Ulcerative Colitis – Page 8 – Own Your Crohn's

Ableism, acceptance, advocacy, awareness, Body Positivity, colorectal cancer, Colorectal Surgery, coping with flares, Crohn's, living with IBD, Ostomy, Ostomy Awareness Day, Self-image, stigma, Ulcerative Colitis

The Beauty of Ostomates Worldwide

October 17, 2019

Happy #OstomyOctober, everyone! After doing a piece about things we can do with an ostomy last year, it only seemed appropriate this year to highlight how diverse the population living with all types of ostomies is. Just to backtrack, many of you might be wondering what an ostomy is. According to the United Ostomy Associations of America (UOAA), “ostomy surgery is a life-saving procedure that allows bodily waste to pass through a surgically created stoma on the abdomen into a prosthetic known as a ‘pouch’ or ‘ostomy bag’ on the outside of the body.” There are generally three types of ostomies: (1) colostomy, (2) ileostomy and (3) urostomy. A colostomy takes a resected…

Read More

Tina Aswani Omprakash

Related Posts

Disability Awareness in the Midst of Coronavirus
March 12, 2020

What IBD Awareness Means to a South Asian American Woman with Crohn’s
June 17, 2020

Inspire’s #KeepUsAllSafe COVID-19 Campaign
April 12, 2020
Ableism, acceptance, advocacy, awareness, Body Positivity, Colorectal Surgery, Crohn's, Fistulizing Disease, living with IBD, Minority Health, Ostomy, Ostomy Awareness Day, stigma, Ulcerative Colitis

My Feature in Suffering the Silence’s Photo Series Campaign

October 6, 2019

Originally Published in The Mighty on October 2nd, 2019: https://themighty.com/2019/10/suffering-the-silence-chronic-illness-photo-series/ “I was diagnosed 13.5 years ago but I feel like for a long time I kept it quiet. It’s so deeply stigmatized in American culture. Crohn’s being a bowel disease makes it very difficult to talk about. It has to do with something that nobody talks about. It’s so debilitating. A lot of times it’s mistaken for an eating disorder because our weight can be all over the place so nobody wants to ask us what’s going on because they’re ashamed to. We want to be asked how we’re feeling. Since I became an advocate, more and more people are…

Read More

Tina Aswani Omprakash

Related Posts

What Will People Think? ~A Short Documentary by Chealynn Feaster
December 27, 2019

I am NOT a Burden: A South Asian Perspective
July 1, 2020

Indian Ostomate Podcast Show: Episode 1 with Tina Aswani Omprakash
July 23, 2020
acceptance, advocacy, awareness, Body Positivity, Colorectal Surgery, Crohn's, Gratitude, living with IBD, Ostomy, Ostomy Awareness Day, Self-image, stigma, Ulcerative Colitis

My Ostomy, My Lifesaver

October 3, 2019

In honor of National Ostomy Awareness Day, blogger Tina Aswani Omprakash shares her journey with an ostomy and how she broke through the taboos she faced. By Tina Aswani Omprakash Originally published in Everyday Health on October 2, 2019: https://www.everydayhealth.com/columns/my-health-story/one-woman-shares-her-gratitude-on-world-ostomy-day/ I woke up from surgery feeling like someone had taken a hammer to my stomach. The strong smell of antiseptic assaulted my nose as I struggled to take in breaths of air. I cracked my eyes open and looked around my white hospital room. My nurse and her aide pulled back the curtain separating me from my roommate and I lay motionless as they transferred me from a stretcher to…

Read More

Tina Aswani Omprakash

Related Posts

IBD Awareness Week Line-Up: Diversity, Mental Health & More!
December 1, 2018

As a Chronically-Ill Brown Woman, Here’s Why I Share My Survival Story
May 16, 2019

Love Knows No Disability
July 2, 2019
acceptance, advocacy, awareness, Colorectal Surgery, Crohn's, living with IBD, Mental Health, Minority Health, Ostomy, Ulcerative Colitis, Women's Health

~OYC Trailblazers~ Mollie’s Story: Living la Vida Latina with Ulcerative Colitis & an Ostomy

September 27, 2019

By Mollie Tinnin My journey with chronic illness began my senior year of high school after a violent assault left me hospitalized with life-threatening injuries. At the time, I received eight units of blood and during the treatment of the injuries I had sustained, the physicians discovered I had ulcers in my intestines. The treatment of both these injuries and my ulcerative colitis have been complicated in that they both are intertwined and affect each other even until this day. I’ve tried several medications, such as Mesalamine, but with the scar tissue and the ulcers both being in the same location, medication has not been very effective for me. Surgically,…

Read More

Tina Aswani Omprakash

Related Posts

Allowing Acceptance In
November 21, 2018

As a Chronically-Ill Brown Woman, Here’s Why I Share My Survival Story
May 16, 2019

When Diagnoses Accumulate: My Gastroparesis Story
August 29, 2019
acceptance, awareness, Body Positivity, Colorectal Surgery, coping with flares, Crohn's, Dating & Relationships, Egg-Freezing, J-Pouch, living with IBD, Ostomy, Pregnancy in IBD, Ulcerative Colitis, Women's Health

~OYC TRAILBLAZERS~ Katie’s Story: Baby-Making Prospects & Egg-Freezing with a J-Pouch

September 4, 2019

A Nursing Student Tells OYC Her J-Pouch Story and How That Led to Her Courageous Decision to Freeze Her Eggs to Someday Have Children. By Katie Gene Friedman When I was first diagnosed with ulcerative colitis in my senior year of college, my colitis responded to medication and didn’t take up much of my life. Consequently, I only disclosed my diagnosis to my then boyfriend, best friend, and immediate family. During a bad flare and particularly stressful semester in grad school studying social psychology, that group expanded to include the nucleus of my social circle and some professors. At that point, my disease affected what I was doing but not…

Read More

Tina Aswani Omprakash

Related Posts

My Feature in Suffering the Silence’s Photo Series Campaign
October 6, 2019

My Health Became My Top Priority
April 16, 2019

An IBS Journey: Tina
April 21, 2019
advocacy, awareness, Body Positivity, coping with flares, Crohn's, Diet, J-Pouch, living with IBD, Ostomy, Pelvic Floor Dysfunction, Self-image, Ulcerative Colitis, Women's Health

Weekend Long IBD Retreat Helped Me to Own My Crohn’s

August 24, 2019

Everyday Health blogger Tina Aswani Omprakash details her experience on a weekend-long retreat for women living with IBDs.

