Own Your Crohn’s

Empowering the Chronically Ill & Disabled to Lead Fuller Lives

~OYC Trailblazers~ Mollie’s Story: Living la Vida Latina with Ulcerative Colitis & an Ostomy

By Mollie Tinnin My journey with chronic illness began my senior year of high school after a violent assault left me hospitalized with life-threatening injuries. At the time, I received eight units of blood and during the treatment of the injuries I had sustained, the...

~OYC TRAILBLAZERS~ Katie’s Story: Baby-Making Prospects & Egg-Freezing with a J-Pouch

A Nursing Student Tells OYC Her J-Pouch Story and How That Led to Her Courageous Decision to Freeze Her Eggs to Someday Have Children. By Katie Gene Friedman When I was first diagnosed with ulcerative colitis in my senior year of college, my colitis responded to...

When Diagnoses Accumulate: My Gastroparesis Story

As Gastroparesis Awareness Month is coming quickly to a close, I thought it high time to share my story. As many of you know, I was diagnosed in June with a form of digestive tract paralysis (DTP), specifically gastroparesis, via antroduodenal manometry and a gastric...

Weekend Long IBD Retreat Helped Me to Own My Crohn’s

Everyday Health blogger Tina Aswani Omprakash details her experience on a weekend-long retreat for women living with IBDs. By Tina Aswani Omprakash Originally published by Everyday Health on August 23rd, 2019:...

Pelvic Pain in IBD: An Overlooked Complication

By Tina Aswani Omprakash, Medically Reviewed by Jenny Blair, MD Originally Published by Oshi Health, Inc., on August 8th, 2019 A complication of inflammatory bowel disease (IBD) that often goes unaddressed and misdiagnosed is chronic pelvic pain (CPP). CPP is often...

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“I Had an Ostomy—and It Changed My Life”

Dec 11, 2019

For these people living with Crohn's disease, ostomy surgery made everything from the ordinary to the extraordinary possible. By Jennifer Rainey Marquez Excerpt taken from HealthCentral. Article originally published in HealthCentral on November 27th, 2019:...

The Other Side of Crohn’s: Caregiving

Dec 9, 2019

By Anand Omprakash Originally published by the Crohn's & Colitis Foundation on December 3rd, 2019: https://www.crohnscolitisfoundation.org/anands-story “Love is that condition in which the happiness of another person is essential to your own.” – Robert A...

How a clinical trial helped this Crohn’s advocate finally reach remission

Nov 24, 2019

Originally published on November 22, 2019 on Antidote's website Like many people living with Crohn's disease, Tina Aswani Omprakash had trouble finding a treatment that would send her symptoms into remission. After trying many of the common Crohn's treatments on...

Ostomy Awareness Day: Empowering Ostomates to Live Fuller Lives

Nov 22, 2019

Last month, Amber Wallace Ogle of Ostomy Diaries & I got together with Hollister, Inc. (a major ostomy manufacturer) to bring our audiences a discussion on how to lead a fuller life with an ostomy. Our aim was to engage viewers from around the world who may be...

The Healio Disruptive Innovator Award: Moving the Needle on IBD Care

Nov 16, 2019

A few weeks ago on Diwali Day, I won the Healio Disruptive Innovator Award for the Patient Voice category at the American College of Gastroenterology's conference in San Antonio, Texas! This award is presented to the patient advocate who helps move the needle on GI...

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