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  • Asian American Pacific Islander Month,  autoimmune disease,  coping with flares,  Cultural Stigma,  diversity,  living with IBD,  Minority Health,  Ulcerative Colitis,  Women's Health

    Demi’s Journey: Coming Out with Ulcerative Colitis as a Filipino Woman

    May 3, 2021

    I sat on the toilet for the tenth time that day, clueless about what was going on inside of me. For the past seven months, I had been experiencing episodes of bloody diarrhea and had yet to be diagnosed. My ass was spewing blood and I was worried that I am losing a lot of it. I thought to myself: if I were back home in the Philippines, I would probably hear someone say “Baka kinulam ka” (“Someone probably hexed you”). Filipinos, although predominantly Catholic, have their share of beliefs – both superstitious and supernatural. Kulam, a form of folk magic, is one of them.  I turned 40 three months ago and…

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    Tina Aswani Omprakash
  • advocacy,  autoimmune disease,  Colorectal Surgery,  Crohn's,  Dating & Relationships,  Gastroparesis,  invisible illness,  living with IBD,  Minority Health,  National Minority Health Month,  Ostomy,  Ulcerative Colitis,  Women's Health

    Bachatera with a Bag: Theodora Shattering Ostomy Stigma Through Dance

    April 27, 2021

    Elegance, beauty, confidence, and rhythm: these are some words used to describe a female Latin dancer. Chemistry, passion, sensuality: these often come to mind when describing or watching a Latin dance couple. Each genre of dance comes with its own culture. Dance shoes, music and certain beats accompany each genre and of course, that exists within bachata, a form of dance I love to practice. Nationally and internationally, people congregate to study, perform and/or socially dance the bachata together and there is absolutely nothing quite like it! Being a bachatera (a female bachata dancer), and 50% of a bachata dance partnership with my husband Marcos, I am fortunate to experience…

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    Tina Aswani Omprakash

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    Coping with IBD & Stress & Anxiety Around COVID-19

    April 1, 2020

    My Nomination for the WEGO Health Patient Advocacy Awards

    July 21, 2019

    Disability Awareness in the Midst of Coronavirus

    March 12, 2020
  • autoimmune disease,  Black Lives Matter,  Caregiving,  Coronavirus,  Crohn's,  Dating & Relationships,  J-Pouch,  living with IBD,  Minority Health,  Ulcerative Colitis,  Women's Health

    Taryn’s Journey: Navigating Relationships and IBD During the Pandemic

    April 1, 2021

    “I think I might be at the start of a partial obstruction.  What do I do?” The words I shared with my husband in late March 2020 weren’t rhetorical.  It was more like I dropped a mini bomb into an already stressful situation. Even though I’ve had a series of partial bowel obstructions over the years, this time felt different. We were at the beginning of the pandemic.  At a time when merely stepping  outside seemed dangerous, a trip to the ER felt terrifying. In that moment, I was asking for much more than just advice.  I wanted – no, needed  – reassurance that regardless of what was happening with…

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    Tina Aswani Omprakash

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    What I’ve Learned About Starting an Advanced Therapy for Crohn’s Disease

    March 2, 2024

    Receiving the COVID-19 Vaccine as a Patient with Several Autoimmune Conditions

    March 22, 2021

    When Diagnoses Accumulate: My Sjögren’s Story

    April 13, 2022
  • autoimmune disease,  awareness,  Coronavirus,  COVID-19,  Crohn's,  immunocompromised,  living with IBD,  Minority Health,  Ostomy,  Ulcerative Colitis,  Vaccinations

    Receiving the COVID-19 Vaccine as a Patient with Several Autoimmune Conditions

    March 22, 2021

    I recently received both doses of the Pfizer-BioNTech COVID-19 vaccine! Many folks have been asking about my stance on it and what my experiences with it have been. First of all, I want to be clear – in line with the guidance shared by the International Organization for the Study of Inflammatory Bowel Diseases, I am without any doubt a supporter of vaccination against COVID especially as a student of public health who has learned about the immense significance of vaccines in curbing pandemics. I believe this pandemic has taken far too many lives (~500K just in the U.S.) and I think that the potential for overarching complications of contracting…

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    Tina Aswani Omprakash

    Related Posts

    Accepting My Crohn’s Disease to Finally Become Me

    January 15, 2024

    How to Own Your Crohn’s & Ostomy While Traveling to India

    February 18, 2025

    When Diagnoses Accumulate: My Sjögren’s Story

    April 13, 2022
Newer Posts 

Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

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