acceptance,  advocacy,  awareness,  Crohn's,  living with IBD,  Ostomy,  stigma,  Ulcerative Colitis

Crohn’s & Colitis Awareness Week: Minorities, Mental Health & IBD

This IBD Awareness Week, the Crohn’s & Colitis Foundation shared a video of me discussing one aspect of being South Asian: maintaining privacy. Privacy is a major concern when it comes to South Asian Americans sharing their personal IBD journeys. There is a phrase in Hindi & Urdu called “Log Kya Kahenge?” It is a cultural phenomenon that expresses deep concern for how society will view patients and their families once their stories are public.

But the reality is that suffering in silence can lead to deep-rooted shame while deterring self-care and self-advocacy, two very important aspects to our medical care. In this video, I talk about my experiences as a South Asian woman living with IBD and an ostomy in America.

I encourage you all to find your tribe and release any feelings of shame, guilt or inadequacy. We are enough! More than enough. ❤️😘

~Love, light & peace~ 

My name is Tina and I am from the NYC area. Due to the severity of my Crohn's, multiple surgeries and extraintestinal manifestations, I have served as a case study for a number of renowned doctors and surgeons across the country. I hope that my advocacy work and the medical research done on me help current and future populations of IBD patients. In a world where the #metoo movement has erupted, I believe it is high time for patients like myself to speak up about the ravaging aspects of chronic illness and disability. The intent of this blog is to give those suffering in silence and in shame a voice that creates greater awareness and acceptance of our daily struggles. I own my chronic illnesses and disabilities and my goal is for you to as well!