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Own Your Crohn's

Empowering the Chronically Ill & Disabled to Lead Fuller Lives

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  • acceptance,  advocacy,  Colorectal Surgery,  coping with flares,  Coronavirus,  COVID-19,  Crohn's,  fistula,  Fistulizing Disease,  immunocompromised,  living with IBD,  Minority Health,  Ostomy,  stigma,  Ulcerative Colitis

    ~OYC TRAILBLAZERS~ Spotlight on Malaysian Crohnie & Ostomate Saravanan

    April 22, 2020

    It all started in early 2008 when I was still in high school and started to experience bowel disease symptoms. However, as many of us know, there can be a large gap between the time we experience symptoms and the time we are officially diagnosed. I was finally diagnosed with Crohn’s disease in July 2012. The four and half years in between onset of symptoms and diagnosis were the most arduous part of my journey. My battle began upon developing a fistula. For those who may not be familiar, a fistula is an abnormal tract created between the intestinal wall and another organ or out on to the skin due…

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    Tina Aswani Omprakash

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    October 5, 2018

    My Feature During Crohn’s & Colitis Awareness Week

    November 8, 2018

    Being Brown and Coming Out of the IBD Closet: The Chronic Illness Experience

    August 7, 2018
  • advocacy,  awareness,  Coronavirus,  COVID-19,  Crohn's,  immunocompromised,  living with IBD,  Ostomy,  Ulcerative Colitis

    Managing IBD in the Era of COVID-19

    April 19, 2020

    Last Friday, Gastroenterologist Dr. Supriya Rao and I had a conversation on Instagram Live about how to manage inflammatory bowel disease given the difficult circumstances around COVID-19. To watch and learn more, please check out the video below: For additional information, please feel free to reach out to @gutsygirlmd on Instagram or me here on my blog. For your reference, I have also put together a summary of tips on how to optimize our use of telehealth during the pandemic to manage our IBD optimally from a distance: https://ownyourcrohns.com/telehealth-ibdcare-covid19/. This post also references guidance from the IOIBD and AGA that we IBD patients should be aware of when discussing our…

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    Tina Aswani Omprakash

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    April 20, 2018

    Ostomy Awareness Day: Empowering Ostomates to Live Fuller Lives

    November 22, 2019

    The Beauty of Ostomates Worldwide

    October 17, 2019
  • advocacy,  Coronavirus,  COVID-19,  Crohn's,  immunocompromised,  J-Pouch,  living with IBD,  Ostomy,  Ulcerative Colitis

    Tips for Telehealth and Managing Your IBD Care During the COVID-19 Pandemic

    April 18, 2020

    One of the things I do a lot as a patient with many chronic illnesses is visit all sorts of healthcare providers for the maintenance of my care. However, during this time, when many non-essential visits to the doctor’s office or to medical facilities are not recommended, what do we do? In the last 6 weeks, many providers have ramped up a service we are now calling telehealth. That is, many doctors are offering virtual visits to us from the convenience of our home. While it isn’t the ideal way to examine a patient, it certainly gets the job sufficiently done for many of us who are struggling to manage…

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    Tina Aswani Omprakash

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    OYC Trailblazers: An Ode to My Father & Fellow IBD Warrior

    January 30, 2019

    As a Chronically-Ill Brown Woman, Here’s Why I Share My Survival Story

    May 16, 2019

    Weekend Long IBD Retreat Helped Me to Own My Crohn’s

    August 24, 2019
  • Ableism,  advocacy,  awareness,  Colorectal Surgery,  Coronavirus,  COVID-19,  Crohn's,  Disability Justice,  immunocompromised,  invisible illness,  living with IBD,  Ostomy,  Ulcerative Colitis

    Inspire’s #KeepUsAllSafe COVID-19 Campaign

    April 12, 2020

    Last week, Inspire released a short video we made virtually on why living with Crohn’s Disease and being immunocompromised during COVID-19 is downright terrifying for patients like myself who are chronically and invisibly ill. Please take a moment to watch this video and share to help raise awareness. And don’t forget – every life is valuable! So please #KeepUsAll safe by practicing social distancing and staying home as much as possible! Be well & best wishes always!

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    Tina Aswani Omprakash

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    June 17, 2020

    My Feature in Suffering the Silence’s Photo Series Campaign

    October 6, 2019
  • advocacy,  awareness,  Coronavirus,  COVID-19,  Crohn's,  Disability Justice,  invisible illness,  living with IBD,  Ulcerative Colitis

    An Interview with News 12 NJ: How Does Coronavirus Affect YOU?

