Own Your Crohn’s

Empowering the Chronically Ill & Disabled to Lead Fuller Lives

~OYC Trailblazers~ Jennylyn’s Ostomy Love Story in the Philippines

My name is Jennylyn Ajes and I’m 32 years old from Laguna, Phillippines. In 2018, I was diagnosed with stage 2b cervical cancer, which means I had a tumor that had grown beyond the cervix and uterus.[1] During this time, I had undergone chemotherapy, radiation therapy...

MM&M Transform Talks: Prioritizing the Patient Voice

I recently had the opportunity to work with the MM&M Transform conference on a panel discussion on Prioritizing the Patient Voice in anticipation of their conference on September 29th-30th. A panel of 3 of us patient advocates (Tonya Cherie Hegamin, Type 1...

FitWitMD’s Live Discussion on Perianal Fistulizing Crohn’s Disease

A couple weeks ago, esteemed IBD specialist, Dr. Neilanjan Nandi (@fitwitmd) of Penn Medicine, hosted a live discussion with me on my experiences around Perianal Fistulizing Crohn’s Disease. We opened up the discussion to an international audience and allowed...

What IBD Awareness Means to a South Asian American Woman with Crohn’s

By Tina Aswani Omprakash Originally published in IBD Relief on May 18th, 2020: https://www.ibdrelief.com/ibd-stories/my-ibd-story-tina-aswani-omprakash I remember waking up from a surgery to repair a rectovaginal fistula in late 2011 and being yelled at by an elderly...

Sophia’s Chronic Illness Journey: Forced Switching to Biosimilars in Canada

By Sophia Ali Khan From Diagnosis to Remission I was diagnosed with Crohn’s Disease at the tender age of seven in Calgary, Alberta in Canada. This was after I was born with congenital neutropenia, a condition that involves the deficiency of neutrophils, a type of...

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Key Takeaways from Crohn’s & Colitis Congress 2023

Feb 24, 2023

The Crohn’s & Colitis Congress 2023 took place last month in Denver, Colorado, bringing together more than 1,300 healthcare professionals and researchers from across the globe to share the latest advancements in inflammatory bowel disease (IBD). To summarize some...

~OYC Trailblazers~ Tanya’s Pregnancy Journey Living with Crohn’s Disease in India

Nov 5, 2022

Written by Tanya Manohar My name is Tanya, and I live in Chennai, India. I was diagnosed with Crohn’s disease in 1999, a time when little was known about IBD in India. This means that I have segments of intestinal narrowing and scarring throughout my small intestine...

A Direct-to-Patient Model: How Online Pharmacy Marley Drug is Revolutionizing Drug Pricing

Sep 8, 2022

Sponsored by Medicure’s Marley Drug. All thoughts & opinions are my own. As patients, have you ever wondered if forgoing health insurance could perhaps save us money on prescription drugs? I honestly hadn’t considered it and this concept blew my mind when I first...

My Feature in Gastroenterology & Endoscopy News!

Aug 1, 2022

Very honored to have been featured in Gastro & Endo News with regard to addressing sleep issues in IBD. This is something I've struggled with for a long time because I often need to use the facilities overnight and have trouble falling back asleep. Learn more...

7 Tips for Traveling With IBD, From Someone Who Gets It

Jul 1, 2022

Don’t let inflammatory bowel disease and fears of COVID-19 get in the way of your travel plans. Here’s what you need to know before you start packing. By Tina Aswani-Omprakash Summers are a time to look forward to rest, relaxation, and vacations. But for those of...

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