Read More

Tina Aswani Omprakash

Related Posts

As a Chronically-Ill Brown Woman, Here’s Why I Share My Survival Story
May 16, 2019

When Diagnoses Accumulate: My Sjögren’s Story
April 13, 2022

Immunocompromised in the Age of Coronavirus
May 1, 2020
awareness, Colorectal Surgery, coping with flares, Crohn's, Fistulizing Disease, Irritable Bowel Syndrome, living with IBD, Pelvic Floor Dysfunction, Pelvic pain, stigma, Ulcerative Colitis, Women's Health

Pelvic Pain in IBD: An Overlooked Complication

August 9, 2019

By Tina Aswani Omprakash, Medically Reviewed by Jenny Blair, MD Originally Published by Oshi Health, Inc., on August 8th, 2019 A complication of inflammatory bowel disease (IBD) that often goes unaddressed and misdiagnosed is chronic pelvic pain (CPP). CPP is often defined as pain in the pelvic area that isn’t cyclic and isn’t related to pregnancy and that lasts for three to six months. It may affect from 6% to 25% of reproductive-age women, depending on how it’s defined, as well as men and older women. The condition can arise from a variety of causes. How I’ve Experienced Pelvic Pain So how does CPP apply to us as IBD patients?…

Read More

Tina Aswani Omprakash

Related Posts

Weekend Long IBD Retreat Helped Me to Own My Crohn’s
August 24, 2019

About IBD Podcast #40 – Tina Aswani Omprakash’s Story: What Are People Going to Think?
April 10, 2019

Owning My Crohn’s Mindfully This New Year
January 5, 2019
advocacy, awareness, Crohn's, Lobbying, patient rights, Ulcerative Colitis

Summer of Activism: IBD Advocates You Should Follow on Social Media

August 7, 2019

Originally published by Amber Tresca on August 6th, 2019: http://aboutibd.com/2019/08/06/summer-of-activism-ibd-advocates-you-should-follow-on-social-media/ Improving the quality of life for people with inflammatory bowel disease (IBD) takes commitment and focus to understanding the issues affecting patients and caregivers. Real change means engaging with all stakeholders, including physicians, industry, and government, as well as patients and caregivers. A future that includes more effective treatments and compassionate care for those touched by IBD will only happen when those who have the best interests of patients at heart take their seat at the table. There are many activists in the IBD community that are doing this hard work and you can strengthen their achievements by amplifying their…

Read More

Tina Aswani Omprakash

Related Posts

5 Hot Topics Presented at Crohn’s & Colitis Congress 2019
February 27, 2019

My 9/11 Story: Paying Kindness Forward
September 11, 2019

TINA ASWANI OMPRAKASH | 2018 NYC ADULT HONORED HERO
April 20, 2018
advocacy, awareness, Clinical Trials, Crohn's, living with IBD, Ulcerative Colitis

Clinical Trials: The Next Frontier for Diverse Populations of IBD Patients

July 31, 2019

According to U.S. Census expert and demographer, William H. Frey, approximately half the U.S. population will be non-Caucasian come 2045.[i] Of the total U.S. population, less than ten percent participate in clinical trials. And the number of racial and ethnic minorities partaking is an even smaller number, approximately five to fifteen percent of those who participate in clinical trials.[ii] As a woman of color living with Crohn’s Disease, I advocate for various marginalized communities (racial and ethnic minorities, LGBTQ+, etc.) suffering from chronic illnesses and disabilities. To me, the above data on clinical trials isn’t just an important set of numbers. These statistics are crucial for our future and become…

Read More

Tina Aswani Omprakash

Related Posts

Bachatera with a Bag: Theodora Shattering Ostomy Stigma Through Dance
April 27, 2021

Sepsis Is a Severe, Life-threatening Complication for IBD Patients
September 22, 2018

Don’t Forget Your Flu Shot This Fall
October 21, 2018
advocacy, awareness, Crohn's, Disability Justice, Ulcerative Colitis

My Nomination for the WEGO Health Patient Advocacy Awards

July 21, 2019

In the last few weeks, I was nominated for 6 different WEGO Health Awards in honor of my advocacy work for patients who suffer from inflammatory bowel disease (IBD): Patient Leader Hero, Best Advocacy for Another, Best in Show: Blog, Best in Show: Facebook, Best in Show: Twitter and Rookie of the Year. Now many of you might be wondering why I advocate. I advocate because we all deserve representation no matter the color of our skin, shape or size of our bodies, our gender, our sexual orientation or our ability (or lack thereof). ✊? We all deserve representation for our illnesses and disabilities. And our conditions and the way we…

Read More

Tina Aswani Omprakash

Related Posts

OYC Trailblazers: An Ode to My Father & Fellow IBD Warrior
January 30, 2019

Crohn’s & Colitis Awareness Week: Minorities, Mental Health & IBD
December 9, 2018

All of these exceptional women have won awards this year for their public advocacy efforts
October 16, 2018