Empowering the Chronically Ill & Disabled to Lead Fuller Lives
By Tina Aswani Omprakash, MPH “It feels like IBD of the bladder,” I remember telling my gastroenterologist, my gynecologist and my newfound urologist last summer. I couldn’t sleep at night with the horrors of this new urinary monster plaguing me and bringing me...
By Tina Aswani-Omprakash, MPH Looking back 20 years ago... When I first graduated college and started working, I had no idea what my life was going to look like. I was full of excitement but I did have a fear in the back of my mind that I may already have inflammatory...
For Tina, a Sjögren's disease diagnosis brought long-awaited answers and sparked her journey into patient advocacy By Tina Aswani-Omprakash **Originally published by Novartis on https://www.novartis.com/us-en/stories/living-with-sjogrens-disease-one-womans-story. For...
By Tina Aswani-Omprakash As IBD warriors, it’s always nerve-wracking to travel with our conditions and/or an ostomy. For me, it’s been 7 years of me traveling all over the U.S. and Europe for patient advocacy work. And even though I’ve spoken many times virtually for...
By Tina Aswani-Omprakash & Natalie Hayden **This article has also been published on Natalie's blog: Lights, Camera, Crohn's ** As two bloggers and patient thought leaders in the IBD community, we were thrilled and honored to attend and speak at the Advances...
By Tina Aswani-Omprakash As IBD warriors, it’s always nerve-wracking to travel with our conditions and/or an ostomy. For me, it’s been 7 years of me traveling all over the U.S. and Europe for patient advocacy work. And even though I’ve spoken many times virtually for...
Did you know that approximately 25% of people living with inflammatory bowel disease (IBD) report significant symptoms of post-traumatic stress (PTS)? This PTS is directly related to disease experiences and related hospitalizations and is referred to as...
SAIA is honoured to announce that Tina Aswani-Omprakash, MPH, is now our full-time Chief Executive Officer 🎉🎉 Written by Madhura Balasubramaniam, Sharan Khela, Dr. Neilanjan Nandi & SAIA’s Board of Directors Tina is a patient advocate and thought leader par...
Are you getting ready to start an advanced therapy (for example, a biologic or small molecule medication) for the first time for your Crohn’s disease? Or perhaps this is round 2, 3, or 4 when it comes to trying advanced therapies to better manage your Crohn’s? Whether...
A person I admire once said, “Once you stop fighting your illness, you will allow acceptance to emerge.” I guess I had never looked at illness that way before. Society tells us to fight illness to our last breath, but is it really a fighting attitude we should...