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Own Your Crohn's

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  • acceptance,  advocacy,  awareness,  Colorectal Surgery,  Crohn's,  living with IBD,  Mental Health,  Minority Health,  Ostomy,  Ulcerative Colitis,  Women's Health

    ~OYC Trailblazers~ Mollie’s Story: Living la Vida Latina with Ulcerative Colitis & an Ostomy

    September 27, 2019

    By Mollie Tinnin My journey with chronic illness began my senior year of high school after a violent assault left me hospitalized with life-threatening injuries. At the time, I received eight units of blood and during the treatment of the injuries I had sustained, the physicians discovered I had ulcers in my intestines. The treatment of both these injuries and my ulcerative colitis have been complicated in that they both are intertwined and affect each other even until this day. I’ve tried several medications, such as Mesalamine, but with the scar tissue and the ulcers both being in the same location, medication has not been very effective for me. Surgically,…

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    Tina Aswani Omprakash

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    What Will People Think? ~A Short Documentary by Chealynn Feaster

    December 27, 2019

    ~OYC Trailblazers~ Michelle’s Story on the Intersection of Crohn’s & an LGBTQIA+ Identity

    June 22, 2020

    ~OYC TRAILBLAZERS~ Spotlight on Malaysian Crohnie & Ostomate Saravanan

    April 22, 2020
  • advocacy,  awareness,  caregivers,  Crohn's,  living with IBD,  Mental Health,  Minority Health,  Ulcerative Colitis

    Happy World IBD Day from Digestive Disease Week (DDW)!

    May 22, 2019

    Last weekend, a number of us celebrated World IBD Day from DDW in San Diego, CA. We advocates sat in sessions and conferences brainstorming the best ways in which to address the gaps in IBD care and bring those ideas forward to doctors leading the quest to improve our care. We discussed so many topics from mental health to support and caregiving in addition to sexual health and intimacy. We talked to Drs. Aline Charabaty & Neilanjan Nandi about how to take those topics forward to the larger community and have the tough conversations with our own providers. All in all, we, as a team, collaborated to bring together a…

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    Tina Aswani Omprakash

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    Step in Our Shoes: A Discussion on Being an Ally to the Black Community

    June 20, 2020

    World IBD Day Panel Discussion: Experiences of Minority IBD Patients & Caregivers

    May 23, 2020

    All of these exceptional women have won awards this year for their public advocacy efforts

    October 16, 2018
  • acceptance,  advocacy,  awareness,  Crohn's,  living with IBD,  Mental Health,  Minority Health,  stigma,  Ulcerative Colitis,  Women's Health

    As a Chronically-Ill Brown Woman, Here’s Why I Share My Survival Story

    May 16, 2019

    I had the honor of attending the 2019 HealtheVoices conference in Dallas, TX, as a patient advocate who was selected to attend from a group of 400+ applicants. Here are my impressions of the conference theme for this year, “A Little Heart Can Do Big Things” from the perspective of a chronically-ill brown patient advocate: https://www.oshihealth.com/my-survival-story/. Originally published by Oshi Health, Inc., on April 29th, 2019. Written by Tina Aswani Omprakash Please feel free to leave comments and feedback. I would love to hear your thoughts as always.

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    Tina Aswani Omprakash

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    When Diagnoses Accumulate – My Endometriosis Journey

    August 28, 2023

    When Diagnoses Accumulate: My Gastroparesis Story

    August 29, 2019

    World PTSD Day 2019: The Faceless Woman

    June 27, 2019
  • acceptance,  advocacy,  awareness,  coping with flares,  Crohn's,  Diet,  living with IBD,  Minority Health,  Nutrition,  Women's Health

    Brown Girl with Guts: Tina’s Journey with Crohn’s Disease

    April 30, 2019

    Originally Published by Girls with Guts on April 30th, 2019: https://www.girlswithguts.org/blog/2019/4/30/brown-girl-with-guts-tinas-journey-with-crohns-disease As a woman of color, I’ve struggled from the very beginning with inflammatory bowel disease (IBD). The diagnosis was hard enough to wrap my head around but add the elements of loss of career, loss of personality and ultimately, loss of cultural identity played into a lot of my struggles with managing my brand of IBD. To backtrack, I was diagnosed with ulcerative colitis in 2006. Now, this was by no means a surprising diagnosis for me. My father had died of a virulent form of Crohn’s that became colorectal cancer when I was 8 years old here in…

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    Tina Aswani Omprakash

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    ~OYC TRAILBLAZERS~ Katie’s Story: Baby-Making Prospects & Egg-Freezing with a J-Pouch

    September 4, 2019

    The Waiting Game

    June 30, 2018

    Allowing Acceptance In

    November 21, 2018
  • advocacy,  Colorectal Surgery,  coping with flares,  Crohn's,  Diet,  Emerging Therapies,  Fistulizing Disease,  living with IBD,  Mental Health,  Minority Health,  Ostomy,  stigma,  Ulcerative Colitis,  Women's Health

    The Impact of IBD on Racial & Ethnic Minorities

    April 24, 2019

    On Tuesday, April 23rd, 2019, in honor of National Minority Health Month, Dr. Aline Charabaty (Director of Johns Hopkins IBD Center), Brooke Abbott (Patient Advocate, Crazy Creole Mommy Chronicles) & I (Patient Advocate, Own Your Crohn’s) had the honor of speaking with the Crohn’s & Colitis Foundation on the very important topic of “The Impact of IBD on Racial & Ethnic Minorities.” Please view the Crohn’s & Colitis Foundation’s video below: If you are a man or woman of color living with inflammatory bowel disease (IBD), please know you are NOT alone. We are all here to support you through your journey. More is and will be done to tend…

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    Tina Aswani Omprakash

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    3 Patient Tips for Living & Thriving with Crohn’s or Colitis

    December 10, 2018

    Happy World IBD Day from Digestive Disease Week (DDW)!

    May 22, 2019

    A Day on the Hill: Putting a Face on IBD Legislation

    May 26, 2018
  • advocacy,  awareness,  Colorectal Surgery,  Crohn's,  Fistulizing Disease,  living with IBD,  Minority Health,  Ostomy,  stigma,  Ulcerative Colitis,  Women's Health

    About IBD Podcast #40 – Tina Aswani Omprakash’s Story: What Are People Going to Think?

    April 10, 2019

    Listen to About IBD’s Podcast #40: What Are People Going to Think? Shared via Amber Tresca’s podcast and blog, About IBD   People who live with Crohn’s disease and ulcerative colitis experience stigma because of their inflammatory bowel disease (IBD). The taboo topic of bowel disease can permeate all aspects of a person’s life, especially when there are cultural influences also at play. Tina Aswani Omprakash, who lives with Crohn’s disease and a permanent ileostomy, shares her story of personal empowerment and how she is working to help other people with IBD live their lives with confidence. Tina describes how IBD has profoundly affected her family as well as why…

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    Tina Aswani Omprakash

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    12 News to Your Health IBD Segment

    June 23, 2018

    Sepsis Is a Severe, Life-threatening Complication for IBD Patients

    September 22, 2018

    IBD Awareness Week Line-Up: Diversity, Mental Health & More!

    December 1, 2018
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  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

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