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  • acceptance,  advocacy,  chronic illness,  chronic pain,  Colorectal Surgery,  coping with flares,  Crohn's,  endometriosis,  extraintestinal manifestations,  Irritable Bowel Syndrome,  Mental Health,  Pelvic Floor Dysfunction,  Pelvic pain,  PTSD,  Ulcerative Colitis,  Women's Health

    When Diagnoses Accumulate – My Endometriosis Journey

    August 28, 2023

    Last spring, just when I had thought I had turned a corner and had many of my conditions better controlled, I developed a ton of crippling pelvic pain. Within a couple of days, I started bleeding a lot, which made no sense because I had been on hormones for years to stop my periods. Hormonal therapy was presented to me as a treatment option by Mayo Clinic’s gynecology team because I had many peritoneal inclusion cysts (scar tissue filled with fluid in my pelvis) that were wreaking havoc on my bladder before and after major surgeries done to remove my j-pouch. So, it was either hormonal suppression of ovulation or a hysterectomy at age…

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    Tina Aswani Omprakash

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    August 30, 2018
  • Crohn's,  Digital Healthcare Innovations,  Disability Justice,  invisible illness,  Irritable Bowel Syndrome,  J-Pouch,  living with IBD,  Ostomy,  patient rights,  Ulcerative Colitis

    My Feature in The New York Times!

    June 22, 2022

    In conjunction with the Crohn’s & Colitis Foundation’s new We Can’t Wait App, nonprofit partner South Asian IBD Alliance’s Co-Founder & President Tina Aswani-Omprakash was interviewed and featured in the Metropolitan section of the Sunday’s edition of The New York Times on 19 June 2022!!! Read the article in-print below or online here: https://www.nytimes.com/2022/06/17/nyregion/public-bathrooms-nyc-tiktok.html Check out the We Can’t Wait App to find the restroom nearest to you in the U.S. Available now for download in Apple Store and Google Play: https://www.crohnscolitisfoundation.org/wecantwait

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    Tina Aswani Omprakash

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    Pelvic Pain in IBD: An Overlooked Complication

    August 9, 2019

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    October 18, 2020

    Healthline’s Best Crohn’s Disease Blogs of 2020

    May 24, 2020
  • awareness,  Colorectal Surgery,  coping with flares,  Crohn's,  Fistulizing Disease,  Irritable Bowel Syndrome,  living with IBD,  Pelvic Floor Dysfunction,  Pelvic pain,  stigma,  Ulcerative Colitis,  Women's Health

    Pelvic Pain in IBD: An Overlooked Complication

    August 9, 2019

    By Tina Aswani Omprakash, Medically Reviewed by Jenny Blair, MD Originally Published by Oshi Health, Inc., on August 8th, 2019 A complication of inflammatory bowel disease (IBD) that often goes unaddressed and misdiagnosed is chronic pelvic pain (CPP). CPP is often defined as pain in the pelvic area that isn’t cyclic and isn’t related to pregnancy and that lasts for three to six months. It may affect from 6% to 25% of reproductive-age women, depending on how it’s defined, as well as men and older women. The condition can arise from a variety of causes. How I’ve Experienced Pelvic Pain So how does CPP apply to us as IBD patients?…

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    Tina Aswani Omprakash

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    Managing IBD in the Era of COVID-19

    April 19, 2020

    Black Lives Matter in the IBD Community, Too

    July 10, 2020

    My Feature During Crohn’s & Colitis Awareness Week

    November 8, 2018
  • acceptance,  advocacy,  awareness,  Crohn's,  Irritable Bowel Syndrome,  stigma

    An IBS Journey: Tina

    April 21, 2019

    Originally published in The Gut Gazette by Megan Marsiglio on April 15, 2019: https://thegutgazette.com/an-ibs-journey-tina/ If you have irritable bowel syndrome (IBS), you are NOT alone. To do our part in helping spread further awareness about IBS during April’s IBS Awareness Month, we are sharing different stories of various individuals who have IBS. Name: Tina Aswani-Omprakash, Patient AdvocateLocation: New York, NYWebsite: ownyourcrohns.comFB/Twitter/Instagram: @ownyourcrohns What symptoms do you experience with IBS? I have something called post-surgical IBS that I developed after many surgeries to bring my Crohn’s Disease under control. Symptoms include: bloating, nausea, abdominal cramping, chronic constipation (but if I take laxatives, then intense diarrhea). What has been the hardest challenge with IBS? Dealing with…

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    Tina Aswani Omprakash

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Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

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