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Own Your Crohn's

Empowering the Chronically Ill & Disabled to Lead Fuller Lives

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  • Blog
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  • SAIA-IBDesis
  • Testimonials
  • Contact Me
  • acceptance,  advocacy,  chronic illness,  chronic pain,  Colorectal Surgery,  coping with flares,  Crohn's,  endometriosis,  extraintestinal manifestations,  Irritable Bowel Syndrome,  Mental Health,  Pelvic Floor Dysfunction,  Pelvic pain,  PTSD,  Ulcerative Colitis,  Women's Health

    When Diagnoses Accumulate – My Endometriosis Journey

    August 28, 2023

    Last spring, just when I had thought I had turned a corner and had many of my conditions better controlled, I developed a ton of crippling pelvic pain. Within a couple of days, I started bleeding a lot, which made no sense because I had been on hormones for years to stop my periods. Hormonal therapy was presented to me as a treatment option by Mayo Clinic’s gynecology team because I had many peritoneal inclusion cysts (scar tissue filled with fluid in my pelvis) that were wreaking havoc on my bladder before and after major surgeries done to remove my j-pouch. So, it was either hormonal suppression of ovulation or a hysterectomy at age…

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    Tina Aswani Omprakash

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    The Other Side of Crohn’s: Caregiving

    December 9, 2019

    Indian Ostomate Podcast Show: Episode 1 with Tina Aswani Omprakash

    July 23, 2020

    Real Talk About Fistulae

    January 19, 2019
  • Cultural Stigma,  endometriosis,  Minority Health,  Ostomy,  Women's Health

    ~OYC Trailblazers~ Tanya’s Journey with an Ostomy & Endometriosis

    March 25, 2021

    My name is Tanya and I live with endometriosis and a permanent ileostomy. I’m of North African and Asian background from Mauritius. For years, I experienced uncomfortable bowel pains and no one could diagnose me properly. I struggled with retaining weight as all of my food would pass through me. It felt as though I was intolerant to all foods. I often found blood in my stools, and I felt permanently bloated. I eventually resorted to eating the same meals everyday to avoid upsetting my stomach. Work colleagues would notice and question why I had the same lunch everyday.  Like many suffering from endometriosis, I was misdiagnosed with IBS and…

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    Tina Aswani Omprakash

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    Basmah’s Journey: The Cultural Impacts of Being an Egyptian Crohnie

    April 18, 2021

    ~OYC Trailblazers~ Tanya’s Pregnancy Journey Living with Crohn’s Disease in India

    November 5, 2022

    How Ostomy Surgery Impacted My Life

    October 5, 2024

Recent Posts

  • Feb 18, 2025 How to Own Your Crohn’s & Ostomy While Traveling to India
  • Jan 05, 2025 Key Takeaways from Advances in IBD (AIBD) 2024
  • Dec 05, 2024 Navigating Mental Health in Crohn’s Disease 
  • Dec 04, 2024 Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience
  • Nov 18, 2024 SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

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Top Posts & Pages

  • Key Takeaways from Crohn’s & Colitis Congress 2023
    Key Takeaways from Crohn’s & Colitis Congress 2023
  • ~OYC Trailblazers~ Mara Living Her Best Life with a Kock Pouch in Germany
    ~OYC Trailblazers~ Mara Living Her Best Life with a Kock Pouch in Germany
  • ~OYC Trailblazers~ Tanya's Pregnancy Journey Living with Crohn's Disease in India
    ~OYC Trailblazers~ Tanya's Pregnancy Journey Living with Crohn's Disease in India
  • When Diagnoses Accumulate: My Sjögren's Story
    When Diagnoses Accumulate: My Sjögren's Story
  • 7 Tips for Traveling With IBD, From Someone Who Gets It
    7 Tips for Traveling With IBD, From Someone Who Gets It

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