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  • autoimmune disease,  chronic illness,  Crohn's,  living with IBD,  medical trauma,  Mental Health,  Mindfulness,  Ostomy,  PTSD,  stigma,  Ulcerative Colitis

    Navigating Mental Health in Crohn’s Disease 

    December 5, 2024

    Did you know that approximately 25% of people living with inflammatory bowel disease (IBD) report significant symptoms of post-traumatic stress (PTS)? This PTS is directly related to disease experiences and related hospitalizations and is referred to as IBD-PTS. So what is IBD-PTS? It is when a patient experiences significant trauma related to the underlying condition and that trauma flashes back in the form of nightmares and unwanted memories. It may result in disturbed sleep, hypervigilance, and even low mood, including depression and anxiety.   Did you also know that there is a bidirectional relationship between IBD and depression and anxiety? This means declining mental health can contribute to disease activity, and IBD activity can also…

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    Tina Aswani Omprakash

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    What the IBD Community Needs to Know About Getting a COVID-19 Booster

    December 11, 2021

    Dropping Mask Mandates: A Time of Anxiety or Joy?

    March 15, 2022

    What I’ve Learned About Starting an Advanced Therapy for Crohn’s Disease

    March 2, 2024
  • acceptance,  advocacy,  chronic illness,  chronic pain,  Colorectal Surgery,  coping with flares,  Crohn's,  endometriosis,  extraintestinal manifestations,  Irritable Bowel Syndrome,  Mental Health,  Pelvic Floor Dysfunction,  Pelvic pain,  PTSD,  Ulcerative Colitis,  Women's Health

    When Diagnoses Accumulate – My Endometriosis Journey

    August 28, 2023

    Last spring, just when I had thought I had turned a corner and had many of my conditions better controlled, I developed a ton of crippling pelvic pain. Within a couple of days, I started bleeding a lot, which made no sense because I had been on hormones for years to stop my periods. Hormonal therapy was presented to me as a treatment option by Mayo Clinic’s gynecology team because I had many peritoneal inclusion cysts (scar tissue filled with fluid in my pelvis) that were wreaking havoc on my bladder before and after major surgeries done to remove my j-pouch. So, it was either hormonal suppression of ovulation or a hysterectomy at age…

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    Tina Aswani Omprakash

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    IBD Awareness Week Line-Up: Diversity, Mental Health & More!

    December 1, 2018

    ~OYC TRAILBLAZERS~ Spotlight on Malaysian Crohnie & Ostomate Saravanan

    April 22, 2020

    ~OYC Trailblazers~ Anisha Zumba-ing Her Way into 2021!

    January 28, 2021
  • Clinical Trials,  Crohn's,  Emerging Therapies,  living with IBD,  medical trauma,  Mental Health,  PTSD,  Ulcerative Colitis

    Research Highlights from Digestive Disease Week 2022 for the IBD Community

    June 8, 2022

    Originally Published by the Crohn’s & Colitis Foundation on their IBDVisible Blog on June 8th, 2022 By: Madhura Balasubramaniam & Tina Aswani-Omprakash After two years of virtual programming due to COVID-19, Digestive Disease Week® (DDW) 2022 came back with a bang in San Diego, CA last month. There was a lot of research presented about various gastrointestinal and liver conditions and it was exhilarating to see and hear about all the latest developments in the inflammatory bowel disease (IBD) space. From emerging therapies to better understanding of psychosocial aspects of IBD in addition to the role of antibiotics in IBD as well as growing up with pets and the development of IBD,…

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    Tina Aswani Omprakash

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    How a clinical trial helped this Crohn’s advocate finally reach remission

    November 24, 2019

    A Gutsy Feeling: Advocating for the Best Care Possible as IBD Patients

    September 18, 2021

    IBD & Tea: What Patients Want to Know When It Comes to a Clinical Trial

    January 12, 2021
  • Colorectal Surgery,  Crohn's,  Gastroparesis,  invisible illness,  living with IBD,  medical trauma,  Mental Health,  Ostomy,  PTSD,  Ulcerative Colitis

    Real Talk About Recovery

    December 16, 2021

    Recovery…it’s not something we talk about enough. Surgery, like the classic Bollywood love story, takes precedence but the moment the couple gets together, they live happily ever and we never hear about the rest. Same thing with the rush and excitement of surgery. We hear all about it but the reality is we never hear about how arduous the recovery is. Today marked a month since my surgery. It was quite an emotional day for me. For those of you just tuning in, I had an emergency laparotomy due to multiple bowel obstructions from previous surgical stapling and complications caused by scar tissue and a hernia strangulating my bowel and…

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    Tina Aswani Omprakash

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    The Beauty of Ostomates Worldwide

    October 17, 2019

    FitWitMD’s Live Discussion on Perianal Fistulizing Crohn’s Disease

    August 7, 2020

    Real Talk About Fistulae

    January 19, 2019
  • acceptance,  advocacy,  coping with flares,  Crohn's,  fistula,  Gastroparesis,  invisible illness,  living with IBD,  Mental Health,  Ostomy,  PTSD,  stigma,  Ulcerative Colitis

    Talking Gut Podcast Episode 20: Tina Aswani Omprakash on Resilience & GRITT

    May 30, 2020

    As May, a month of several health initiatives, comes to a close, I wanted to highlight Mental Health Awareness Month, World IBD Day and World Digestive Disease Day by talking about all three in my latest podcast interview with Dr. Jim Kantidakis, Clinical Psychologist & Gut-Directed Hypnotherapist, at the Gut Centre in Australia. In his podcast titled Talking Gut, I discuss the power of resilience, that so-called grit that living with Crohn’s Disease, multiple fistulae, a permanent ileostomy, gastroparesis, IBS and SIBO have given me over the years. Dr. Kantidakis asks me how I got through all my hospitalizations and faced all the medical PTSD and I would have to…

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    Tina Aswani Omprakash

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    Basmah’s Journey: The Cultural Impacts of Being an Egyptian Crohnie

    April 18, 2021

    Brown Girl with Guts: Tina’s Journey with Crohn’s Disease

    April 30, 2019

    ~OYC Trailblazers~ Michelle’s Story on the Intersection of Crohn’s & an LGBTQIA+ Identity

    June 22, 2020
  • acceptance,  awareness,  Colorectal Surgery,  coping with flares,  Crohn's,  living with IBD,  Mental Health,  PTSD,  Stigma,  Ulcerative Colitis,  Women's Health

    World PTSD Day 2019: The Faceless Woman

    June 27, 2019

    In honor of World PTSD Day today, I release a poem I wrote some weeks ago surrounding the medical trauma I’ve faced as a Crohn’s patient. This poem is not for the faint of heart so I will not be offended if you cannot read it. Post-traumatic stress is a term that’s often thrown around lightly but it has serious implications for people who have been in battle for their country, for their lives and against chronic illnesses. Everyday is a minefield with an array of flashbacks and memories that keep us from living our best lives. I urge you all to learn more and to respond to those who…

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    Tina Aswani Omprakash

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    Real Talk about Ostomies

    October 5, 2018

    My Ostomy, My Lifesaver

    October 3, 2019

    Throwback to La Caverna 2006!

    August 30, 2018

Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

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