Own Your Crohn’s

Empowering the Chronically Ill & Disabled to Lead Fuller Lives

In the Name of Science & Research

Traveling home from Mayo was beyond excruciating– horrible abdominal cramping and nausea/vomiting as I could barely walk. After all the testing I had had (4 testing procedures, an ER visit, multiple appts all in 5 days) and my Stelara trough levels coming back...

Fistulas: What You Need to Know About a Common Side Effect of Crohn’s

By Padma Nagappan Medically Reviewed by Kareem Sassi, MD Originally published by Everyday Health on May 14th, 2019: https://www.everydayhealth.com/crohns-disease/symptoms/fistulas-common-crohns-side-effect-you-should-aware/ Fistulas are an abnormal...

The Impact of IBD on Racial & Ethnic Minorities

On Tuesday, April 23rd, 2019, in honor of National Minority Health Month, Dr. Aline Charabaty (Director of Johns Hopkins IBD Center), Brooke Abbott (Patient Advocate, Crazy Creole Mommy Chronicles) & I (Patient Advocate, Own Your Crohn’s) had the honor of...

5 Hot Topics Presented at Crohn’s & Colitis Congress 2019

I had the honor of attending the 2019 Crohn’s & Colitis Congress in Las Vegas, NV as a patient advocate and speaker on the Perianal Fistulizing Crohn’s Disease panel. From diet and nutrition to mental health and pregnancy in IBD, here are the most salient...

Next Entries »

Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience

Dec 4, 2024

By: Madhura Balasubramaniam, Sharan Khela & Tina Aswani-Omprakash Our patient advocate team, SAIA’s IBDesis, were honoured to participate in the American College of Gastroenterology’s (ACG) Annual Scientific Meeting in Philadelphia, PA, USA, between October 25th...

SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

Nov 18, 2024

SAIA is honoured to announce that Tina Aswani-Omprakash, MPH, is now our full-time Chief Executive Officer 🎉🎉 Written by Madhura Balasubramaniam, Sharan Khela, Dr. Neilanjan Nandi & SAIA’s Board of Directors Tina is a patient advocate and thought leader par...

HealtheVoices 10-Year Anniversary (A Reminder of Why We Advocate)

Oct 19, 2024

Originally published by The Insighters® on October 18th, 2024: https://theinsighters.com/blog-posts/13 As I reflect on my HealtheVoices experience this year on the conference’s 10-year anniversary, I see a bastion of hope, of love, and of support for years to come....

How Ostomy Surgery Impacted My Life

Oct 5, 2024

How ostomy surgery gave Tina Aswani-Omprakash her life back and the impact these surgeries can have in IBD treatment. Originally published on IBD Social Circle's Blog It is estimated that approximately three-quarters of Crohn’s disease patients and a third of...

Managing Crohn’s Disease and Going Back to School

Sep 4, 2024

In the summer of 2023, I graduated from Mount Sinai’s Icahn School of Medicine with a Master of Public Health (MPH) degree. In 2018 and 2019, as I was considering supplementing my patient advocacy work with a formal education in health, it was daunting to think how I...

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