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  • colorectal cancer,  Colorectal Surgery,  Coronavirus,  COVID-19,  Crohn's,  immunocompromised,  Ostomy,  Ostomy Awareness Day,  Ulcerative Colitis

    Managing Ostomy Care in the Era of Covid-19

    October 21, 2020

    Many of us with chronic illnesses have struggled throughout this pandemic with accessing timely care. One issue I’ve faced is because of my gastroparesis and other functional gastrointestinal conditions (IBS, SIBO etc.) acting up, my weight has been fluctuating a lot these last several months. As a result, my stoma size has been changing every week or two. With that, I’ve suffered a lot of ostomy leaks but even more skin irritation. While I’ve worked with my ostomy nurse virtually the last couple months to get my skin issues under control, I keep thinking of my ostomate family online and how you all may be handling your ostomy care in…

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    Tina Aswani Omprakash

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    December 1, 2018
  • Colorectal Surgery,  Crohn's,  Diet,  living with IBD,  Nutrition,  Ostomy,  Ostomy Awareness Day,  Ulcerative Colitis

    IFFGD #DDHChat: Nutrition for the Ileostomy – The Dietitian & Patient Perspectives

    October 18, 2020

    The Diet & Digestive Health (#DDHChat) Twitter chat series with the International Foundation for Gastrointestinal Disorders (IFFGD), co-host Tina Aswani Omprakash and lead host dietitian Neha D. Shah, MPH, RD, CNSC, CHES. We are excited to help to educate patients, caregivers, and others about Nutrition for the Ileostomy: The Dietitian and Patient Perspective. Recap originally published by IFFGD on October 6th, 2020: https://www.iffgd.org/blog/october-2020-ddhchat-recap.html IFFGD – introductory tweets and remarks: The views and experiences shared by our participant are their own and do not reflect the official positions of IFFGD. Each patient is different. Always consult with your health care provider or a registered dietitian (RD) on a diet treatment plan…

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    Tina Aswani Omprakash

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    My Ostomy, My Lifesaver

    October 3, 2019
  • acceptance,  advocacy,  awareness,  Body Positivity,  Colorectal Surgery,  Crohn's,  Dating & Relationships,  Gratitude,  living with IBD,  Ostomy,  Ostomy Awareness Day,  Self-image,  stigma,  Ulcerative Colitis

    Ostomy Awareness Day: Empowering Ostomates to Live Fuller Lives

    November 22, 2019

    Last month, Amber Wallace Ogle of Ostomy Diaries & I got together with Hollister, Inc. (a major ostomy manufacturer) to bring our audiences a discussion on how to lead a fuller life with an ostomy. Our aim was to engage viewers from around the world who may be struggling with self-image, body image, family life and relationships with an ostomy. And it was a grand success! We reached nearly 1,500 viewers from over 46 countries and from the feedback received, it was a video that helped many. Here’s to many more conversations like this where we can help ostomates feel less like outcasts and more like the beautiful human beings…

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    Tina Aswani Omprakash

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    October 16, 2018

    Brown Girl with Guts: Tina’s Journey with Crohn’s Disease

    April 30, 2019
  • Ableism,  acceptance,  advocacy,  awareness,  Body Positivity,  colorectal cancer,  Colorectal Surgery,  coping with flares,  Crohn's,  living with IBD,  Ostomy,  Ostomy Awareness Day,  Self-image,  stigma,  Ulcerative Colitis

    The Beauty of Ostomates Worldwide

    October 17, 2019

    Happy #OstomyOctober, everyone! After doing a piece about things we can do with an ostomy last year, it only seemed appropriate this year to highlight how diverse the population living with all types of ostomies is. Just to backtrack, many of you might be wondering what an ostomy is. According to the United Ostomy Associations of America (UOAA), “ostomy surgery is a life-saving procedure that allows bodily waste to pass through a surgically created stoma on the abdomen into a prosthetic known as a ‘pouch’ or ‘ostomy bag’ on the outside of the body.” There are generally three types of ostomies: (1) colostomy, (2) ileostomy and (3) urostomy. A colostomy takes a resected…

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    Tina Aswani Omprakash

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    October 6, 2019

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    April 12, 2020

    The Other Side of Crohn’s: Caregiving

    December 9, 2019
  • Ableism,  acceptance,  advocacy,  awareness,  Body Positivity,  Colorectal Surgery,  Crohn's,  Fistulizing Disease,  living with IBD,  Minority Health,  Ostomy,  Ostomy Awareness Day,  stigma,  Ulcerative Colitis

    My Feature in Suffering the Silence’s Photo Series Campaign

    October 6, 2019

    Originally Published in The Mighty on October 2nd, 2019: https://themighty.com/2019/10/suffering-the-silence-chronic-illness-photo-series/ “I was diagnosed 13.5 years ago but I feel like for a long time I kept it quiet. It’s so deeply stigmatized in American culture. Crohn’s being a bowel disease makes it very difficult to talk about. It has to do with something that nobody talks about. It’s so debilitating. A lot of times it’s mistaken for an eating disorder because our weight can be all over the place so nobody wants to ask us what’s going on because they’re ashamed to. We want to be asked how we’re feeling. Since I became an advocate, more and more people are…

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    Tina Aswani Omprakash

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    July 1, 2020

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    December 27, 2019

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    December 9, 2019
  • acceptance,  advocacy,  awareness,  Body Positivity,  Colorectal Surgery,  Crohn's,  Gratitude,  living with IBD,  Ostomy,  Ostomy Awareness Day,  Self-image,  stigma,  Ulcerative Colitis

    My Ostomy, My Lifesaver

    October 3, 2019

    In honor of National Ostomy Awareness Day, blogger Tina Aswani Omprakash shares her journey with an ostomy and how she broke through the taboos she faced. By Tina Aswani Omprakash Originally published in Everyday Health on October 2, 2019: https://www.everydayhealth.com/columns/my-health-story/one-woman-shares-her-gratitude-on-world-ostomy-day/ I woke up from surgery feeling like someone had taken a hammer to my stomach. The strong smell of antiseptic assaulted my nose as I struggled to take in breaths of air. I cracked my eyes open and looked around my white hospital room. My nurse and her aide pulled back the curtain separating me from my roommate and I lay motionless as they transferred me from a stretcher to…

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    Tina Aswani Omprakash

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Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
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  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

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