Skip to content
Own Your Crohn's

Empowering the Chronically Ill & Disabled to Lead Fuller Lives

  • Home
  • Blog
  • About Me
  • Authorships
  • SAIA-IBDesis
  • Testimonials
  • Contact Me
  • Home
  • Blog
  • About Me
  • Authorships
  • SAIA-IBDesis
  • Testimonials
  • Contact Me
  • acceptance,  advocacy,  awareness,  Crohn's,  living with IBD,  Mental Health,  Minority Health,  stigma,  Ulcerative Colitis,  Women's Health

    As a Chronically-Ill Brown Woman, Here’s Why I Share My Survival Story

    May 16, 2019

    I had the honor of attending the 2019 HealtheVoices conference in Dallas, TX, as a patient advocate who was selected to attend from a group of 400+ applicants. Here are my impressions of the conference theme for this year, “A Little Heart Can Do Big Things” from the perspective of a chronically-ill brown patient advocate: https://www.oshihealth.com/my-survival-story/. Originally published by Oshi Health, Inc., on April 29th, 2019. Written by Tina Aswani Omprakash Please feel free to leave comments and feedback. I would love to hear your thoughts as always.

    Read More
    Tina Aswani Omprakash

    Related Posts

    World IBD Day Panel Discussion: Experiences of Minority IBD Patients & Caregivers

    May 23, 2020

    Crohn’s & Colitis Awareness Week: Minorities, Mental Health & IBD

    December 9, 2018

    Indian Ostomate Podcast Show: Episode 1 with Tina Aswani Omprakash

    July 23, 2020
  • Colorectal Surgery,  coping with flares,  Crohn's,  IBD Parenthood Project,  living with IBD,  Mental Health,  Mother's Day,  Ostomy,  Pregnancy in IBD,  Ulcerative Colitis,  Women's Health

    ~OYC Trailblazers~ Brandi’s Journey into Motherhood with a Redone J-Pouch

    May 12, 2019

    By Brandi Fliegel I was 22 years old when I went to the emergency room for the first time. I had extreme stomach pain and couldn’t stop going to the bathroom. They told me I had a stomach virus and sent me home with some Imodium. Then the bleeding started. I went to a different hospital and after further testing, they diagnosed me with ulcerative colitis. I didn’t really understand the disease at the time. I just knew I had to take medications to combat inflammation in the gut everyday. Then the flare-ups began and I would end up back in the hospital. I would go on steroids and then…

    Read More
    Tina Aswani Omprakash

    Related Posts

    IBD Motherhood Unplugged: Womanhood Questioned by Crohn’s Disease

    February 22, 2021

    Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience

    December 4, 2024

    A Gutsy Feeling: Advocating for the Best Care Possible as IBD Patients

    September 18, 2021
  • acceptance,  advocacy,  awareness,  coping with flares,  Crohn's,  Diet,  living with IBD,  Minority Health,  Nutrition,  Women's Health

    Brown Girl with Guts: Tina’s Journey with Crohn’s Disease

    April 30, 2019

    Originally Published by Girls with Guts on April 30th, 2019: https://www.girlswithguts.org/blog/2019/4/30/brown-girl-with-guts-tinas-journey-with-crohns-disease As a woman of color, I’ve struggled from the very beginning with inflammatory bowel disease (IBD). The diagnosis was hard enough to wrap my head around but add the elements of loss of career, loss of personality and ultimately, loss of cultural identity played into a lot of my struggles with managing my brand of IBD. To backtrack, I was diagnosed with ulcerative colitis in 2006. Now, this was by no means a surprising diagnosis for me. My father had died of a virulent form of Crohn’s that became colorectal cancer when I was 8 years old here in…

    Read More
    Tina Aswani Omprakash

    Related Posts

    My 9/11 Story: Paying Kindness Forward

    September 11, 2019

    OYC Trailblazers: Celebrating Melissa’s J-Pouch-versary

    February 25, 2019

    Edgar Flores opens up about surviving near-death and the challenges of living with an ostomy in Mexico

    November 4, 2018
  • advocacy,  Colorectal Surgery,  coping with flares,  Crohn's,  Diet,  Emerging Therapies,  Fistulizing Disease,  living with IBD,  Mental Health,  Minority Health,  Ostomy,  stigma,  Ulcerative Colitis,  Women's Health

