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  • Crohn's,  Cultural Stigma,  extraintestinal manifestations,  feeding tube,  Healthcare Disparities,  living with IBD,  Minority Health,  Nutrition,  Stigma,  Women's Health,  World IBD Day

    Madhura’s Journey in India: Coping with Stigma around IBD & Feeding Tubes

    May 16, 2021

    My name is Madhura Balasubramaniam and I live in India. I have been locked in battle with my intestines for as long as I can remember. I spent a large part of my early childhood dealing with constant spells of stomach pain, diarrhea, vomiting and rashes. I struggled to meet my height and weight targets and had multiple nutritional deficiencies. When I was 10 years old, I was given a tentative diagnosis of celiac disease and I have been gluten-free since. While this diet seemed to provide pain relief, I remained underweight and anaemic.  In mid-2018, I began to experience occasional bouts of watery diarrhea and fatigue. I was travelling…

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    Tina Aswani Omprakash

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    A Valentine’s Day Special: Dating & Relationships with an Ostomy

    February 25, 2020

    Sophia’s Chronic Illness Journey: Forced Switching to Biosimilars in Canada

    December 15, 2019

    An Interview with News 12 NJ: How Does Coronavirus Affect YOU?

    April 6, 2020
  • Ableism,  Colorectal Surgery,  Crohn's,  fistula,  Mental Health,  Minority Health,  Ostomy,  stigma,  Ulcerative Colitis,  Women's Health,  World IBD Day

    What IBD Awareness Means to a South Asian American Woman with Crohn’s

    June 17, 2020

    By Tina Aswani Omprakash Originally published in IBD Relief on May 18th, 2020: https://www.ibdrelief.com/ibd-stories/my-ibd-story-tina-aswani-omprakash I remember waking up from a surgery to repair a rectovaginal fistula in late 2011 and being yelled at by an elderly family member for ruining their lives. Even though I was still in a haze in the recovery room, the tears of pain and anguish washed over me. Whether it was my body violating me with perianal fistulizing Crohn’s disease or family and friends constantly reminding me of how much of a burden I was, the floodgates opened in that moment as I asked that family member to please excuse themselves from the recovery area. You see, it’s really…

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    Tina Aswani Omprakash

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    Inspire’s #KeepUsAllSafe COVID-19 Campaign

    April 12, 2020

    What Will People Think? ~A Short Documentary by Chealynn Feaster

    December 27, 2019

    University Accommodations in the COVID-19 Era

    September 7, 2020
  • acceptance,  advocacy,  awareness,  Caregiving,  Crohn's,  Dating & Relationships,  Minority Health,  stigma,  Ulcerative Colitis,  World IBD Day

    World IBD Day Panel Discussion: Experiences of Minority IBD Patients & Caregivers

    May 23, 2020

    By Anand Omprakash For World IBD Day, I was invited to be a part of a virtual panel discussion with the Crohn’s & Colitis Foundation, Dr. Meena Bewtra (IBD patient & gastroenterologist) and Stephanie Stinson (IBD patient) highlighting the unique struggles that minority patients and caregivers face.  I did this because I wanted to shed light upon the stigmas surrounding chronic illness in my community, especially so when it comes to a bowel disease and to marriage. In many communities around the world, a chronic illness is often viewed as a liability because marriage is considered as a familial “contract” to provide and reproduce and not just a means to provide…

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    Tina Aswani Omprakash

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    Step in Our Shoes: A Discussion on Being an Ally to the Black Community

    June 20, 2020

    I am NOT a Burden: A South Asian Perspective

    July 1, 2020

    Accepting My Crohn’s Disease to Finally Become Me

    January 15, 2024
  • awareness,  coping with flares,  Crohn's,  living with IBD,  Mental Health,  stigma,  Ulcerative Colitis,  World IBD Day

    ~OYC Trailblazers~ Harman’s Story from India

    July 10, 2019

    By Harman Singh Randhawa My battle with ulcerative colitis began in 2003. I was 20 years old and in my 2nd year of studying Engineering. By the time the diagnosis came through, I had already lived with pain and inordinate trips to bathroom for more than 6 months. Ignoring my painful symptoms and the discomfort that came with it, I kept delaying getting a thorough checkup. I started experiencing bloody diarrhea for many days. Finally, it was my sister who decided that the situation had gotten out of hand and drove me to PGI Hospital in Chandigarh in Punjab, India. I underwent a few tests and when the blood test…

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    Tina Aswani Omprakash

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    The Beauty of Ostomates Worldwide

    October 17, 2019

    Real Talk About Fistulae

    January 19, 2019

    Being South Asian American & Living with IBD

    February 9, 2021
  • acceptance,  awareness,  Body Positivity,  Colorectal Surgery,  Crohn's,  Fistulizing Disease,  living with IBD,  Mental Health,  Ostomy,  Self-image,  Ulcerative Colitis,  Women's Health,  World IBD Day

    Why My IBD Scars Make Me Proud

    May 23, 2019

    How I learned to love what once made me shudder. By Tina Aswani Omprakash Originally published by Everyday Health on 5/17/2019: https://www.everydayhealth.com/columns/my-health-story/why-my-ibd-scars-make-me-proud/ This year’s World IBD Day theme is “Making the Invisible Visible,” and I’ve been taking a long hard look at what that means to me. The reality is that living with inflammatory bowel disease (IBD) has meant donning an invisibility cloak for most of my adult life. But over the past 14 months, I’ve striven to make my invisible illness visible. From sharing my story widely on social media to using my platform to educate others on how IBD wreaks havoc on patients like me, I’ve come to realize that visibility is necessary for…

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    Tina Aswani Omprakash

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    OYC Trailblazers: Celebrating Melissa’s J-Pouch-versary

    February 25, 2019

    Edgar Flores opens up about surviving near-death and the challenges of living with an ostomy in Mexico

    November 4, 2018

    My Feature During Crohn’s & Colitis Awareness Week

    November 8, 2018

Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

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