Ostomy – Page 5 – Own Your Crohn's

acceptance, advocacy, awareness, Clinical Trials, Crohn's, living with IBD, Ostomy, Ulcerative Colitis

How a clinical trial helped this Crohn’s advocate finally reach remission

November 24, 2019

Originally published on November 22, 2019 on Antidote’s website Like many people living with Crohn’s disease, Tina Aswani Omprakash had trouble finding a treatment that would send her symptoms into remission. After trying many of the common Crohn’s treatments on the market, she still wasn’t getting a response. She also had developed fistulas: abnormal connections between organs in the digestive tract, typically between one part of the intestines and another. That’s when her doctor suggested she join a clinical trial… To read more of this story, please visit Antidote’s website: https://www.antidote.me/blog/how-a-clinical-trial-helped-this-crohns-advocate-finally-reach-remission As always, I welcome all your thoughts, comments and feedback! Love hearing from you all! ~~LOVE,…

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Tina Aswani Omprakash

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Ostomy Awareness Day: Empowering Ostomates to Live Fuller Lives

November 22, 2019

Last month, Amber Wallace Ogle of Ostomy Diaries & I got together with Hollister, Inc. (a major ostomy manufacturer) to bring our audiences a discussion on how to lead a fuller life with an ostomy. Our aim was to engage viewers from around the world who may be struggling with self-image, body image, family life and relationships with an ostomy. And it was a grand success! We reached nearly 1,500 viewers from over 46 countries and from the feedback received, it was a video that helped many. Here’s to many more conversations like this where we can help ostomates feel less like outcasts and more like the beautiful human beings…

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The Healio Disruptive Innovator Award: Moving the Needle on IBD Care

November 16, 2019

A few weeks ago on Diwali Day, I won the Healio Disruptive Innovator Award for the Patient Voice category at the American College of Gastroenterology’s conference in San Antonio, Texas! This award is presented to the patient advocate who helps move the needle on GI care most in a particular year and whose voice resonates most with the 200 world-renowned doctors part of Healio Gastroenterology. Even though I wasn’t able to travel to Texas for the award ceremony, I’m deeply honored and humbled to be recognized with such a prestigious award. It has been a very long and arduous journey and being able to advocate and help destigmatize inflammatory bowel…

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Patient Experiences with IBD Surgery

November 9, 2019

Last winter, my husband and caregiver, Anand, and I recorded a video with the Crohn’s & Colitis Foundation on what it’s like to have surgery for Crohn’s & ulcerative colitis. We shared my experiences as a patient undergoing colorectal surgery and his experiences as my caregiver. The video was released in the last week or so. To view, check out https://youtu.be/InmqegoP-6c. Be sure to check out the entire video as there are other patient experiences included as well! So own your Crohn’s, own your colitis, and educate yourself on all the treatment options available to you and your loved ones! ?✨ ~~Love, Light & Peace Always~~

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The Beauty of Ostomates Worldwide

October 17, 2019

Happy #OstomyOctober, everyone! After doing a piece about things we can do with an ostomy last year, it only seemed appropriate this year to highlight how diverse the population living with all types of ostomies is. Just to backtrack, many of you might be wondering what an ostomy is. According to the United Ostomy Associations of America (UOAA), “ostomy surgery is a life-saving procedure that allows bodily waste to pass through a surgically created stoma on the abdomen into a prosthetic known as a ‘pouch’ or ‘ostomy bag’ on the outside of the body.” There are generally three types of ostomies: (1) colostomy, (2) ileostomy and (3) urostomy. A colostomy takes a resected…

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My Feature in Suffering the Silence’s Photo Series Campaign

October 6, 2019

Originally Published in The Mighty on October 2nd, 2019: https://themighty.com/2019/10/suffering-the-silence-chronic-illness-photo-series/ “I was diagnosed 13.5 years ago but I feel like for a long time I kept it quiet. It’s so deeply stigmatized in American culture. Crohn’s being a bowel disease makes it very difficult to talk about. It has to do with something that nobody talks about. It’s so debilitating. A lot of times it’s mistaken for an eating disorder because our weight can be all over the place so nobody wants to ask us what’s going on because they’re ashamed to. We want to be asked how we’re feeling. Since I became an advocate, more and more people are…

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My Ostomy, My Lifesaver

October 3, 2019

In honor of National Ostomy Awareness Day, blogger Tina Aswani Omprakash shares her journey with an ostomy and how she broke through the taboos she faced. By Tina Aswani Omprakash Originally published in Everyday Health on October 2, 2019: https://www.everydayhealth.com/columns/my-health-story/one-woman-shares-her-gratitude-on-world-ostomy-day/ I woke up from surgery feeling like someone had taken a hammer to my stomach. The strong smell of antiseptic assaulted my nose as I struggled to take in breaths of air. I cracked my eyes open and looked around my white hospital room. My nurse and her aide pulled back the curtain separating me from my roommate and I lay motionless as they transferred me from a stretcher to…

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~OYC Trailblazers~ Mollie’s Story: Living la Vida Latina with Ulcerative Colitis & an Ostomy

September 27, 2019

By Mollie Tinnin My journey with chronic illness began my senior year of high school after a violent assault left me hospitalized with life-threatening injuries. At the time, I received eight units of blood and during the treatment of the injuries I had sustained, the physicians discovered I had ulcers in my intestines. The treatment of both these injuries and my ulcerative colitis have been complicated in that they both are intertwined and affect each other even until this day. I’ve tried several medications, such as Mesalamine, but with the scar tissue and the ulcers both being in the same location, medication has not been very effective for me. Surgically,…

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A Nursing Student Tells OYC Her J-Pouch Story and How That Led to Her Courageous Decision to Freeze Her Eggs to Someday Have Children. By Katie Gene Friedman When I was first diagnosed with ulcerative colitis in my senior year of college, my colitis responded to medication and didn’t take up much of my life. Consequently, I only disclosed my diagnosis to my then boyfriend, best friend, and immediate family. During a bad flare and particularly stressful semester in grad school studying social psychology, that group expanded to include the nucleus of my social circle and some professors. At that point, my disease affected what I was doing but not…

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When Diagnoses Accumulate: My Gastroparesis Story

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As Gastroparesis Awareness Month is coming quickly to a close, I thought it high time to share my story. As many of you know, I was diagnosed in June with a form of digestive tract paralysis (DTP), specifically gastroparesis, via antroduodenal manometry and a gastric emptying study. And let me just say, this diagnosis was one of the toughest pills I’ve had to swallow in recent years. Not because I hadn’t known that some kind of DTP diagnosis was in the works but because I was blindsided by the resurgence of Crohn’s along with small bowel dysmotility on top of the gastroparesis. And it knocked me down and it wore…

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