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Own Your Crohn's

Empowering the Chronically Ill & Disabled to Lead Fuller Lives

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  • Colorectal Surgery,  coping with flares,  Crohn's,  IBD Parenthood Project,  living with IBD,  Mental Health,  Mother's Day,  Ostomy,  Pregnancy in IBD,  Ulcerative Colitis,  Women's Health

    ~OYC Trailblazers~ Brandi’s Journey into Motherhood with a Redone J-Pouch

    May 12, 2019

    By Brandi Fliegel I was 22 years old when I went to the emergency room for the first time. I had extreme stomach pain and couldn’t stop going to the bathroom. They told me I had a stomach virus and sent me home with some Imodium. Then the bleeding started. I went to a different hospital and after further testing, they diagnosed me with ulcerative colitis. I didn’t really understand the disease at the time. I just knew I had to take medications to combat inflammation in the gut everyday. Then the flare-ups began and I would end up back in the hospital. I would go on steroids and then…

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    Tina Aswani Omprakash

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    Real Talk About Recovery

    December 16, 2021

    Fistulas: What You Need to Know About a Common Side Effect of Crohn’s

    May 17, 2019

    Why My IBD Scars Make Me Proud

    May 23, 2019
  • advocacy,  Colorectal Surgery,  coping with flares,  Crohn's,  Diet,  Emerging Therapies,  Fistulizing Disease,  living with IBD,  Mental Health,  Minority Health,  Ostomy,  stigma,  Ulcerative Colitis,  Women's Health

    The Impact of IBD on Racial & Ethnic Minorities

    April 24, 2019

    On Tuesday, April 23rd, 2019, in honor of National Minority Health Month, Dr. Aline Charabaty (Director of Johns Hopkins IBD Center), Brooke Abbott (Patient Advocate, Crazy Creole Mommy Chronicles) & I (Patient Advocate, Own Your Crohn’s) had the honor of speaking with the Crohn’s & Colitis Foundation on the very important topic of “The Impact of IBD on Racial & Ethnic Minorities.” Please view the Crohn’s & Colitis Foundation’s video below: If you are a man or woman of color living with inflammatory bowel disease (IBD), please know you are NOT alone. We are all here to support you through your journey. More is and will be done to tend…

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    Tina Aswani Omprakash

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    My Health Became My Top Priority

    April 16, 2019

    No More Secrets: An enlightening film that reveals the stigma of having an ostomy in India

    September 24, 2018

    12 News to Your Health IBD Segment

    June 23, 2018
  • acceptance,  advocacy,  awareness,  Colorectal Surgery,  coping with flares,  Crohn's,  Fistulizing Disease,  living with IBD,  Mental Health,  Ostomy,  Pelvic pain,  Self-image,  stigma,  Ulcerative Colitis,  Women's Health

    My Health Became My Top Priority

    April 16, 2019

    **Originally published in Health Central on April 10th, 2019** CHAPTER 1 Crashing Down When I first began having inflammatory bowel disease (IBD) symptoms in 2005, I had just graduated college, started my first job, and I gotten out of a difficult relationship. And then, to top it off, I was diagnosed with ulcerative colitis (UC). I was at the top of my game, and everything just came crashing down in the blink of an eye. I had also just started my master’s in financial management, but, after the diagnosis, I couldn’t complete it. With a new career on Wall Street, I took a break from my graduate education to focus on…

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    Tina Aswani Omprakash

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    The Waiting Game

    June 30, 2018

    All of these exceptional women have won awards this year for their public advocacy efforts

    October 16, 2018

    Lilly Singh’s ‘Choli Ke Peeche Kya Hai?’: My Anthem for Body Positivity

    April 1, 2019
  • acceptance,  advocacy,  awareness,  Body Positivity,  Crohn's,  Fistulizing Disease,  living with IBD,  Mental Health,  Ostomy,  Self-image,  stigma,  Ulcerative Colitis

    Lilly Singh’s ‘Choli Ke Peeche Kya Hai?’: My Anthem for Body Positivity

    April 1, 2019

    I still remember when the racy Bollywood song, “Choli Ke Peeche Kya Hai?” (Hindi: What’s Behind the Saree Blouse?), teased South Asian household television sets and AM/FM radios (yes, those used to be a thing). I was barely 10 years old and even though I couldn’t get enough of the song’s hypnotic beat, I felt tingling shame every time I heard its lyrics. So when Lilly Singh (a/k/a iiSuperwomanii), Punjabi-Canadian LGBTQ YouTube star and soon-to-be late-night TV show host, released her rap remake of “Choli Ke Peeche Kya Hai?” last week, I nearly fell off my chair. She didn’t just remake a Bollywood classic; she recreated a spectacle made for…

