Originally Published by the Crohn’s & Colitis Foundation on their IBDVisible Blog on June 8th, 2022 By: Madhura Balasubramaniam & Tina Aswani-Omprakash After two years of virtual programming due to COVID-19, Digestive Disease Week® (DDW) 2022 came back with a bang in San Diego, CA last month. There was a lot of research presented about various gastrointestinal and liver conditions and it was exhilarating to see and hear about all the latest developments in the inflammatory bowel disease (IBD) space. From emerging therapies to better understanding of psychosocial aspects of IBD in addition to the role of antibiotics in IBD as well as growing up with pets and the development of IBD,…
- Clinical Trials, Crohn's, Emerging Therapies, living with IBD, medical trauma, Mental Health, PTSD, Ulcerative Colitis
- advocacy, autoimmune disease, COVID-19, Crohn's, immunocompromised, living with IBD, Ulcerative Colitis
Dropping Mask Mandates: A Time of Anxiety or Joy?
Last week I went back to school in-person for the first time in 2 years. There was a part of me that was excited, yes, but the other part of me was nervous as all heck. Meeting professors and students I had gotten to know virtually over the semesters felt like there was a human connection again outside of Zoom! And I have to admit that I really enjoyed going to class and being around like-minded people before this pandemic started. It was definitely a loss to go virtual but at the same time, going virtual meant people with disabilities like us could take care of our health while being…
- Clinical Trials, Colorectal Surgery, Crohn's, Diet, J-Pouch, living with IBD, Mental Health, Nutrition, Ulcerative Colitis
Key Takeaways from IBD Insider 2022: Patient Updates from the Crohn’s & Colitis Congress®
Originally Published by the Crohn’s & Colitis Foundation on their IBDVisible Blog on February 14th, 2022 By: Tina Aswani Omprakash The third annual IBD Insider was, as always, a great culmination of the events from the 2022 Crohn’s & Colitis Congress®. As patients, we often have many questions about what goes on at these medical conferences and how to understand the research in bite-sized, digestible pieces (yes, pun intended). IBD Insider does just that by bringing to us the newest research updates in IBD for us to stay abreast of the latest and greatest, but also to enable us to make the best shared decisions with our physicians in our care. The…
- Colorectal Surgery, Crohn's, Gastroparesis, invisible illness, living with IBD, medical trauma, Mental Health, Ostomy, PTSD, Ulcerative Colitis
Real Talk About Recovery
Recovery…it’s not something we talk about enough. Surgery, like the classic Bollywood love story, takes precedence but the moment the couple gets together, they live happily ever and we never hear about the rest. Same thing with the rush and excitement of surgery. We hear all about it but the reality is we never hear about how arduous the recovery is. Today marked a month since my surgery. It was quite an emotional day for me. For those of you just tuning in, I had an emergency laparotomy due to multiple bowel obstructions from previous surgical stapling and complications caused by scar tissue and a hernia strangulating my bowel and…
- Coming Out, Crohn's, Dating & Relationships, diversity, LGBTQ+ health, living with IBD, Minority Health, Pride, stigma, Ulcerative Colitis, Women's Health
This Love Takes Guts
Our love isn’t simple, but it’s also the easiest feeling in the world. Being a woman in the LGBTQ+ community, I assumed that I would always have to come out over and over again throughout the course of my life. But when I was diagnosed with Crohn’s at 19 and had my first surgery at 20, I realized that I would have to come out about multiple parts of who I am for the rest of my life. It wasn’t until I found Girls with Guts in 2016 that I found a group of people that I finally didn’t have to go through the process of coming out to, at…
- Colorectal Surgery, Crohn's, hydration, living with IBD, Mental Health, Minority Health, Nutrition, Ostomy, Ulcerative Colitis, World Ostomy Day
Saravanan’s Exercise Tips as a Crohnie & Ostomate
As an ostomate and IBD patient, many people often ask me if I am able to play sports. I tell them ‘YES’. Yes, we can actively participate in sport activities, but there may be some restrictions. For example, Larry Nance Jr. is an NBA star who has Crohn’s disease (CD). But his illness does not prevent him from staying active. Although I am not a professional athlete, I do play sports for fun with my friends and it helps my physical and emotional well-being. However, as an ostomate and CD fighter, I have to take extra precautions while being physically active. I used to play football, badminton and volleyball before…
- advocacy, autoimmune disease, Clinical Trials, Colorectal Surgery, coping with flares, Crohn's, living with IBD, Ulcerative Colitis
A Gutsy Feeling: Advocating for the Best Care Possible as IBD Patients
By Tina Aswani Omprakash **Supported by agutsyfeeling.org, a collaboration between Girls With Guts, Purdue University, College of Pharmacy, and the Academy for Continued Healthcare Learning** In today’s day and age, there are many treatment options for inflammatory bowel disease (IBD – ulcerative colitis and Crohn’s disease). But given all the new medications on the horizon, how do we as patients participate in shared decision making with our IBD specialists regarding which medication might be best for us? And how do we know when we have given the medication a fair enough shot and that it might be time to move on to the next treatment option? How do we know…
- acceptance, advocacy, Arab American Heritage Month, awareness, coping with flares, Crohn's, Cultural Stigma, diversity, living with IBD, Mental Health, Minority Health, National Minority Health Month, Ulcerative Colitis, Women's Health
Basmah’s Journey: The Cultural Impacts of Being an Egyptian Crohnie
“You have Crohn’s Disease.” That’s what my gastroenterologist told me after my first colonoscopy in 2003. I was 16 years old, and nobody in my family, except for my mom who is a doctor, had heard of the disease.For the last 18 years, I have experienced multiple hospitalizations, taken a plethora of medications, and contended with related symptoms and illnesses such as extreme weight loss, loss of hair, C. difficile, osteoporosis, and blood clots. I am a child of immigrants from Egypt, and grew up in a tightly knit Arab Muslim community in Minnesota. I absolutely loved it (still do) when we all got together for picnics, holidays, and gatherings.…
- autoimmune disease, Black Lives Matter, Caregiving, Coronavirus, Crohn's, Dating & Relationships, J-Pouch, living with IBD, Minority Health, Ulcerative Colitis, Women's Health
Taryn’s Journey: Navigating Relationships and IBD During the Pandemic
“I think I might be at the start of a partial obstruction. What do I do?” The words I shared with my husband in late March 2020 weren’t rhetorical. It was more like I dropped a mini bomb into an already stressful situation. Even though I’ve had a series of partial bowel obstructions over the years, this time felt different. We were at the beginning of the pandemic. At a time when merely stepping outside seemed dangerous, a trip to the ER felt terrifying. In that moment, I was asking for much more than just advice. I wanted – no, needed – reassurance that regardless of what was happening with…
-
Dietary Guidance in IBD – A South Asian Approach
On March 5th, 2021, Dr. Neilanjan Nandi of Penn Medicine, Philadelphia, PA, USA, hosted Dr. Sumit Bhatia of Medanta The MediCity Hospital, Gurgaon, India as well as Neha Shah, RD, of University of San Francisco, CA, USA, and me, Crohn’s & ostomy patient advocate of New York, NY. We sat down to discuss dietary guidance as provided by Dr. Bhatia along with practical tips of what South Asian foods to eat, how to customize them and how to include more protein in our diets to promote healing. Dr. Nandi also shared many important insights about diet from a South Asian American perspective and I also talked about what has worked…