    April 6, 2020

    Earlier today, News 12 NJ journalist Prashanthi Musapet interviewed IBD patient advocate Tina Aswani Omprakash of OwnYourCrohns.com on Instagram LIVE on her experience as an immunocompromised patient living with Crohn’s Disease in the midst of the #COVID19 pandemic. To watch the interview, view the video below. In the video, you will hear Tina’s thoughts and experiences about being #HighRiskCOVID19 and how critical social distancing and taking responsibility for public welfare is during this outbreak to save lives like hers. I hope you found this interview informative and I especially hope that speaking up about being immunocompromised during #Coronavirus helps to create awareness and education in the able-bodied world about chronic…

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    Tina Aswani Omprakash

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    September 11, 2019

    Clinical Trials: The Next Frontier for Diverse Populations of IBD Patients

    July 31, 2019

    5 Hot Topics Presented at Crohn’s & Colitis Congress 2019

    February 27, 2019
  • acceptance,  advocacy,  awareness,  Coronavirus,  COVID-19,  Crohn's,  J-Pouch,  living with IBD,  Mental Health,  Ostomy,  Ulcerative Colitis

    Coping with IBD & Stress & Anxiety Around COVID-19

    April 1, 2020

    Last night I had the honor of doing a Facebook Live with Dr. Tiffany Taft (Psychogastroenterology, Northwestern University) and Amber Tresca (About IBD, IBD Moms) in conjunction with the Crohn’s & Colitis Foundation. We discussed all the emotions around COVID-19 from fear and anxiety to grief and loss and how we can cope best with stay-at-home and social distancing order in light of the challenges being presented to us in recent times. Hope you all found this discussion informative in learning some coping skills around the novel coronavirus (COVID-19) and living with IBD. For additional resources and updates on COVID-19 and IBD, please visit the Crohn’s & Colitis Foundation Coronavirus…

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    Tina Aswani Omprakash

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    February 25, 2019
  • advocacy,  awareness,  colorectal cancer,  Colorectal Surgery,  Crohn's,  living with IBD,  Ostomy,  stigma,  Ulcerative Colitis

    Colon Cancer & Its Devastating Impact on My Family

    March 19, 2020

    I was 8 years old when I walked into my father’s room in the hospital as he laid there coma-stricken in his final days. I told him I had gotten an A on my Science test, hoping in all my innocence that an A would make him so proud that he would wake up from his coma. He passed a few days later and I was heartbroken. My father, Dr. Moti Aswani, had long-standing Crohn’s Disease which turned into stage IV colorectal cancer 13 years into his diagnosis at the age of 37 (see An Ode to My Father & Fellow IBD Warrior). You see, Daddy had been told to…

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    ~OYC Trailblazers~ Anisha Zumba-ing Her Way into 2021!

    January 28, 2021
  • Ableism,  acceptance,  advocacy,  awareness,  crip,  Disability Justice,  invisible illness

    Disability Awareness in the Midst of Coronavirus

    March 12, 2020

    The past 3.5 months I’ve spent much of my existence fairly immobile and mostly homebound: 2.5 weeks in an aircast, 8 weeks in a boot and 4 weeks in an ankle brace. Why? Because of a torn ligament in my ankle. And more recently, I’ve been in a neck brace due to a herniated disc in my neck/back. And now because of the infamous pandemic, Coronavirus. And during this time, I have come to understand the synergies at play within my body. You see, this hasn’t just been a simple ankle or neck injury for my body. They are excruciatingly debilitating on their own and even more so because I…

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    June 17, 2020
  • acceptance,  advocacy,  awareness,  Crohn's,  Dating & Relationships,  living with IBD,  Ostomy,  Self-image,  stigma

    A Valentine’s Day Special: Dating & Relationships with an Ostomy

    February 25, 2020

    A couple weeks ago, Amber Wallace Ogle of Ostomy Diaries and I did a Facebook Live in conjunction with Hollister Incorporated regarding dating, relationships and intimacy with an ostomy. Yes, folks, it is possible and that’s what Amber and I aimed to share–our stories of happiness and heartbreak and how we found lasting love and continue to thrive in our relationships while we live with permanent ostomies. Feel free to check out the video below. Enjoy! So, own your Crohn’s, own your ostomy, and take charge of your relationships and remember that our ostomies are not a flaw. They make us whole again and help us survive what we may…

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  • Crohn's,  extraintestinal manifestations,  invisible illness,  living with IBD,  Ulcerative Colitis

    Extraintestinal Manifestations of IBD: An “Eye” on Episcleritis

    February 2, 2020

    As many of you know, I was recently in Austin, TX, traveling to speak at Crohn’s & Colitis Congress. So, when I landed in Austin, I noticed a tinge of red in my right eye and I was a bit concerned but thought it would go away. You see, the dryness of the flight does sometimes irritate my eyes. But as I spent more and more time in Austin, I realized my eyes were reacting to something in the air with construction dust constantly assaulting my eyes. At this point, I became really alarmed because I knew this could be the beginnings of episcleritis, a form of eye inflammation that…

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Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

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