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    Tina Aswani Omprakash

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    “I Had an Ostomy—and It Changed My Life”

    December 11, 2019

    Crohn’s & Colitis Awareness Week: Minorities, Mental Health & IBD

    December 9, 2018

    Ostomy Awareness Day: Empowering Ostomates to Live Fuller Lives

    November 22, 2019
  • acceptance,  advocacy,  awareness,  Colorectal Surgery,  coping with flares,  Crohn's,  living with IBD,  Mental Health,  Ostomy,  Ulcerative Colitis

    OYC Trailblazers: What Healing Means to Natasha

    March 26, 2019

    By Natasha Weinstein My name is Natasha and I have Crohn’s Disease. I was diagnosed at the age of 11 after years of mild disease activity and extraintestinal manifestations (joint pains, random fevers and stunted growth). It was only when my disease became severe with rectal bleeding and vomiting that I was given a proper diagnosis. Following diagnosis, I went through years of failed medications, endless hospitalizations, 2 pediatric gastroenterologists and multiple surgeons. Last month I underwent my 10th surgery. You read that right: TENTH. I have hit double digits, two full hands, big kid status. My abdomen is growing up. To get technical about this most recent surgery, I…

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    Tina Aswani Omprakash

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    My Ostomy, My Lifesaver

    October 3, 2019

    The Other Side of Crohn’s: Caregiving

    December 9, 2019
  • advocacy,  awareness,  colorectal cancer,  Colorectal Surgery,  Crohn's,  Fistulizing Disease,  living with IBD,  Mental Health,  Ostomy,  stigma,  Ulcerative Colitis

    The Top 10 IBD Blogs to Follow in 2019

    March 15, 2019

    Discussing bowel movements is undoubtedly a taboo subject for many people, which has helped a stigma form around Inflammatory Bowel Disease (IBD). For people living with IBD, most commonly in the form of Crohn’s Disease or Ulcerative Colitis, ‘embarrassment’, ‘shame’, and ‘isolation’ are regularly used words to describe the emotional strain that accompanies the physical symptoms of their condition. These bloggers, each excelling in particular areas, write openly and honestly about the realities of life with IBD. In doing so, they are helping create a community that offers support, raise awareness that helps tackle the stigma, and provide practical tips for various walks of life. Top IBD Blogs for Real…

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    Tina Aswani Omprakash

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    Clinical Trials: The Next Frontier for Diverse Populations of IBD Patients

    July 31, 2019

    J-Pouch Failure – Tina’s Story

    June 15, 2019

    Real Talk About Fistulae

    January 19, 2019
  • advocacy,  Crohn's,  Fistulizing Disease,  living with IBD,  Mental Health,  Ostomy,  stigma,  Ulcerative Colitis

    My Perianal Disease Feature at Crohn’s & Colitis Congress 2019

    March 2, 2019

    As many of you may have seen on my social media accounts this last month, Crohn’s & Colitis Congress is a premier conference that discusses all the latest breakthroughs in inflammatory bowel disease. I had the honor of taking part in one of the breakout sessions called Management of Complicated IBD: Perianal Disease. During this panel discussion, I shared my experiences with perianal fistulizing Crohn’s Disease and the psychosocial toll it wreaked on my entire being as a woman, as a professional and as a wife. As terrifying as sharing my horrific experience with perianal disease was, it was absolutely validating and felt like a huge weight off my shoulders.…

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    Tina Aswani Omprakash

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    Inspire’s #KeepUsAllSafe COVID-19 Campaign

    April 12, 2020

    “I Had an Ostomy—and It Changed My Life”

    December 11, 2019

    Lilly Singh’s ‘Choli Ke Peeche Kya Hai?’: My Anthem for Body Positivity

    April 1, 2019
  • advocacy,  awareness,  Crohn's,  Diet,  Emerging Therapies,  Fistulizing Disease,  living with IBD,  Mental Health,  Nutrition,  Ostomy,  Ulcerative Colitis

    5 Hot Topics Presented at Crohn’s & Colitis Congress 2019

    February 27, 2019

    I had the honor of attending the 2019 Crohn’s & Colitis Congress in Las Vegas, NV as a patient advocate and speaker on the Perianal Fistulizing Crohn’s Disease panel. From diet and nutrition to mental health and pregnancy in IBD, here are the most salient topics presented at the conference this year for us patients: https://www.oshihealth.com/crohns-congress-2019/ Originally published by Oshi Health, Inc., on February 26th, 2019. Written by Tina Aswani Omprakash Medically reviewed by Matthew Hamilton, MD  Please feel free to leave comments and feedback. I would love to hear your thoughts as always.

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    Tina Aswani Omprakash

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Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

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