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Own Your Crohn's

Empowering the Chronically Ill & Disabled to Lead Fuller Lives

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  • Authorships
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  • Testimonials
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  • Biosimilars,  Crohn's,  health insurance,  living with IBD,  Patient Voice,  Ulcerative Colitis,  Women's Health

    Key Takeaways from Advances in IBD (AIBD) 2024

    January 5, 2025

    By Tina Aswani-Omprakash & Natalie Hayden **This article has also been published on Natalie’s blog: Lights, Camera, Crohn’s ** As two bloggers and patient thought leaders in the IBD community, we were thrilled and honored to attend and speak at the Advances in IBD conference in December 2024 in Orlando, Florida. In the article below, we come together to summarize key learnings for our IBD patient and caregiver community. Management of Crohn’s Disease Crohn’s can be a very progressive disease, meaning it can worsen over time and cause complications, often leading to fistulae, strictures, and therefore surgery and bowel loss. In a debate between two of the co-chairs, Dr. Miguel Regueiro…

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    Tina Aswani Omprakash

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    Sophia’s Chronic Illness Journey: Forced Switching to Biosimilars in Canada

    December 15, 2019
  • Colorectal Surgery,  Crohn's,  Digital Healthcare Innovations,  health equity,  Healthcare Disparities,  living with IBD,  Patient Voice,  Ulcerative Colitis

    Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience

    December 4, 2024

    By: Madhura Balasubramaniam, Sharan Khela & Tina Aswani-Omprakash Our patient advocate team, SAIA’s IBDesis, were honoured to participate in the American College of Gastroenterology’s (ACG) Annual Scientific Meeting in Philadelphia, PA, USA, between October 25th to October 30th, 2024. As patient advocates, we are grateful for the opportunity to learn about the latest advancements in the IBD and GI space more broadly. Here are some of our key takeaways from the conference! Understanding the Treatment Landscape (Madhura Balasubramaniam) Dr. Miguel Regueiro provided a comprehensive overview of the various therapies available today to treat IBD and their safety profile, as illustrated by the safety pyramid: It is very heartening for us…

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    Tina Aswani Omprakash

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    ~OYC TRAILBLAZERS~ Spotlight on Malaysian Crohnie & Ostomate Saravanan

    April 22, 2020

    Sepsis Is a Severe, Life-threatening Complication for IBD Patients

    September 22, 2018

    ~OYC Trailblazers~ Mara Living Her Best Life with a Kock Pouch in Germany

    December 7, 2020
  • Crohn's,  health equity,  Healthcare Disparities,  living with IBD,  Ostomy,  Patient Voice,  Stigma,  Ulcerative Colitis,  Women's Health

    SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

    November 18, 2024

    SAIA is honoured to announce that Tina Aswani-Omprakash, MPH, is now our full-time Chief Executive Officer 🎉🎉 Written by Madhura Balasubramaniam, Sharan Khela, Dr. Neilanjan Nandi & SAIA’s Board of Directors Tina is a patient advocate and thought leader par excellence, with several years of experience in spearheading international health advocacy efforts within and beyond the GI space. Tina’s work with Own Your Crohn’s has been groundbreaking for communities of colour, especially the South Asian community, where discussions around inflammatory bowel disease (IBD) have historically been clouded by cultural stigmas and misconceptions. Tina brought to light and underscored these hidden cultural considerations that shape healthcare for communities of colour across the world.…

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    Tina Aswani Omprakash

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    Day on the Hill 2019: The Faces of IBD Legislation

    May 11, 2019

    My Perianal Disease Feature at Crohn’s & Colitis Congress 2019

    March 2, 2019

    Incredible Innovations: A Brand New Wireless IBD Medication Delivery Solution

    February 18, 2021
  • Caregiving,  Crohn's,  Cultural Stigma,  Family Planning,  IBD Parenthood Project,  invisible illness,  living with IBD,  Motherhood,  Nutrition,  Patient Voice,  Pregnancy in IBD,  Ulcerative Colitis,  Women's Health

    ~OYC Trailblazers~ Tanya’s Pregnancy Journey Living with Crohn’s Disease in India

    November 5, 2022

    Written by Tanya Manohar My name is Tanya, and I live in Chennai, India. I was diagnosed with Crohn’s disease in 1999, a time when little was known about IBD in India. This means that I have segments of intestinal narrowing and scarring throughout my small intestine known as strictures caued by Crohn’s. I had one small bowel resection in 2009. A treatment regimen, comprising Azathioprine and Mesalamine, was the cocktail my Gastroenterologist Dr. Ashok Chacko prescribed to treat my Crohn’s. In combination with a restricted and closely monitored low-fiber diet, this regimen has kept me fairly stable. It has allowed me to live alone in a foreign country, pursue…

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    Tina Aswani Omprakash

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    World IBD Day Panel Discussion: Experiences of Minority IBD Patients & Caregivers

    May 23, 2020

    Gaurav’s Covid-19 Journey as a Crohn’s Patient in India

    June 11, 2021

    ~ OYC Trailblazers ~ Amy & Terrell: Crohn-ically Ever After

    September 23, 2020
  • advocacy,  Crohn's,  diversity,  Gastroparesis,  health equity,  Healthcare Disparities,  Healthcare Marketing,  living with IBD,  Patient Voice,  Ulcerative Colitis,  Women's Health

    MM&M Transform Talks: Prioritizing the Patient Voice

    September 20, 2020

    I recently had the opportunity to work with the MM&M Transform conference on a panel discussion on Prioritizing the Patient Voice in anticipation of their conference on September 29th-30th. A panel of 3 of us patient advocates (Tonya Cherie Hegamin, Type 1 Diabetes; Teresa Johnson, Multiple Sclerosis & Heart Disease; and me, Crohn’s Disease & Gastroparesis) discussed why it’s so important to engage patients in healthcare discussions, from digital health to biotechnology and pharmaceuticals. At the forefront of our conversation was a topic near and dear to all 3 of us: diversity, inclusion and health equity as well as medical accessibility for patients of color like ourselves. Check out our…

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    Tina Aswani Omprakash

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    7 Tips for Traveling With IBD, From Someone Who Gets It

    July 1, 2022

    Managing IBD in the Era of COVID-19

    April 19, 2020

    Ostomy Awareness Day: Empowering Ostomates to Live Fuller Lives

    November 22, 2019

Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

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Top Posts & Pages

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