acceptance,  advocacy,  awareness,  Colorectal Surgery,  coping with flares,  Crohn's,  living with IBD,  Ostomy,  Pelvic pain,  stigma,  Ulcerative Colitis

My Pelvic Pain Story

…Via The Women’s Pelvic Pain Podcast…

My first podcast goes live! Check out my pelvic pain story available now in iTunes. Listen to Episode 14: My Pelvic Pain Story here:

Something many folks might not realize about having IBD and IBD-related surgery is that it often comes with chronic pelvic pain and pelvic floor dysfunction, which makes walking, sitting and emptying the bladder very difficult during pelvic flare-ups. And periods feel far more painful as does intercourse.

It is hard enough to talk about living with a bowel condition and/or an ostomy. Add pelvic pain to the mix and the stigma magnifies even further. My intent is to shatter those taboos and bring to light what I’ve done to balance my pelvic floor health with my emotional well-being and how it all ties back to my Crohn’s Disease.

I would love to hear any comments you may have and feel free to follow my story on my social media pages. Facebook/Instagram/Twitter: @ownyourcrohns

My name is Tina and I am from the NYC area. My background is in legal and compliance for financial services. Due to the severity of my Crohn's and multiple extraintestinal manifestations, I have been rendered unable to work. I have served as a case study for a number of renowned doctors and surgeons across the country. I hope that the research done on me helps current and future populations of IBD patients. In a world where the #metoo movement has erupted, I believe it is high time for patients like myself to speak up about the ravaging aspects of chronic illness and disability. The intent of this blog is to give those suffering in silence and in shame a voice that creates greater awareness and acceptance of our daily struggles. I own my Crohn's and my goal is for you to as well!