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  • autoimmune disease,  chronic illness,  Crohn's,  Emerging Therapies,  living with IBD,  Ulcerative Colitis

    What I’ve Learned About Starting an Advanced Therapy for Crohn’s Disease

    March 2, 2024

    Are you getting ready to start an advanced therapy (for example, a biologic or small molecule medication) for the first time for your Crohn’s disease? Or perhaps this is round 2, 3, or 4 when it comes to trying advanced therapies to better manage your Crohn’s? Whether it’s your first rodeo or not, it’s important to know all the ins and outs so you can make appropriate decisions for your care in conjunction with your gastroenterologist. I have been there, and this is what I’ve learned about navigating my care and feeling empowered when getting ready to start a new therapy. Read more on the HealthGrades website: https://www.healthgrades.com/right-care/crohns-disease/what-ive-learned-about-starting-an-advanced-therapy-for-crohns-disease Originally Published on…

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    Tina Aswani Omprakash

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    Bachatera with a Bag: Theodora Shattering Ostomy Stigma Through Dance

    April 27, 2021

    Receiving the COVID-19 Vaccine as a Patient with Several Autoimmune Conditions

    March 22, 2021

    How to Own Your Crohn’s & Ostomy While Traveling to India

    February 18, 2025
  • Crohn's,  Cultural Stigma,  extraintestinal manifestations,  feeding tube,  Healthcare Disparities,  living with IBD,  Minority Health,  Nutrition,  Stigma,  Women's Health,  World IBD Day

    Madhura’s Journey in India: Coping with Stigma around IBD & Feeding Tubes

    May 16, 2021

    My name is Madhura Balasubramaniam and I live in India. I have been locked in battle with my intestines for as long as I can remember. I spent a large part of my early childhood dealing with constant spells of stomach pain, diarrhea, vomiting and rashes. I struggled to meet my height and weight targets and had multiple nutritional deficiencies. When I was 10 years old, I was given a tentative diagnosis of celiac disease and I have been gluten-free since. While this diet seemed to provide pain relief, I remained underweight and anaemic.  In mid-2018, I began to experience occasional bouts of watery diarrhea and fatigue. I was travelling…

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    Tina Aswani Omprakash

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    As a Chronically-Ill Brown Woman, Here’s Why I Share My Survival Story

    May 16, 2019

    A Gutsy Feeling: Advocating for the Best Care Possible as IBD Patients

    September 18, 2021

    3 Patient Tips for Living & Thriving with Crohn’s or Colitis

    December 10, 2018
  • advocacy,  Coronavirus,  COVID-19,  Crohn's,  immunocompromised,  living with IBD,  Mental Health,  Ulcerative Colitis

    Immunocompromised in the Age of Coronavirus

    May 1, 2020

    By Tina Aswani Omprakash A Crohn’s patient shares her very real fears, anxieties, and sadness around being immunocompromised while grappling with the coronavirus pandemic in New York City. *Originally published on April 27th, 2020 by Everyday Health: https://www.everydayhealth.com/columns/my-health-story/immunocompromised-in-the-age-of-coronavirus/ It was one of those winters full of never-ending health complications. Before Thanksgiving I ruptured a ligament in my ankle, which compounded my difficulties in managing life with Crohn’s disease. And if that wasn’t hard enough, many of my other conditions — gastroparesis, arthritis, pelvic pain — flared up due to immobility from the ankle injury. More recently, I had a couple of ER visits because of a herniated disc in my neck. In…

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    Tina Aswani Omprakash

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    Dropping Mask Mandates: A Time of Anxiety or Joy?

    March 15, 2022

    Summer of Activism: IBD Advocates You Should Follow on Social Media

    August 7, 2019

    Real Talk about Ostomies

    October 5, 2018
  • advocacy,  awareness,  Biosimilars,  Canadian healthcare,  coping with flares,  Crohn's,  fistula,  Forced Medical Switching,  living with IBD,  Lobbying,  patient rights,  Ulcerative Colitis,  Women's Health

    Sophia’s Chronic Illness Journey: Forced Switching to Biosimilars in Canada

    December 15, 2019

    By Sophia Ali Khan From Diagnosis to Remission I was diagnosed with Crohn’s Disease at the tender age of seven in Calgary, Alberta in Canada. This was after I was born with congenital neutropenia, a condition that involves the deficiency of neutrophils, a type of white blood cell that plays a key role in fighting infection and inflammation. After many months of debilitating stomach pains and unexplained weight loss, I was rushed into the OR for an appendectomy, but upon examination, the doctors found Crohn’s Disease. Being of Pakistani origin, Crohn’s was unheard of so naturally my family and I had to navigate our way through a sea of diagnoses,…

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    Tina Aswani Omprakash

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    South Asian IBD & COVID-19

    January 26, 2021

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    September 27, 2019

    Love Knows No Disability

    July 2, 2019

Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

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