who are chronically and invisibly ill. Please take a moment to watch this video and share to help raise awareness. And don’t forget – every life is valuable! So please #KeepUsAll safe by practicing social distancing and staying home as much as possible! Be well & best wishes always!

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    Tina Aswani Omprakash

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    What IBD Awareness Means to a South Asian American Woman with Crohn’s

    June 17, 2020

    The Beauty of Ostomates Worldwide

    October 17, 2019

    What Will People Think? ~A Short Documentary by Chealynn Feaster

    December 27, 2019
  • advocacy,  awareness,  Coronavirus,  COVID-19,  Crohn's,  Disability Justice,  invisible illness,  living with IBD,  Ulcerative Colitis

    An Interview with News 12 NJ: How Does Coronavirus Affect YOU?

    April 6, 2020

    Earlier today, News 12 NJ journalist Prashanthi Musapet interviewed IBD patient advocate Tina Aswani Omprakash of OwnYourCrohns.com on Instagram LIVE on her experience as an immunocompromised patient living with Crohn’s Disease in the midst of the #COVID19 pandemic. To watch the interview, view the video below. In the video, you will hear Tina’s thoughts and experiences about being #HighRiskCOVID19 and how critical social distancing and taking responsibility for public welfare is during this outbreak to save lives like hers. I hope you found this interview informative and I especially hope that speaking up about being immunocompromised during #Coronavirus helps to create awareness and education in the able-bodied world about chronic…

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    Tina Aswani Omprakash

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    University Accommodations in the COVID-19 Era

    September 7, 2020

    12 News to Your Health IBD Segment

    June 23, 2018

    Tips for Telehealth and Managing Your IBD Care During the COVID-19 Pandemic

    April 18, 2020
  • acceptance,  advocacy,  awareness,  Coronavirus,  COVID-19,  Crohn's,  J-Pouch,  living with IBD,  Mental Health,  Ostomy,  Ulcerative Colitis

    Coping with IBD & Stress & Anxiety Around COVID-19

    April 1, 2020

    Last night I had the honor of doing a Facebook Live with Dr. Tiffany Taft (Psychogastroenterology, Northwestern University) and Amber Tresca (About IBD, IBD Moms) in conjunction with the Crohn’s & Colitis Foundation. We discussed all the emotions around COVID-19 from fear and anxiety to grief and loss and how we can cope best with stay-at-home and social distancing order in light of the challenges being presented to us in recent times. Hope you all found this discussion informative in learning some coping skills around the novel coronavirus (COVID-19) and living with IBD. For additional resources and updates on COVID-19 and IBD, please visit the Crohn’s & Colitis Foundation Coronavirus…

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    Tina Aswani Omprakash

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    OYC Trailblazers: An Ode to My Father & Fellow IBD Warrior

    January 30, 2019

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    April 1, 2019

    I’m Chronically Ill & Depressed; So What?

    June 3, 2019
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Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

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