It’s Sepsis Awareness Month, so I’m discussing what sepsis is and how it is often a complication of inflammatory bowel disease (IBD) and colorectal surgery. According to the World Health Organization (WHO), “sepsis arises when the body’s response to an infection injures its own tissues and organs, potentially leading to death or significant morbidity.” WHO statistics show that more than 30 million people contract sepsis each year, and 6 million die from it. But aside from all these scientific terms and statistics, what is sepsis? To me, sepsis looked and felt like the following: It all started with a 103-degree fever, a high pulse well into the 130s, low blood pressure hovering around…
- advocacy, awareness, Colorectal Surgery, coping with flares, Crohn's, living with IBD, patient rights, Ulcerative Colitis
- acceptance, advocacy, awareness, Colorectal Surgery, coping with flare, Crohn's, living with IBD, Ostomy, patient rights, stigma, Ulcerative Colitis
The Value of Support Groups
In a world where medical professionals have only a few minutes to go over a whole slew of symptoms, medication interactions, and surgical complications, it is impossible to cover the psychosocial aspects of one’s condition(s). These aspects include methods of coping with the emotional roller coaster of living with inflammatory bowel disease (IBD).This is where support groups come into the picture. They fill that gap between doctor-patient interactions and provide real-time support and understanding to patients caught in the rigmarole of hospital visits, health insurance, and invasive testing. But more than this, the true value of support groups lies in empowering patients by fostering lifelong friendships through a deep understanding of…
- acceptance, advocacy, awareness, Crohn's, living with IBD, Ostomy, patient rights, stigma, Ulcerative Colitis
Being Brown and Coming Out of the IBD Closet: The Chronic Illness Experience
***Originally published in Brown Girl Magazine on August 2nd, 2018: https://www.browngirlmagazine.com/2018/08/being-brown-coming-out-ibd-closet/*** Just as soon as he landed from India, a good friend called me, half laughing: “Tina, I know exactly what it feels like to be you now! I’ve had diarrhea for the last three weeks after eating at Elco Market in Mumbai! What do I do?” Another time when I was deathly ill, languishing from anemia, malnutrition and weight loss due to 20-30 bloody bowel movements a day, I remember the aunties ridiculing me. They would cackle behind my back as they proclaimed that I did this to myself. “She must have eaten lots of junk food and drank…
- acceptance, awareness, caregivers, colorectal cancer, coping with flares, Crohn's, Father's Day, living with IBD, patient rights, stigma, Ulcerative Colitis
Honoring My Late Father
(Daddy at his Doctoral Commencement at Columbia University in the ’70s.) This Father’s Day I honor all fathers. I especially honor my father who devoted his life to the sciences and to his family. He toiled endlessly until the very last minute working until he couldn’t anymore all to ensure his wife and daughters could get by without him. Not a day goes by that I don’t wonder how much better life would have been if he could have lived to see his girls all grown up. ? His battle with Crohn’s and later colorectal cancer may have taken his life but he has become my inspiration to fight incessantly for my…
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Coming Out of My IBD Closet as a Desi Woman
Every single year the Crohn’s and Colitis Foundation chooses a local Adult Honored Hero who shares his/her story and is honored at the Take Steps Walk in the spring. And every single year I attend the New York City walk, raise awareness and funds to help find treatments and someday a cure for these awful diseases. I bring my friends and my family together along with the Foundation’s Women’s Support Group so they can see that we patients don’t suffer alone, that many folks from all walks of life have been through hell and back at a young age. And every single year, one of my closest girlfriends has tears…
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A Day on the Hill: Putting a Face on IBD Legislation
As I walked up the steps toward Capitol Hill, the realization finally struck: I was really doing this. I was really lobbying for better healthcare legislation for patients like myself. More than 100 volunteers and I had traveled from all over the country to Washington, D.C., as part of the Crohn’s & Colitis Foundation’s Day on the Hill program (DOH). And we all shared one mission: to bring our stories forward to advocate for improvements in legislation for all of us suffering from inflammatory bowel disease (IBD). (Courtesy of Tina Aswani Omprakash) This was the first time I had lobbied for anything, let alone for IBD. I was nervous and excited…