Blog – Page 10 – Own Your Crohn's

acceptance, advocacy, awareness, Colorectal Surgery, Crohn's, living with IBD, Mental Health, Minority Health, Ostomy, Ulcerative Colitis, Women's Health

~OYC Trailblazers~ Mollie’s Story: Living la Vida Latina with Ulcerative Colitis & an Ostomy

September 27, 2019

By Mollie Tinnin My journey with chronic illness began my senior year of high school after a violent assault left me hospitalized with life-threatening injuries. At the time, I received eight units of blood and during the treatment of the injuries I had sustained, the physicians discovered I had ulcers in my intestines. The treatment of both these injuries and my ulcerative colitis have been complicated in that they both are intertwined and affect each other even until this day. I’ve tried several medications, such as Mesalamine, but with the scar tissue and the ulcers both being in the same location, medication has not been very effective for me. Surgically,…

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Tina Aswani Omprakash

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My 9/11 Story: Paying Kindness Forward

September 11, 2019

I still remember that beautiful sunny Tuesday morning. I had just moved into the city and started my freshman year at NYU Stern School of Business a little over 2 weeks prior. I remember being in the shower getting ready for class when I heard my roommate scream, “Tina, come out here!” Half asleep still and hair soaked, I sauntered over to her television. She pointed in utter shock at the screen showing the first tower up in flames after being hit by a plane. I stood there lifeless in shock watching the breaking news unable to register that this had happened a mile and half south of me. Soon…

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Tina Aswani Omprakash

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OYC Trailblazers: An Ode to My Father & Fellow IBD Warrior
January 30, 2019

Crohn’s & Colitis Awareness Week: Minorities, Mental Health & IBD
December 9, 2018

Day on the Hill 2019: The Faces of IBD Legislation
May 11, 2019
acceptance, awareness, Body Positivity, Colorectal Surgery, coping with flares, Crohn's, Dating & Relationships, Egg-Freezing, J-Pouch, living with IBD, Ostomy, Pregnancy in IBD, Ulcerative Colitis, Women's Health

~OYC TRAILBLAZERS~ Katie’s Story: Baby-Making Prospects & Egg-Freezing with a J-Pouch

September 4, 2019

A Nursing Student Tells OYC Her J-Pouch Story and How That Led to Her Courageous Decision to Freeze Her Eggs to Someday Have Children. By Katie Gene Friedman When I was first diagnosed with ulcerative colitis in my senior year of college, my colitis responded to medication and didn’t take up much of my life. Consequently, I only disclosed my diagnosis to my then boyfriend, best friend, and immediate family. During a bad flare and particularly stressful semester in grad school studying social psychology, that group expanded to include the nucleus of my social circle and some professors. At that point, my disease affected what I was doing but not…

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Tina Aswani Omprakash

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I’m Chronically Ill & Depressed; So What?
June 3, 2019

Brown Girl with Guts: Tina’s Journey with Crohn’s Disease
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Crohn’s & Colitis Awareness Week: Minorities, Mental Health & IBD
December 9, 2018
acceptance, advocacy, awareness, coping with flares, Crohn's, Gastroparesis, Ostomy

When Diagnoses Accumulate: My Gastroparesis Story

August 29, 2019

As Gastroparesis Awareness Month is coming quickly to a close, I thought it high time to share my story. As many of you know, I was diagnosed in June with a form of digestive tract paralysis (DTP), specifically gastroparesis, via antroduodenal manometry and a gastric emptying study. And let me just say, this diagnosis was one of the toughest pills I’ve had to swallow in recent years. Not because I hadn’t known that some kind of DTP diagnosis was in the works but because I was blindsided by the resurgence of Crohn’s along with small bowel dysmotility on top of the gastroparesis. And it knocked me down and it wore…

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Tina Aswani Omprakash

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OYC Trailblazers: Celebrating Melissa’s J-Pouch-versary
February 25, 2019

Real Talk About Fistulae
January 19, 2019

An IBS Journey: Tina
April 21, 2019
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Weekend Long IBD Retreat Helped Me to Own My Crohn’s

August 24, 2019

Everyday Health blogger Tina Aswani Omprakash details her experience on a weekend-long retreat for women living with IBDs.

