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Empowering the Chronically Ill & Disabled to Lead Fuller Lives

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  • Blog
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  • SAIA-IBDesis
  • Testimonials
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  • Ableism,  acceptance,  advocacy,  awareness,  caregivers,  Colorectal Surgery,  Crohn's,  Dating & Relationships,  Disability Justice,  Fistulizing Disease,  living with IBD,  Ostomy,  stigma,  Ulcerative Colitis,  Women's Health

    Love Knows No Disability

    July 2, 2019

    Nine years ago today, the love of my life, Anand, and I were married in a beautiful Hindu temple with several of our relatives and friends in attendance from all over the world. It was a momentous occasion for me not just in a traditional sense but because of how close I had been to death just two years prior. But as beautiful as the wedding was, the process of getting married wasn’t exactly a fairytale or a bed of roses. You see, a couple years prior, I was freed of an extremely warped and diseased colon on the 4th of July, 2008 (see blog post: My Very Own Independence…

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    Tina Aswani Omprakash

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    My Feature in Suffering the Silence’s Photo Series Campaign

    October 6, 2019

    University Accommodations in the COVID-19 Era

    September 7, 2020

    I am NOT a Burden: A South Asian Perspective

    July 1, 2020
  • advocacy,  awareness,  caregivers,  Crohn's,  living with IBD,  Mental Health,  Minority Health,  Ulcerative Colitis

    Happy World IBD Day from Digestive Disease Week (DDW)!

    May 22, 2019

    Last weekend, a number of us celebrated World IBD Day from DDW in San Diego, CA. We advocates sat in sessions and conferences brainstorming the best ways in which to address the gaps in IBD care and bring those ideas forward to doctors leading the quest to improve our care. We discussed so many topics from mental health to support and caregiving in addition to sexual health and intimacy. We talked to Drs. Aline Charabaty & Neilanjan Nandi about how to take those topics forward to the larger community and have the tough conversations with our own providers. All in all, we, as a team, collaborated to bring together a…

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    Tina Aswani Omprakash

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    How a clinical trial helped this Crohn’s advocate finally reach remission

    November 24, 2019

    MC Capital T Reppin’ from the BK Walk!

    June 25, 2018

    Ostomy Awareness Day: Empowering Ostomates to Live Fuller Lives

    November 22, 2019
  • acceptance,  advocacy,  awareness,  caregivers,  coping with flares,  hydration,  living with IBD,  Ulcerative Colitis

    OYC Trailblazers: Celebrating Melissa’s J-Pouch-versary

    February 25, 2019

    And February’s OYC Trailblazer is…wait for it…Melissa “Mush” Willner! This month marks one year since Melissa had her ostomy reversed and her j-pouch became fully functional. So what better time than now to have Melissa share her story? Here goes nothing…  Ulcerative Colitis has been a part of my life for over 20 years now.  I first learned of my diagnosis at the age of 7 in the 2nd grade. While my young mind was preoccupied with stickers and Rugrats, I was also learning about colonoscopies and mesalamines. My sleepovers were interrupted by enemas and I took my first doses of mesalamine crushed up in my bowls of Cocoa Pebbles.…

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    Tina Aswani Omprakash

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    My Feature During Crohn’s & Colitis Awareness Week

    November 8, 2018

    ~ OYC Trailblazers ~ Amy & Terrell: Crohn-ically Ever After

    September 23, 2020

    My Pelvic Pain Story

    October 26, 2018
  • awareness,  caregivers,  Crohn's,  living with IBD,  Ulcerative Colitis

    Caregivers: The Greatest Blessing of All

    December 7, 2018

    As we wrap up Crohn’s & Colitis Awareness Week, I reflect on the greatest blessing of all in my IBD journey: my caregivers, my dear mother and husband. From the constant rides into the city for doctors’ visits to packing wounds and changing PICC line dressings while helping me walk and shower after surgery, Mom, you picked me up when I was at my lowest points in life. From driving me to Cleveland Clinic and flying me to Mayo Clinic for surgery while spending countless sleepless nights in the hospital, Anand, you stood by my side when society told you you could have done better. Many of our IBD journeys…

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    Tina Aswani Omprakash

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    OYC Trailblazers: Celebrating Melissa’s J-Pouch-versary

    February 25, 2019

    My Feature in Suffering the Silence’s Photo Series Campaign

    October 6, 2019

    The Value of Support Groups

    August 26, 2018
  • acceptance,  awareness,  caregivers,  colorectal cancer,  coping with flares,  Crohn's,  Father's Day,  living with IBD,  patient rights,  stigma,  Ulcerative Colitis

    Honoring My Late Father

    June 17, 2018

    (Daddy at his Doctoral Commencement at Columbia University in the ’70s.) This Father’s Day I honor all fathers. I especially honor my father who devoted his life to the sciences and to his family. He toiled endlessly until the very last minute working until he couldn’t anymore all to ensure his wife and daughters could get by without him. Not a day goes by that I don’t wonder how much better life would have been if he could have lived to see his girls all grown up. ? His battle with Crohn’s and later colorectal cancer may have taken his life but he has become my inspiration to fight incessantly for my…

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    Tina Aswani Omprakash

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    Accepting My Crohn’s Disease to Finally Become Me

    January 15, 2024

    OYC Trailblazers: What Healing Means to Natasha

    March 26, 2019

    TINA ASWANI OMPRAKASH | 2018 NYC ADULT HONORED HERO

    April 20, 2018

Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

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