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Own Your Crohn's

Empowering the Chronically Ill & Disabled to Lead Fuller Lives

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  • acceptance,  advocacy,  awareness,  coping with flares,  Crohn's,  living with IBD,  Mental Health,  stigma,  Ulcerative Colitis,  Women's Health

    I’m Chronically Ill & Depressed; So What?

    June 3, 2019

    You might be looking at this photo and thinking, “Oh, Tina looks like she’s having a great time enjoying beautiful weather in the park.” Can you tell an hour before this photo was taken, hubs struggled to get me to leave our home? Can you tell I had been curled up in bed crying? Can you tell it was next to impossible for me to get myself ready and out of bed that afternoon? NOPE. The truth is photos on social media and the Internet, in general, can be so deceiving. What you see here is a woman with Crohn’s and 37520572 other ailments smiling in a park because that’s…

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    Tina Aswani Omprakash

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    A Valentine’s Day Special: Dating & Relationships with an Ostomy

    February 25, 2020

    The Waiting Game

    June 30, 2018

    “I Had an Ostomy—and It Changed My Life”

    December 11, 2019
  • acceptance,  awareness,  Colorectal Surgery,  coping with flare,  Crohn's,  living with IBD,  Ostomy,  stigma,  Ulcerative Colitis

    Metamorphosis

    August 13, 2018

    This past weekend marked 3 years since my series of surgeries at the Mayo Clinic in Minnesota. That trial was my greatest test to date. 3 surgeries back to back to clean out remnants of j-pouch, rectum and anal sphincter that left behind a wound the size of a small football. From daunting saltwater whirlpools, Jackson-Pratt drains, Hydrogen Peroxide flushes into my pelvis, a wound VAC and procedures under sedation every other day to clean out the wound. I was on 6 different painkillers and I was barely hanging on for life. In the months prior, I had drains galore, one from my back down my leg with a bag…

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    Tina Aswani Omprakash

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    All of these exceptional women have won awards this year for their public advocacy efforts

    October 16, 2018

    Day on the Hill 2019: The Faces of IBD Legislation

    May 11, 2019

    The Waiting Game

    June 30, 2018
  • acceptance,  coping with flares,  Crohn's,  living with IBD,  Ostomy,  Ulcerative Colitis

    The Waiting Game

    June 30, 2018

    Does nail-biting anxiety wash over you as you await results after a colonoscopy, MRI, or CT scan? Or restlessness while waiting for your latest round of biologics to start kicking in? Yeah, me too. I sit here today twiddling my thumbs endlessly as I await my ileoscopy and upper endoscopy biopsies from last week. This form of anxiety is all part of the waiting game. We patients live in constant agony while test results are pending, especially when a definitive diagnosis depends on those results. We worry as we take dose after dose of the latest round of immunosuppressants, earnestly hoping that this medication will be “it” — remission, finally. These feelings…

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    Tina Aswani Omprakash

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    No More Secrets: An enlightening film that reveals the stigma of having an ostomy in India

    September 24, 2018

    My 9/11 Story: Paying Kindness Forward

    September 11, 2019

    The Beauty of Ostomates Worldwide

    October 17, 2019

Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

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