Own Your Crohn’s

Empowering the Chronically Ill & Disabled to Lead Fuller Lives

What I Learned From Joining a Clinical Trial for Crohn’s

By Tina Aswani Omprakash, Medically reviewed by Jenny Blair, MD Originally published on the Oshi Health website on April 6th, 2020: http://www.oshihealth.com/joining-clinical-trial/ My journey with Crohn’s disease has been an arduous one, laden with difficult...

How a clinical trial helped this Crohn’s advocate finally reach remission

Originally published on November 22, 2019 on Antidote’s website Like many people living with Crohn’s disease, Tina Aswani Omprakash had trouble finding a treatment that would send her symptoms into remission. After trying many of the common...

Clinical Trials: The Next Frontier for Diverse Populations of IBD Patients

According to U.S. Census expert and demographer, William H. Frey, approximately half the U.S. population will be non-Caucasian come 2045.[i] Of the total U.S. population, less than ten percent participate in clinical trials. And the number of racial and ethnic...

In the Name of Science & Research

Traveling home from Mayo was beyond excruciating– horrible abdominal cramping and nausea/vomiting as I could barely walk. After all the testing I had had (4 testing procedures, an ER visit, multiple appts all in 5 days) and my Stelara trough levels coming back...

My Feature for Clinical Trial Awareness with Parexel

Honored to represent the clinical trial community within the Crohn’s Disease space for Parexel! Clinical trials are an important way for new medications to be tested and approved for use to provide quality of life, hope and happiness to those who suffer from...

Next Entries »

SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

Nov 18, 2024

SAIA is honoured to announce that Tina Aswani-Omprakash, MPH, is now our full-time Chief Executive Officer 🎉🎉 Written by Madhura Balasubramaniam, Sharan Khela, Dr. Neilanjan Nandi & SAIA’s Board of Directors Tina is a patient advocate and thought leader par...

HealtheVoices 10-Year Anniversary (A Reminder of Why We Advocate)

Oct 19, 2024

Originally published by The Insighters® on October 18th, 2024: https://theinsighters.com/blog-posts/13 As I reflect on my HealtheVoices experience this year on the conference’s 10-year anniversary, I see a bastion of hope, of love, and of support for years to come....

How Ostomy Surgery Impacted My Life

Oct 5, 2024

How ostomy surgery gave Tina Aswani-Omprakash her life back and the impact these surgeries can have in IBD treatment. Originally published on IBD Social Circle's Blog It is estimated that approximately three-quarters of Crohn’s disease patients and a third of...

Managing Crohn’s Disease and Going Back to School

Sep 4, 2024

In the summer of 2023, I graduated from Mount Sinai’s Icahn School of Medicine with a Master of Public Health (MPH) degree. In 2018 and 2019, as I was considering supplementing my patient advocacy work with a formal education in health, it was daunting to think how I...

My Real World Experience with Intestinal Ultrasound

Aug 12, 2024

Last week, I had my first intestinal ultrasound (IUS). I had been very nervous the last month getting ready to go in for IUS as I've been having weird gut symptoms the last few months. My ileoscopy has been scheduled for 3 months out, so my doctor and I decided it...

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