    The Impact of IBD on Racial & Ethnic Minorities

    April 24, 2019

    On Tuesday, April 23rd, 2019, in honor of National Minority Health Month, Dr. Aline Charabaty (Director of Johns Hopkins IBD Center), Brooke Abbott (Patient Advocate, Crazy Creole Mommy Chronicles) & I (Patient Advocate, Own Your Crohn’s) had the honor of speaking with the Crohn’s & Colitis Foundation on the very important topic of “The Impact of IBD on Racial & Ethnic Minorities.” Please view the Crohn’s & Colitis Foundation’s video below: If you are a man or woman of color living with inflammatory bowel disease (IBD), please know you are NOT alone. We are all here to support you through your journey. More is and will be done to tend…

    Read More
    Tina Aswani Omprakash

    Related Posts

    A Day on the Hill: Putting a Face on IBD Legislation

    May 26, 2018

    My 9/11 Story: Paying Kindness Forward

    September 11, 2019

    Indian Ostomate Podcast Show: Episode 1 with Tina Aswani Omprakash

    July 23, 2020
  • acceptance,  advocacy,  awareness,  Colorectal Surgery,  coping with flares,  Crohn's,  Fistulizing Disease,  living with IBD,  Mental Health,  Ostomy,  Pelvic pain,  Self-image,  stigma,  Ulcerative Colitis,  Women's Health

    My Health Became My Top Priority

    April 16, 2019

    **Originally published in Health Central on April 10th, 2019** CHAPTER 1 Crashing Down When I first began having inflammatory bowel disease (IBD) symptoms in 2005, I had just graduated college, started my first job, and I gotten out of a difficult relationship. And then, to top it off, I was diagnosed with ulcerative colitis (UC). I was at the top of my game, and everything just came crashing down in the blink of an eye. I had also just started my master’s in financial management, but, after the diagnosis, I couldn’t complete it. With a new career on Wall Street, I took a break from my graduate education to focus on…

    Read More
    Tina Aswani Omprakash

    Related Posts

    Owning My Crohn’s Mindfully This New Year

    January 5, 2019

    Metamorphosis

    August 13, 2018

    Edgar Flores opens up about surviving near-death and the challenges of living with an ostomy in Mexico

    November 4, 2018
  • advocacy,  awareness,  Colorectal Surgery,  Crohn's,  Fistulizing Disease,  living with IBD,  Minority Health,  Ostomy,  stigma,  Ulcerative Colitis,  Women's Health

    About IBD Podcast #40 – Tina Aswani Omprakash’s Story: What Are People Going to Think?

    April 10, 2019

    Listen to About IBD’s Podcast #40: What Are People Going to Think? Shared via Amber Tresca’s podcast and blog, About IBD   People who live with Crohn’s disease and ulcerative colitis experience stigma because of their inflammatory bowel disease (IBD). The taboo topic of bowel disease can permeate all aspects of a person’s life, especially when there are cultural influences also at play. Tina Aswani Omprakash, who lives with Crohn’s disease and a permanent ileostomy, shares her story of personal empowerment and how she is working to help other people with IBD live their lives with confidence. Tina describes how IBD has profoundly affected her family as well as why…

    Read More
    Tina Aswani Omprakash

    Related Posts

    A Gutsy Feeling: Advocating for the Best Care Possible as IBD Patients

    September 18, 2021

    My Nomination for the WEGO Health Patient Advocacy Awards

    July 21, 2019

    The Top 10 IBD Blogs to Follow in 2019

    March 15, 2019
Newer Posts 

Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

Sign Up for New Blog Posts!

Please follow & like us :)

Facebook
fb-share-icon
Twitter
Follow Me
Post on X
LinkedIn
Instagram

Top Posts & Pages

  • Key Takeaways from Crohn’s & Colitis Congress 2023
    Key Takeaways from Crohn’s & Colitis Congress 2023
  • ~OYC Trailblazers~ Mara Living Her Best Life with a Kock Pouch in Germany
    ~OYC Trailblazers~ Mara Living Her Best Life with a Kock Pouch in Germany
  • ~OYC Trailblazers~ Tanya's Pregnancy Journey Living with Crohn's Disease in India
    ~OYC Trailblazers~ Tanya's Pregnancy Journey Living with Crohn's Disease in India
  • When Diagnoses Accumulate: My Sjögren's Story
    When Diagnoses Accumulate: My Sjögren's Story
  • 7 Tips for Traveling With IBD, From Someone Who Gets It
    7 Tips for Traveling With IBD, From Someone Who Gets It

Clinical Trial Finder

Copyright ©2018-2024 Tina Aswani Omprakash. All Rights Reserved.
Savona Theme by Optima Themes