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  • acceptance,  advocacy,  Arab American Heritage Month,  awareness,  coping with flares,  Crohn's,  Cultural Stigma,  diversity,  living with IBD,  Mental Health,  Minority Health,  National Minority Health Month,  Ulcerative Colitis,  Women's Health

    Basmah’s Journey: The Cultural Impacts of Being an Egyptian Crohnie

    April 18, 2021

    “You have Crohn’s Disease.” That’s what my gastroenterologist told me after my first colonoscopy in 2003. I was 16 years old, and nobody in my family, except for my mom who is a doctor, had heard of the disease.For the last 18 years, I have experienced multiple hospitalizations, taken a plethora of medications, and contended with related symptoms and illnesses such as extreme weight loss, loss of hair, C. difficile, osteoporosis, and blood clots. I am a child of immigrants from Egypt, and grew up in a tightly knit Arab Muslim community in Minnesota. I absolutely loved it (still do) when we all got together for picnics, holidays, and gatherings.…

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    Tina Aswani Omprakash

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    Owning My Crohn’s Mindfully This New Year

    January 5, 2019

    Step in Our Shoes: A Discussion on Being an Ally to the Black Community

    June 20, 2020

    IBD Awareness Week Line-Up: Diversity, Mental Health & More!

    December 1, 2018
  • acceptance,  advocacy,  awareness,  coping with flares,  Crohn's,  diversity,  living with IBD,  Mental Health,  Minority Health,  stigma,  Ulcerative Colitis,  Women's Health

    ~OYC Trailblazers~ Anisha Zumba-ing Her Way into 2021!

    January 28, 2021

    This blog post has been done in collaboration with Girls With Guts Community Connection. By Anisha Gangotra My name is Anisha, I’m 37 years old and I live in Buckinghamshire in the United Kingdom. I’ve lived with ulcerative colitis since 2008, from the age of 24. I experienced my first colitis symptoms following a two-week holiday abroad. My stomach hadn’t felt quite right but I’d also had my period when I was on holiday so I assumed that it was a mixture of jet lag, my body adjusting to a different environment and my menstrual cycle. I’ve always had a sensitive stomach so I didn’t think much of it. When…

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    Tina Aswani Omprakash

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    The Value of Support Groups

    August 26, 2018

    Love Knows No Disability

    July 2, 2019

    No More Secrets: An enlightening film that reveals the stigma of having an ostomy in India

    September 24, 2018
  • Crohn's,  Healthcare Disparities,  living with IBD,  Mental Health,  Minority Health,  Ulcerative Colitis

    Patients’ Journey Through Inflammatory Bowel Disease (IBD): A Qualitative Study

    January 24, 2021

    Tina Aswani Omprakash, Norelle Reilly, Jan Bhagwakar, Jeanette Carrell, Kristina Woodburn, Abby Breyer, Frances Close, Gabriel Wong, PATIENTS’ JOURNEY THROUGH INFLAMMATORY BOWEL DISEASE (IBD): A QUALITATIVE STUDY, Inflammatory Bowel Diseases, Volume 27, Issue Supplement_1, January 2021, Pages S53–S54, https://doi.org/10.1093/ibd/izaa347.127 **Abstract originally published in the Crohn’s & Colitis Foundation’s journal Inflammatory Bowel Diseases on January 21st, 2021 and presented at Crohn’s & Colitis Congress. Research study sponsored by Genentech & led by patient advocate Tina Aswani Omprakash of Icahn School of Medicine at Mount Sinai** I’m proud to announce the first patient advocate led study in the IBD space! Please view the above downloadable poster and link to the abstract for the results…

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    Tina Aswani Omprakash

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    “I Had an Ostomy—and It Changed My Life”

    December 11, 2019

    The Value of Support Groups

    August 26, 2018

    In the Name of Science & Research

    June 25, 2019
  • Body Positivity,  cervical cancer,  Dating & Relationships,  diversity,  Mental Health,  Minority Health,  Ostomy,  Self-image,  stigma,  Women's Health