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Tina Aswani Omprakash

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OstomyConnection SPOTLIGHT: Dr. Harikesh Buch works to shatter stigma and improve post-surgery care for ostomates in India.
January 24, 2019

No More Secrets: An enlightening film that reveals the stigma of having an ostomy in India
September 24, 2018
awareness, Colorectal Surgery, coping with flares, Crohn's, Fistulizing Disease, Irritable Bowel Syndrome, living with IBD, Pelvic Floor Dysfunction, Pelvic pain, stigma, Ulcerative Colitis, Women's Health

Pelvic Pain in IBD: An Overlooked Complication

August 9, 2019

By Tina Aswani Omprakash, Medically Reviewed by Jenny Blair, MD Originally Published by Oshi Health, Inc., on August 8th, 2019 A complication of inflammatory bowel disease (IBD) that often goes unaddressed and misdiagnosed is chronic pelvic pain (CPP). CPP is often defined as pain in the pelvic area that isn’t cyclic and isn’t related to pregnancy and that lasts for three to six months. It may affect from 6% to 25% of reproductive-age women, depending on how it’s defined, as well as men and older women. The condition can arise from a variety of causes. How I’ve Experienced Pelvic Pain So how does CPP apply to us as IBD patients?…

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Tina Aswani Omprakash

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~OYC TRAILBLAZERS~ Katie’s Story: Baby-Making Prospects & Egg-Freezing with a J-Pouch
September 4, 2019

The Healio Disruptive Innovator Award: Moving the Needle on IBD Care
November 16, 2019

Owning My Crohn’s Mindfully This New Year
January 5, 2019
advocacy, awareness, Crohn's, Lobbying, patient rights, Ulcerative Colitis

Summer of Activism: IBD Advocates You Should Follow on Social Media

August 7, 2019

Originally published by Amber Tresca on August 6th, 2019: http://aboutibd.com/2019/08/06/summer-of-activism-ibd-advocates-you-should-follow-on-social-media/ Improving the quality of life for people with inflammatory bowel disease (IBD) takes commitment and focus to understanding the issues affecting patients and caregivers. Real change means engaging with all stakeholders, including physicians, industry, and government, as well as patients and caregivers. A future that includes more effective treatments and compassionate care for those touched by IBD will only happen when those who have the best interests of patients at heart take their seat at the table. There are many activists in the IBD community that are doing this hard work and you can strengthen their achievements by amplifying their…

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Tina Aswani Omprakash

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I’m Chronically Ill & Depressed; So What?
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advocacy, awareness, Clinical Trials, Crohn's, living with IBD, Ulcerative Colitis

Clinical Trials: The Next Frontier for Diverse Populations of IBD Patients

July 31, 2019

According to U.S. Census expert and demographer, William H. Frey, approximately half the U.S. population will be non-Caucasian come 2045.[i] Of the total U.S. population, less than ten percent participate in clinical trials. And the number of racial and ethnic minorities partaking is an even smaller number, approximately five to fifteen percent of those who participate in clinical trials.[ii] As a woman of color living with Crohn’s Disease, I advocate for various marginalized communities (racial and ethnic minorities, LGBTQ+, etc.) suffering from chronic illnesses and disabilities. To me, the above data on clinical trials isn’t just an important set of numbers. These statistics are crucial for our future and become…

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Tina Aswani Omprakash

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~OYC Trailblazers~ Anisha Zumba-ing Her Way into 2021!
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My Nomination for the WEGO Health Patient Advocacy Awards

July 21, 2019

In the last few weeks, I was nominated for 6 different WEGO Health Awards in honor of my advocacy work for patients who suffer from inflammatory bowel disease (IBD): Patient Leader Hero, Best Advocacy for Another, Best in Show: Blog, Best in Show: Facebook, Best in Show: Twitter and Rookie of the Year. Now many of you might be wondering why I advocate. I advocate because we all deserve representation no matter the color of our skin, shape or size of our bodies, our gender, our sexual orientation or our ability (or lack thereof). ✊? We all deserve representation for our illnesses and disabilities. And our conditions and the way we…

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Tina Aswani Omprakash

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~OYC Trailblazers~ Harman’s Story from India

July 10, 2019

By Harman Singh Randhawa My battle with ulcerative colitis began in 2003. I was 20 years old and in my 2nd year of studying Engineering. By the time the diagnosis came through, I had already lived with pain and inordinate trips to bathroom for more than 6 months. Ignoring my painful symptoms and the discomfort that came with it, I kept delaying getting a thorough checkup. I started experiencing bloody diarrhea for many days. Finally, it was my sister who decided that the situation had gotten out of hand and drove me to PGI Hospital in Chandigarh in Punjab, India. I underwent a few tests and when the blood test…

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Tina Aswani Omprakash

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