    ~OYC Trailblazers~ Jennylyn’s Ostomy Love Story in the Philippines

    October 30, 2020

    My name is Jennylyn Ajes and I’m 32 years old from Laguna, Phillippines. In 2018, I was diagnosed with stage 2b cervical cancer, which means I had a tumor that had grown beyond the cervix and uterus.[1] During this time, I had undergone chemotherapy, radiation therapy and brachytherapy. I had to do these therapies for 5 months total and none of it was easy. The brachytherapy required internal radiation therapy to get to the source of the cancer and try to wipe it out. I felt fine for the first 3 months after treatment but I really struggled with my confidence losing most of my hair and eyebrows due to…

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    Tina Aswani Omprakash

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    ~OYC TRAILBLAZERS~ Katie’s Story: Baby-Making Prospects & Egg-Freezing with a J-Pouch

    September 4, 2019

    My Feature in Suffering the Silence’s Photo Series Campaign

    October 6, 2019

    My Ostomy, My Lifesaver

    October 3, 2019
  • Ableism,  advocacy,  Coronavirus,  COVID-19,  Crohn's,  disability accommodations,  Disability Justice,  Gastroparesis,  invisible illness,  living with IBD,  Mental Health,  Ulcerative Colitis

    University Accommodations in the COVID-19 Era

    September 7, 2020

    The last few weeks have felt daunting and overwhelming as I’ve been battling intense floods of illness and considering whether or not to resume graduate school part-time again this fall. You see, even contemplating a graduate program was a huge undertaking for me a couple years ago when I was accepted into a Certificate of Public Health program. As I slowly mustered up the courage to transfer into the Master’s in Public Health program, I felt scared yet hopeful all at once. And in between it all, I’ve had to take a trimester off to tend to my health.  But all that aside, now we are in the midst of a…

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    Tina Aswani Omprakash

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    Indian Ostomate Podcast Show: Episode 1 with Tina Aswani Omprakash

    July 23, 2020

    What Will People Think? ~A Short Documentary by Chealynn Feaster

    December 27, 2019

    The Beauty of Ostomates Worldwide

    October 17, 2019
  • Coronavirus,  COVID-19,  Crohn's,  immunocompromised,  living with IBD,  Mental Health,  Ostomy,  Ulcerative Colitis

    How to Vacation (or Staycation) Safely During the Pandemic

    August 14, 2020

    **CAUTION: ONLY TRAVEL WITH THE ADVICE OF YOUR PHYSICIAN AND IF PANDEMIC NUMBERS ARE LOW IN YOUR AREA & THE LOCATION IN WHICH YOU ARE TRAVELING. PUBLIC HEALTH & WELFARE IS EVERYONE’S RIGHT & RESPONSIBILITY** Being chronically ill and immunocompromised is hard enough, add a pandemic into the mix, and it feels impossible to get out and do the things you love. Particularly for those of us who have spent so much time in hospital beds or at home recovering from disease flare-ups and/or surgeries, that when we feel well, we want to seize the day. Seizing that moment though has been next to impossible during the COVID-19 era. This…

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    Tina Aswani Omprakash

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    South Asian IBD & COVID-19

    January 26, 2021

    COVID-19 Survivors: Stories of Hope in the IBD World

    May 7, 2020

    Gaurav’s Covid-19 Journey as a Crohn’s Patient in India

    June 11, 2021
  • advocacy,  Colorectal Surgery,  Crohn's,  fistula,  Fistulizing Disease,  J-Pouch,  Mental Health,  Minority Health,  Ostomy,  Self-image,  stigma,  Ulcerative Colitis,  Women's Health

    FitWitMD’s Live Discussion on Perianal Fistulizing Crohn’s Disease

    August 7, 2020

    A couple weeks ago, esteemed IBD specialist, Dr. Neilanjan Nandi (@fitwitmd) of Penn Medicine, hosted a live discussion with me on my experiences around Perianal Fistulizing Crohn’s Disease. We opened up the discussion to an international audience and allowed for a Q&A on this very deeply stigmatized topic that’s often not discussed or understood very well. To view the video, please watch here: I have been very open about my struggles with multiple fistulae in female parts. I have lived with 5 rectovaginal fistulae and 1 pelvic transphinteric fistula that was headed to break through at the site of my tailbone, nearly paralyzing me. To read more about my experiences,…

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    Tina Aswani Omprakash

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    Step in Our Shoes: A Discussion on Being an Ally to the Black Community

    June 20, 2020

    6 Myths About IBD in Minority Patients, Busted

    December 20, 2018

    World IBD Day Panel Discussion: Experiences of Minority IBD Patients & Caregivers

    May 23, 2020
  • Ableism,  Colorectal Surgery,  Crohn's,  fistula,  Mental Health,  Minority Health,  Ostomy,  stigma,  Ulcerative Colitis,  Women's Health,  World IBD Day

    What IBD Awareness Means to a South Asian American Woman with Crohn’s

    June 17, 2020

    By Tina Aswani Omprakash Originally published in IBD Relief on May 18th, 2020: https://www.ibdrelief.com/ibd-stories/my-ibd-story-tina-aswani-omprakash I remember waking up from a surgery to repair a rectovaginal fistula in late 2011 and being yelled at by an elderly family member for ruining their lives. Even though I was still in a haze in the recovery room, the tears of pain and anguish washed over me. Whether it was my body violating me with perianal fistulizing Crohn’s disease or family and friends constantly reminding me of how much of a burden I was, the floodgates opened in that moment as I asked that family member to please excuse themselves from the recovery area. You see, it’s really…

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    Tina Aswani Omprakash

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    My Feature in Suffering the Silence’s Photo Series Campaign

    October 6, 2019

    The Beauty of Ostomates Worldwide

    October 17, 2019

    Inspire’s #KeepUsAllSafe COVID-19 Campaign

    April 12, 2020
  • acceptance,  advocacy,  coping with flares,  Crohn's,  fistula,  Gastroparesis,  invisible illness,  living with IBD,  Mental Health,  Ostomy,  PTSD,  stigma,  Ulcerative Colitis

    Talking Gut Podcast Episode 20: Tina Aswani Omprakash on Resilience & GRITT

    May 30, 2020

    As May, a month of several health initiatives, comes to a close, I wanted to highlight Mental Health Awareness Month, World IBD Day and World Digestive Disease Day by talking about all three in my latest podcast interview with Dr. Jim Kantidakis, Clinical Psychologist & Gut-Directed Hypnotherapist, at the Gut Centre in Australia. In his podcast titled Talking Gut, I discuss the power of resilience, that so-called grit that living with Crohn’s Disease, multiple fistulae, a permanent ileostomy, gastroparesis, IBS and SIBO have given me over the years. Dr. Kantidakis asks me how I got through all my hospitalizations and faced all the medical PTSD and I would have to…

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    Tina Aswani Omprakash

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    I am NOT a Burden: A South Asian Perspective

    July 1, 2020

    My 9/11 Story: Paying Kindness Forward

    September 11, 2019

    OYC Trailblazers: Celebrating Melissa’s J-Pouch-versary

    February 25, 2019
  • advocacy,  Coronavirus,  COVID-19,  Crohn's,  immunocompromised,  living with IBD,  Mental Health,  Ulcerative Colitis

    Immunocompromised in the Age of Coronavirus

    May 1, 2020

    By Tina Aswani Omprakash A Crohn’s patient shares her very real fears, anxieties, and sadness around being immunocompromised while grappling with the coronavirus pandemic in New York City. *Originally published on April 27th, 2020 by Everyday Health: https://www.everydayhealth.com/columns/my-health-story/immunocompromised-in-the-age-of-coronavirus/ It was one of those winters full of never-ending health complications. Before Thanksgiving I ruptured a ligament in my ankle, which compounded my difficulties in managing life with Crohn’s disease. And if that wasn’t hard enough, many of my other conditions — gastroparesis, arthritis, pelvic pain — flared up due to immobility from the ankle injury. More recently, I had a couple of ER visits because of a herniated disc in my neck. In…

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    Tina Aswani Omprakash

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    University Accommodations in the COVID-19 Era

    September 7, 2020

    Sophia’s Chronic Illness Journey: Forced Switching to Biosimilars in Canada

    December 15, 2019

    FitWitMD’s Live Discussion on Perianal Fistulizing Crohn’s Disease

    August 7, 2020
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  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

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